posted
HI everyone...I have been experiencing pain all over today..it is an aching, throbbing kind of pain and it is practically head to toe. This has been happening more and more lately. I am off all antibiotics at the moment..I am on TPN and will be starting Rocephin in a few weeks.
My question is, is this kind of pain probable babs or bart? My dr suspects I have bart and I am serum positive for babs...I am wondering if this kind of pain will not be helped by the rocephin if it is from a coinfection. Any thoughts would be appreciated...the pain is so bad that I just broke down crying in my best friend's arms an hour ago. Thanks. Jess.
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surprise
Frequent Contributor (1K+ posts)
Member # 34987
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Is there any way a pain med can also be administered with your IV?
I'd call tomorrow, before holiday and folks are out. So sorry, I'm sure you can't take anything orally :-(
As far as which infection is causing the pain, do not discount the Lyme itself!
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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Surprise-I have been reluctant to take pain meds but this is so awful I may have no choice...it just hits me and BAM I am writhing on the floor in agony...My poor best friend was crying. I was trying to tell her, "oh its ok -this is just what happens" and she was like, "THIS IS NOT OK"...it's amazing what we become habituated to with this illness, isn't it?
You are right, I am sure lyme may be a factor too..its just hard to suss it out sometimes because I have so many coinfections that I test positive for. UGHH...Thank you very much for the response. Jess.
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surprise
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I don't 'take' pain meds, either, but about 1x a month, maybe a couple times,
I have been hit with an overwhelming painful headache, other aches I won't bore you with-
if I can't get rid of it with ibuprofen, I do have a small script here for a pain med-
I asked my LLMD for it, and to write it for a small amount of pills not to be filled more than 1x a month-
May sound weird, but I don't want to rely on them/ start taking too much-
BUT, there are times when there is no other choice. Either I have a pain pill here, or I have to go to the ER. It's that bad.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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posted
Surprise-yes, I have been so reluctant to take anything at all. I try to just work through the pain but when it hits as bad as it did tonight, it literally becomes blinding and all-consuming. Jess.
Posts: 870 | From ct | Registered: Nov 2012
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Lymetoo-I think babs might be an issue too...
Nonna-thanks for the kind words. Jess.
Posts: 870 | From ct | Registered: Nov 2012
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
I have Lyme & Bart., but no specific symptoms point directly to Babesia. All coinfection tests are negative. But we all know these coinfections can hide for years, so who knows which coinfections I really have...
Anyhow, my pain responds to the following (I'm allergic to all over-the-counter pain medications and don't do well because of side-effects from prescription pain meds either):
Muscle pain: Homeopathic Arnica, Epsom Salt bath soaks
Nerve pain: Homeopathic Hypericum, Homeopathic Belladonna, Benadryl (histamine is a neurotransmitter in addition to an allergy mediator)
Joint pain: Stinging nettle leaf powder
Wandering Leg Pain (seems to be a combination of joint, nerve & muscle pain, for me this was my first and most disabling Lyme symptom): Homeopathic Causticum, heating pad on lower back, stinging nettle leaf (prevention)
Be aware that opiate pain medications can slow stomach emptying and thus make nausea worse. I have to take anti-nausea medication if I'm on opiate pain meds because otherwise I vomit.
Since you haven't been on treatment for a while, it is likely this pain you are experiencing is a flareup of one or more of the infections.
Anything you can do for detox may help. Dry skin brushing, baking soda or epsom salt foot soaks or warm (not hot) epsom salt bath soaks (keep the PICC out of the bath water, LOL!) are ok with the PICC/TPN. Sauna is not ok with the PICC.
May also need to request some kind of anti-Candida medication because of the sugar in the TPN...especially once you are on the abx again.
If your stomach will let you, taking probiotics is important to try to do.
Other tools for coping with pain:
Distraction. Watch a movie, read a book, talk with a friend, participate in a hobby, listen to a book on tape or the radio, etc.
Deep breathing, with or without imagery - breathe through the pain, slowly and calmly, when the pain seems unbearable. Imagery: Picture in your mind the pain leaving when you exhale, and when you inhale, picture peace and calming entering your body to replace the pain that left.
I hope this helps...take care,
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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Razzle-THANK YOU SO MUCH!! Your post is so helpful. You have guided me probably more than anyone on this board and I am endlessly thankful. Jess.
Posts: 870 | From ct | Registered: Nov 2012
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
You are most welcome
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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posted
Chronic severe pain is babs & lyme for me. I swear every inch of my body hurt last winter. I took max dose Aleve around the clock for at least 2 months. I certainly didn't want to but couldn't function at all otherwise. I didn't start to have relief until I went on mepron.
I'll say a prayer for you. Severe pain is no joke!
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