posted
HI everyone...I was asked by several members to do public updates of my "TPN Saga"...Well, on a positive front I have gained more weight and am now a whopping 82 pounds. I have color in my cheeks again and I looked in the mirror a little while ago and I cried because I recognized myself for the first time in months. The weight gain hasn't yet been major but the nutrients simply make me look ALIVE in a way that I haven't in months.
It is very difficult to infuse so many hrs a day however, and the PICC makes me feel ugly and unattractive, but it is a small price to pay for saving my life. I am still vomiting a great deal though and that stinks.
Also, my neurological symptoms seem to be MORE intense in the past week, but I think that is because I am off all abx at the moment. I will begin IV Rocephin when I hit 85 lbs though, so fairly soon hopefully. I am eating a little but not enough to sustain myself without the TPN, so I fear that I will be on IV nutrition for awhile to come.
I just wanted to give an update and thank everyone again for the supportive posts and PMs. It is appreciated . Jess.
Posts: 870 | From ct | Registered: Nov 2012
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Hi Jess,
I have been reading your posts and updates on TPN. Just want you to know, I am praying for you to get well and to keep gaining weight. You have a strong spirit in this fight and that will serve you well. Oh yeah and keep having those great intimate times, it actually can boost the immune system!
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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posted
I am so happy to hear that you are looking alive again! You are very brave for doing this, and I am cheering you on in your healing.
I hope the neuro stuff improves when you can get back on abx. I know you are really struggling right now, but the decision to do TPN was a great one. It won't be forever.
-------------------- "Looks like freedom but it feels like death.. It's something in between, I guess"
Leonard Cohen, from the song "Closing Time" Posts: 822 | From California | Registered: Jan 2006
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posted
Mini-thank you so much. I really appreciate it. Yes, this is a definite struggle right now but I have to just keep going. I want my life back fully, and if I have to go through this hell to do it, then I shall. Thanks again. Jess.
Posts: 870 | From ct | Registered: Nov 2012
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. Jess.
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