posted
My 14 year old sister for the past 3 months has been experiencing chest pains, tiredness, and headaches every now and then. Last week her chest pain was so bad she had to go to the ER for the first time. Of course, they sent her out for the ELISA. I told my mom to take her to her primary care and demand a western blot. My mom said band 41 IgG came back present.
My little sister has had no sexual contact so I don't believe it would be syphilis cross-reacting. Is this enough to start the process of Lyme treatment and start shelling out the $$$? Her primary care told her to take tylenol and that sports are giving her chest pains..... She has been healthy all of her life and has played sports for years. The doctor also told her Lyme doesnt cause chest pains or headaches. Oh my.
Posts: 251 | From Baltimore | Registered: Oct 2012
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posted
in my opinion where there is smoke there is fire....i started treatment without a single band...can lyme or coninfections cased headaches and chest pains? the answer is yes....
Dave
with 20/20 hindsight you have to assume the worst until someone who is qualifed can rule out Lyme. if someone had told me that 7 years ago i would be fine today.
-------------------- On my journey to wellness - One day at a time. Posts: 989 | From NJ | Registered: Sep 2008
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surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
If only p41 is showing, I might want to also rule out H. Pylori, since that is also a flagella.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Certain indeterminate bands are also considered positive by ILADS guidelines. What are the rest of her bands?
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Important Lyme questions aside, I wish they would quit handing out tylenol like candy.
You say that she was told " to take tylenol and that sports are giving her chest pains... ." (end quote)
Note: acetaminophen can make chest symptoms worse, as it blocks glutathione. It can also cause liver damage (espcially if she does have lyme as her liver may be stressed to begin with.)
See the relevant links, a ways down in this thread:
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Are they in the same city as you? If so, be sure they know that Johns Hopkins is a terrible place regarding their willingness to learn about lyme. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
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- For now, it's important for her to not do any aerobic exercise as, during active infection, this can cause damage to the heart.
Non-aerobic only until this is figured out. Explained here:
EXERCISE INTOLERANCE is (partially) explained in the article: "when exercise doesn't work out" (and what we can do about that) -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
I live in Baltimore, MD and my sister lives in Maryland on the eastern shore in Talbot country. Its getting really bad here with ticks. My mom says there are a lot of people with Lyme near her and that her client referred her to an LLMD out there. I know its convenient but I would rather have her drive here to see my doc. She is getting an echocardiogram done. I have tried to explain to my mom that it will probably show up clear and that she needs to make an appointment asap. I even gave her my left over Doxy. Not sure if she started that yet to hold her over till the doctors.
Posts: 251 | From Baltimore | Registered: Oct 2012
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t9im
Frequent Contributor (1K+ posts)
Member # 25489
posted
Hi xrunner:
In the mid to late 80's Alan Steere wrote two research papers indicating band 41 is the first to show up and with symptoms confirms the presence of the Lyme bacteria.
This was before his 93 paper on the over diagnosis and over treatment of the disease or his 94 paper on diagnosing requiring 5 positive bands.
A LLMD should treat based on symptoms and use the WB to confirm.
If your giving your sister doxy remember to have her avoid the sun and take a probiotic.
-------------------- Tim Posts: 1111 | From Glastonbury, CT | Registered: Apr 2010
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- The echocardiogram should be done both lying down and standing up, not standard but very important.
He's not a LLMD, still see Cheney's article / video about that in the Cardiac Thread above.
Even if neither approach "shows" anything, it's a good test to rule out other things. Still, as you know, a normal "echo" does not mean there are no symptoms.
Beyond getting the basic ehco done now, a LLMD sounds like an excellent choice. I'm glad she's been referred. I hope she keeps that appointment.
I'm not too familiar with how far apart this or that place is and sort of assume anyone on the Maryland shore is not too far from Baltimore.
As for their coming there to your doctor. Not sure who you see but know there is at least one excellent LLMD in Baltimore (maybe more).
TF (another poster here) saw failure with two others, yet had great success and reached remission in one year's time after finally finding a LLMD there who was assertive enough with treatment.
Hope this all works out. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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