ArtistDi
Frequent Contributor (1K+ posts)
Member # 2297
posted
Is there anyone on low dose naltrexone along with antibiotics or antimalarials? Did your llmd put you on both, and how is that working for you?
Thank you. Artist
Posts: 1567 | From Hatfield, MA, USA | Registered: Mar 2002
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
I'm on all 3. LDN, 3 antibiotics plus mepron.
Been on this for over a year. No issues.
I'm around 90%
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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Sammi
Frequent Contributor (1K+ posts)
Member # 110
posted
I am also on all three, and I have not had any problems.
For some people, LDN can cause temporary insomnia. I believe it typically resolves a couple weeks after starting it.
Posts: 4681 | Registered: Oct 2000
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
You can avoid the insomnia by taking it in the morning. Dr. Zagon (not a LLMD) at Penn State University has studied LDN for nearly 30 years and he says their research shows it does not matter what time of day you take it.
I started it with antibiotics but now I am off everything but the LDN. The first time I tried it I had terrible bladder irritation which I thought was a side effect. Turns out it was undiagnosed protomyxzoa. Months later after I began treatment for PR, I had no trouble with the LDN.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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ArtistDi
Frequent Contributor (1K+ posts)
Member # 2297
posted
Thanks for your input. Nefferdun, how are you doing on the LDN alone?
Posts: 1567 | From Hatfield, MA, USA | Registered: Mar 2002
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My son (22) has been on LDN + ABX + Mepron for about 5 weeks now...no reactions. So far hasn't helped. Sorry but not helping yet. His sleep isn't great but he seems to have good and bad nights, always have. Good luck
Posts: 158 | From NJ | Registered: Jul 2010
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My son (22) has been on LDN + ABX + Mepron for about 5 weeks now...no reactions. So far hasn't helped. Sorry but not helping yet. His sleep isn't great but he seems to have good and bad nights, always have. Good luck
Posts: 158 | From NJ | Registered: Jul 2010
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
quote:Originally posted by nefferdun: You can avoid the insomnia by taking it in the morning. Dr. Zagon (not a LLMD) at Penn State University has studied LDN for nearly 30 years and he says their research shows it does not matter what time of day you take it.
I started it with antibiotics but now I am off everything but the LDN. The first time I tried it I had terrible bladder irritation which I thought was a side effect. Turns out it was undiagnosed protomyxzoa. Months later after I began treatment for PR, I had no trouble with the LDN.
Neff...I"d be careful with this. The whole reason why LDN works is you take the "fast acting" version at bedtime which disrupts the endorphin or some production in the brain at a specific time.
This can only happen at night.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
| IP: Logged |
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