randibear
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posted
Some are pretty harsh and scour your knsides practically. Is there something that is very effective but also gentle??
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glm1111
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posted
randibear,
I understand what and why you are asking that question with your diverticulitus and all. I don't know of any gentle parasite tx. Parasites can cause a lot of pain, especially when trying to kill them.
If you look at the symptom list at Humaworm, you will see that abdominal pain is on the list. You can google a list of antiparasitic foods and try that along with coconut oil.
I just don't think with the kind of infection you have, that it would be sufficient. You can also google some home remedys for killing parasites.
The only other thing i can think of is to take the Humaworm and or Parastroy, open a capsule and mix it with applesauce and just take as little as you want. The same with salt/c. Start with a very low dose like 1/8tsp.
Yes I know you have b/p problems, but I have noticed some posters with high b/p, have lowered their b/p while on salt/c.
You can also check with the folks at lymestrategies. Well, these are the suggestions I have. maybe someone will come along with more.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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posted
Randi.. it might be far safer to live with the parasites.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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randibear
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Member # 11290
posted
Well whatever I have is acting up big time. Course I was under mAjor stress. The lower left and back and hip pain are pretty bad. I know my drs are pushing that surgery but man I dont want it. This is my third attack of this crap this yrar.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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glm1111
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posted
Okay, NOT safer to just live with them when your immune system is suppressed. I will tell you this though, I know someone very close to me that had a very bad infection in their colon. Mucus, blood, polyps etc.
The docs of course didn't have a clue that it could be Lyme and parasites. This person had their entire colon removed and had a J Pouch placed.
They use the small intestine unwind it and make a long extension for the food and stool to pass through and connect it to the rectum. Google J Pouch. This was 10 yrs ago, and they are fine and living a normal life.
Randi, maybe this is the way to go for you because from what you have posted, I am skeptical that you would be a candidate for some serious parasite treatment. It can get rough.Maybe study the procedure, ask lots of questions about recovery time and what to expect.
Maybe you could ask to speak to some people that had it done. Also might help with weight loss and a better quality of life. Something to consider and research.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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posted
Safer than having surgery for diverticulitis.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Tammy N.
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posted
So sorry for all your troubles.
Maybe anti-parasitic herbs are more harsh on the gut than meds.
Maybe try to start with a low dose of Ivermectin. Very low, then see how you do and take it from there.
I remember a few years ago when you tried Humaworm. You mentioned a day that you were bright eyed and felt good. And you passed things that were "not poop" (your words). I also recall you saying you had parasites as a young child. I bet this is a big piece of the puzzle for you. I hope you are able to find a slow, steady, tolerable way of addressing this nasty infection.
Oh... I have to mention..... I've been having digestive issues myself (seeing undigested food in my stool for a long time). My doc just told me about 'food combining'. It's pretty fascinating. It talks about not eating protein with starchy vegetables (like potatoes, etc). Because one needs to be digested in an acidic environment with specific enzymes, and the other needs an alkaline environment with different enzymes. This can be challenging and confusing to our digestive systems. There's more to it, so look it up. Makes good sense.
I've just been doing it 3 days myself, and have noticed a difference since day 1. Maybe this will help your gut a little. Worth a try.
Wishing you the best.
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glm1111
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posted
TuTu,
When you have a hyperinfection of parasites causing the diverticulitis, not tx the infection will just progress into more symptoms and illness. It's a catch 22. If I hadn't heard of the surgery improving some peoples quality of life, I would probably agree with you.
I am just thinking that in randis case, it could be an option. Perhaps as Tammy suggests, trying the Ivermectin in low dose could work.
It's really not always the meds or herbs causing the pain and discomfort, but the pain can be from the dieoff, no matter the method. Randi, have you discussed the surgery and all the results in depth with your doctor?
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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posted
Tammy, are you doing the Body Ecology Diet? Food combining is one of the 7 principles of the diet. Add cultured vegetables to your diet (full of enzymes and probiotics) and that will help digest your food even better. Only eat until you're 80% full and take a digestive enzyme on top of all that and the food combining and it really helps! (It helps by not leaving undigested food in your colon for yeast etc. to feed off of.)
I am interested in knowing more about the Ivermectin. Is this a drug that could be just as effective as a prescription anti. parasitic from a regular doc, or would you need additional medication or herbs to go along with Ivermectin? (I know it probably depends on what parasites you have, but generally speaking...)
Also, have any of you done colonics to help pull the dead yeast/dead parasites out of your gut?
Posts: 631 | From the south | Registered: Nov 2008
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posted
Randi, I am using suppositories to kill parasites...sometimes only a half of one depending on how I feel. This may be gentler than ingesting herbs and I have seen alot of results.
I have alot stomach and digestive issues for over 20 years so my doctor felt this would be easier on my digestive system but says it goes systemic...just bypasses gut. Maybe this could work for you...just doing a small amount.
The suppositories have clove oil, walnut oil, Artemisia, olive oil and cocoa butter. The other one has artemisinin, freeze dried garlic, and coco butter. I alternate the two.
Two days ago I stated adding low dose salt/c...1/8 tsp...and stomach did just fine.
I am newer here and dont know your whole situation so just a thought:)
Posts: 137 | From ATX | Registered: Nov 2011
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Catgirl
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posted
I love what Tammy said. I also noticed that parasite meds were easier on me than the herbs were. Have you tried raw organic garlic after meals? When you kill the parasites, you need binders to get rid of stuff too.
I haven't tried the product below, but it may be worth a try (RevitalX).
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Catgirl
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posted
Keikko, what product (suppositories) are you using?
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randibear
Honored Contributor (10K+ posts)
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posted
yes i've discussed with gastro. have not seen surgeon yet. also discussed with primary cause i have to go to him when i can't get in with my gastro cause he's so busy.
both say at least 10 inches of the colon should come out.
my father had a pouch and i'm sure that it contributed to his death.. mentally he just could not handle it. he hated his life every day and wanted to die. he had numerous "blow outs" and my mom's life was hell as well. he died a year after getting it from a heart attack.
i did have pinworms alot when i was a child and was always constipated. i think it had something to do with the violence in the home. it's a leap but psychologically, it's sound reasoning.
i am now having at least 2-3 attacks a year. this is my third and it came right after this horrendous trip to ohio but i was feeling uncomfortable before i went so i knew it was coming. i'm sure driving 701 miles in a day exaserbated it also.
i am willing to try anything. and yes i did see some strange stuff when on humaworm, like tomatoe peels, reddish pieces of stuff.
there is a diverticulitis board on topix where alot of people have had this surgery and done very well. others had it and not so good. and some had to go back and have more taken out which really scares me. but add my preexisting conditions and i'm terrified even tho baylor is a wonderful hospital.
ibs is a trash can diagnosis where they can't figure out what's wrong. i've had that for years.
my one sister has diverticulosis and has been hospitalized with it. she eats very little and so far has no other problems.
we have a big trip planned for july and i've got to get this under control. after that i'll go see the surgeon and perhaps go back to the gastro.
also i cannot find a doctor willing to give me difulcan for any yeast and even discuss parasites. they just don't believe in them.
sometimes i'm so frustrated i think i'll try parastory or something and if i get sick from that and end up in the hospital at least they'll have to see me!!! drastic i know...but hey....
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randibear
Honored Contributor (10K+ posts)
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posted
is ivermectin a prescription? cause i can't get the dang docs to give me anything at all except abx!!!
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surprise
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Member # 34987
posted
Randi, Just throwing this out there, I found this Dr. by you
quote:Originally posted by girl: Tammy, are you doing the Body Ecology Diet? Food combining is one of the 7 principles of the diet. Add cultured vegetables to your diet (full of enzymes and probiotics) and that will help digest your food even better.
Only eat until you're 80% full and take a digestive enzyme on top of all that and the food combining and it really helps! (It helps by not leaving undigested food in your colon for yeast etc. to feed off of.)
-Amen. This is really helping me.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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When you have a hyperinfection of parasites causing the diverticulitis, not tx the infection will just progress into more symptoms and illness. It's a catch 22.
- You are ASSUMING her D is caused by parasites and not by GLUTEN and DAIRY, the most obvious.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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posted
The parasite meds and herbs caused me no gastric distress at all. However , the die off and herxing are torturous . Ivermectin and albenzadole can come in cream forms also applied to skin. PM me.
Posts: 153 | From Huntsville Al | Registered: Jun 2013
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posted
Randi, what is the actual diagnosis to warrant removing part of the colon? Is it IBS or diverticulitis?
Posts: 631 | From the south | Registered: Nov 2008
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posted
Catgirl, the suppositories are from Biopure...kind of pricey but have been giving me results.
I am using the Nexus(the one with artemisinin and freeze dried garlic) and the other is called Idalia. The Nexus seems to be stronger...but rotate the two:)
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Catgirl
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posted
Girl, I forgot to mention, I have done colonics (they're great). I am not sure I'd recommend them for Randibear though (sometimes causes more pain).
Randibear, you could try pulsing humaworm. I do that sometimes in between taking parasite meds. Humaworm makes me constipated, so pulsing it gives my body a break (1 pill twice a week).
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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posted
Thanks, Catgirl. I wanted to inbox you re coffee enemas, but I will do that later. I just googled humaworm, is that something OTC? Which brand?
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glm1111
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posted
TuTu,
I am not ASSUMING anything about the cause of randis diverticulitis. By her own admission she has stated that she has suffered from pinworms since childhood that has been left untreated.
Research has indicated that chronic candida and parasites usually go hand in hand, and that it is very difficult to get rid of chronic candida without getting rid of the parasites. Gluten sensitivity and Lyme can be partners as well.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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Catgirl
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
I've been diagnosed with diverticulitis by my gastro through colonoscopy. I've had three attacks since december. I've had this diagnosis for over ten years and by three drs. Runs in the family too. So unfortunately its a given.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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posted
Yes, Diverticulosis would be a HUGE reason to cut out wheat.
Even a small piece of gluten the size of your fingernail causes inflammation in the gut wall for 6 MONTHS.
Celiac tests are only for 2 proteins of wheat (gluten and gliadin) where there are about 10,000 other proteins you could be reacting to. So a negative Celiac test doesn't mean you can tolerate the wheat.
So you should still give it a trial - especially before surgery of them cutting out your colon.
Posts: 631 | From the south | Registered: Nov 2008
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posted
Thanks for the link, Catgirl. Going to check it out now. Posts: 631 | From the south | Registered: Nov 2008
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CD57
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posted
I am no expert but I just read conference notes from this year and one of the docs (Dr K I think) said that the naturals are actually harsher than the meds! So he goes with meds for parasites.
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Catgirl
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Yeah, I've found the naturals were stronger.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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regarding gluten.. I found this on another site in reply to a question about going gluten free helping heartburn....
-
"I have been gluten free for six months and my heartburn, gas, constipation and nausea have almost completely disappeared and I have a hiatal hernia. I was miserable and had to have a few sips of coke nearly every evening to settle my stomach.
I never could eat Mexican food and here in south east Tx it's either Mexican food, Cajun food, BBQ or some kind of zesty, spicy fare! I just had fajitas for lunch with corn tortillas instead of flour and I haven't even had to burp, normally, I wouldn't even be able to lie down for several hours after the meal I just had.
I only went GF because my daughter became sick several years ago and after seeing countless drs, specialists and what had turned into bone marrow suppression along with worsening digestive issues the rheumatologist along with the gp suggested going GF since she carried the celiac gene. She saw almost immediate improvement.
Going dairy free helped even more. They were getting ready to do a bone marrow biopsy but the hematologist gave her 6 more weeks to see if her labs would improve which was the same time she went GF. When they ran her bloods 6 weeks later her counts had finally started to improve for the first time in months! I firmly believe if there is even a chance you are gluten intolerant to give it a try. The only reason I did it was because I didn't want her to feel left out and sit and eat pizza in front of her plus I do all the cooking and it was just easier to make the kitchen GF.
I think anyone who has inflammation issues should try going GF. It can't hurt and you never know it might help. I didn't think I had issues with gluten until I went GF and saw my digestive issues basically disappear."
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Yes! I didn't realize I had gluten issues until I cut it out 100%, for 4 weeks, and then inadvertently added it back in via a body lotion that I'd used. All heck broke loose. It was CRIPPLING~
I had no idea prior to that - that I'd been poisoning myself bit by bit with the wheat/gluten. I was completely clueless. The only way to know for sure is to cut it out and then see what happens when you add it back in.
I love being off gluten. I've lost a ton of weight and I don't feel all icky and bloated after I eat. My mind is sharper and I sleep better, too.
Posts: 631 | From the south | Registered: Nov 2008
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posted
CD57 - Do you know where I can get a copy of those conference notes? I'd love to share that info. with my Doc when I ask for parasite meds.
Posts: 631 | From the south | Registered: Nov 2008
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posted
That's awesome, girl! I had been tested 30 yrs ago for celiac.. came back negative. Finally went COMPLETELY GF 6-7 years ago and I feel much better too!!
It took 10 days before I KNEW I had my answer. Prior to that, I didn't get the concept of how strict you need to be on the trial run and it failed. I saw no difference at all.
It's important to do it right and cut it out completely when giving it a trial.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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posted
I know! I spoke with a friend of mine earlier who'd gone gluten free but was just having "a little bit" in their dinner tonight via. some vegetarian "sausage" they were having. I explained how just a "tiny bit" can cause inflammation for SIX MONTHS. I think people just have to learn on their own.
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Catgirl
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posted
Great points of view Girl and Lymetoo. I didn't think I was getting any until I looked at my shampoo. It's in everything, and it requires looking at every single label. And if you eat out, you have to ask if there is gluten in any of the restaurant's food, even in the chicken broth.
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Eating out is the hardest. Even most rice in restaurants is not GF due to the fact that they cook it in broth.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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nefferdun
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posted
I agree with trying a low dose of ivermectin. It is a very safe drug and hits just about everything but tapeworms. If parasites are contributing to your problem then surgery sure isn't going to help you.
Protomyxzoa can cause most of your symptoms including body pain, bladder irritation and irritable bowel syndrome. I know of someone that had surgery for bladder problems and was much worse afterwards. He is still trying to recover. He has PR.
We all know we are mis-diagnosed with everything under the sun when infections are the root of the problem.
What is your diet like? Most people diagnosed with lyme are told to go on a paleo diet to prevent yeast. This would make your condition much worse. The low fat diet recommended for PR would be better for helping to get good movement through your bowels - lots of vegetables, brown rice, legumes but no meat, very little fat. I often have 2 movement a day on this diet.
There are several reasons why a person should avoid meat. If you have type A blood, if you have a CBS mutation (avoid all sulfur containing foods including meat, soy, cabbage, eggs) or if you have protomyxzoa.
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