posted
Hi I have been sick since 2010, I have been all over the place, no one really gives me any answers, all my blood comes back fine. I did do an igenex test, results below, any feed back would be appreciated.
Symptoms Orthastatic intolerance, can't stand for long. Summers worse off. Heat really gets me bad or really cold. Fatigue. Shortness of breath random times, summer worse. No energy.Weak body, joints. Took doxycycline felt horrible later that night. Stopped taking after one day. High yeast in stool test. Currently I just started trying samento. 1 drop daily with small herx next morning.
39 IND 41 ++
Posts: 2 | From Texas | Registered: Mar 2013
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
We are not doctors and cannot diagnose you. Please consult a Lyme-Literate health care practitioner for proper treatment - your test results and symptoms suggest Lyme and/or coinfections are a possible issue.
If you are not seeing an ILADS-trained Lyme-Literate medical professional (MD, DO, ND), I suggest you post in the "Seeking a Doctor" forum here to get recommendations for somone near you.
Take care,
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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Doxy and other antibiotics for Lyme will cause a Jarisch-Herxheimer (herx) response. You will feel worse before you feel better. Keep going on that doxy!!
I know Texas only has one LLMD, so I do hope you can get to one!!! Do not think you can beat this without a good doctor who knows what he is doing.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Welcome to Lymenet!
I'm no doc, but I've been around long enough to recognize it. You have lyme. You must suspect it or you wouldn't be here.
I'm guessing you already found a lyme doc since they are pretty much the only ones ordering IgeneX tests. Hopefully an ILADS doc, since they are cutting edge (International Lyme and Associated Diseases Society). Sadly, mainstream docs are clueless.
There is lots of great information here on Lymenet for you to review. Also a great book that explains the whole lyme controversy: Cure Unknown. It's a really good read.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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Sammi
Frequent Contributor (1K+ posts)
Member # 110
posted
I agree with the other replies. You also need to be evaluated for all the co-infections ticks can transmit. Some of your symptoms could also be from the co-infection Babesiosis.
Make an appointment with a knowledgeable doctor as soon as you can.
Posts: 4681 | Registered: Oct 2000
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