posted
My doc that does my hormones was going through my symptoms and thinks I may have a pituitary tumor.
She said high PTH, kidney stones, consti pation, fatigue, and eye issues are all signs of a tumor.
Has anyone else experienced this? What did you do for it?
Crazy as it is, when I have been on some sort of hormone either thyroid, estrogen, or progesterone I have bowel movements.
We decided that thyroid wasn't right so they started me on bio-identicals.
Guess what the bowels are working again. Amazing.
I wonder if I am making any hormones.
Another thing that happens is my head, intestines, and eyes get really weird on me.
My head feels sick with pressure, my eyes go funny and can't focus, and I get a funny hormonal feeling in my stomach and intestines.
Can anyone make anything of this? I have been to one endochrinologist that had to be the worst in the US.
Even my GP threw a fit when he figured out who the Uro. sent me to. What a waste of time and money.
Posts: 620 | From Ks | Registered: Oct 2011
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- What does your LLMD say about this? Lyme can really affect everything else in the body so tests can be misinterpreted by those doctors who are not lyme literate.
Be sure your LLMD weighs in on this. I also hope you can stop going to the doctors you describe as far less than capable.
Lyme forces us to really do our homework before going to ANY doctor, for ANY reason. True, not everything is lyme/TBD - but lyme/TBD changes everything so it's best to have the counsel of a LLMD on important matters.
They often will know the best specialists in your area, too.
Every symptom you list is very common with lyme (though kidney stones maybe not quite as much so but can be). Again, start with your LLMD. Work outward from there. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Anyone with PITUITARY abnormalities needs to know that Lyme really clobbers the HPA-axis, big time, from all angles, in all ways.
While it sounds like the doctor you've seen about this is taking information from tests and not from a brain scan . . . if an MRI has been done and shows any lesion,
know that lyme can cause lesions and they often subside with proper anti-infective treatment for lyme/TBD, &/or parasites - and by addressing heavy metal toxicity, too.
But most doctors are unaware that lyme/TBD/parasites can cause brain lesions or that treatment helps. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
The pituitary gland is the master gland because it control the other hormone producing glands. The first thing they check for if they suspect low thyroid function is the TSH levels which is what the pituitary sends out telling the thyroid to turn on and make more T4 and T3.
If your TSH is low as well as your T4 and T3, then maybe that would indicate you have a pituitary problem. I hope you don't have a tumor. You can also get Cushing disease if you have a pituitary tumor.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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My T3 and T4 have been OK. But, my TSH is 143. It used to be 119.
It just keeps going up. My calcium is normal.
I tend to agree, if they can get the Lyme treated there is a good chance my symptoms will go away.
I have had a MRI that had white matter on the brain. Of course, the neuro. didn't have a clue.
I am thinking I have met my deductible and everything thing else.
I may have a MRI to rule the tumor issue out.
My grandmother had a benign tumor when I was little.
This was in the 60s and noone can remember what or where the tumor located.
I will call my hormone doctor on Monday and see if she can visit with the LLMD and discuss if their course of action is still on track. They work together and treat many Lyme patients.
I am so tired of all this stuff, but just like the rest of you, I plug along.
Posts: 620 | From Ks | Registered: Oct 2011
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poppy
Frequent Contributor (1K+ posts)
Member # 5355
posted
T3 and T4 OK? Is this free T3 and 4? Have you had the reverse T3 measured too? That high TSH with normal T's does not make any sense.
Posts: 2888 | From USA | Registered: Mar 2004
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posted
I know you CAN have a pituitary tumor and never need surgery for it. I used to be on a growth hormone email list since I was taking rGH...
and several people there had pituitary tumors. I THINK they just took the hormones needed in order to supplement.
Hope it all works out.. and glad your Dr is searching it all out.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
I have very high Prolactin levels which they say can indicate a tumor on the pituitary. I had an MRI in the past that said there was a "spot" on the pituitary, but it was nothing to worry about. That was way before I knew I had Lyme or high prolactin.
I should probably have another MRI, but I'm so tired of tests and procedures.
Lymetoo what is rgh? Is it a prescription.
Posts: 2232 | From USA | Registered: Aug 2009
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posted
I got a PT. Not worried about it as I have had several MRI's. It's actually called a Rathke cleft. Do you realize that one out of every four people on the Earth supposedly have some sort of PT tumor. Very common. Most people wouldn't know that they had it unless they had a CT or MRI scan.
-------------------- HERX is a Four Letter Word! Posts: 716 | From If you're going through hell, keep going......Winston Churchill | Registered: Apr 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- You may already do this but, if not, now would be a good time to be sure you are as free of all endocrine disruptors as possible.
Go for certified, verified organic foods as much as possible and otherwise avoid ingesting pesticides and herbicides that have been used (as they get into food, not just on it).
For meat, organic principles are really important, too. WILD fish. Eggs only from hens that are cage-free, but not raised in a barn shoulder to shoulder 24/7.
The diet of the hen matters tremendously in that eggs and meats that we eat, as does the kind of life that animal has been allowed to enjoy.
Avoid vinyl shower curtain, plastic food or water containers, etc. Synthetic scents and petroleum in your soaps and shampoo, etc. More detail here:
Rachel's Friends -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Just wondering and I would really like to hear a "yes" here.
Did the doctor who suspects pituitary trouble teach you all about endocrine disruptors?
I rather doubt it but they should. IMO, they are negligent if they don't give you various education sources on this matter - and walk you through it - or refer you to someone who can offer you detailed education.
Most naturopathic doctors can help in this department. -
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