posted
Does anyone know the cause of heat intolerance? Did any LLMD said why we have this? Toxins, autoimmunity, immune activation? Maybe one of the real experts said something more specific? Is it because of Lyme alone or is one of the confections the main culprit?
Posts: 185 | From Germany | Registered: May 2012
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Myelin sheath damage to the nerves caused by lyme is a major factor. The nerve impulses can go haywire.
More detail on this can come from the MS-heat intolerance work. We know that, for many lyme "can cause a misdiagnosis of "MS" - a cluster of symptoms.
So can other chronic stealth infections such as Cpn. Still, those who don't know that still understand how heat can tobble those with the diagnois of MS.
For our purposes (and setting the true cause of MS aside for a momment), we can learn from what the MS community has given us about the MYELIN disruption and this aspect of personal safety: stay cool.
Google: MS, heat+intolerance
Then Google: Borelli, myelin
Beyond the myelin damage that lyme can cause, lyme can also cause lesions in the brain, in the spine, along nerve pathways. Very common and often will disappear or diminish with proper lyme treatment.
Still, along the way, heat can just cause so much stress on the system.
Adrenal dysfuntion in, oh, so many ways, from lyme, too. The HPA Axis is hit, big time. That's Hypothalmic / Pituitary / Adrenal "triangle" of sorts but all hormones can go a bit bonkers.
POTS, NMH are both adrenal & heart issues. Just Google terms with "heart" and also then with "lyme" - they are low blood pressure conditions that I can never type out.
Those who have lyme with POTS or NMH generally don't do well with heat.
The toxity of the body and effects on liver, kidneys, brain swelling, heart, too.
Anytime there is inflammation anywhere in the body - especially the brain - (and it's everywhere with lyme), heat is going to be a much rougher ride.
As for other tick-borne or other chronic stealth infections, I think it could be hard to say but there is a direct link to borellia and myelin damage.
I would say any toxic infection might do damage to the nerves. So, of course, the very best LLMD &/or LL ND to address infections with the very best support methods just seems logical.
Many who have reached a good solid remission report that heat no longer clobbers them.
Same with some who have done NDL therapy. -
[ 07-27-2013, 07:55 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Addition connections and solutions in this discussion:
One of the co-authors of this book describes her previous terrible times with heat, even just one degree above a very mild outside temp.
With LDN, that (and other symptoms) turned around. Of course, LDN was not all she did but she describes how that seemed to really help with her temperature tolerance.
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Just so you know, sometimes, someone with lyme can "do" heat. Of course, those who can already know this about themselves.
Once in a while someone has reported how they thrived doing Bikram Yoga (at about a million degrees in those sessions although they say the thermostat is set to 105°F).
It is rather rare and still to be treated with wisdom in case that might shift -- some who really could "do" and enjoy heat before lyme can be very surprised when that changes.
Also want to dispel a myth that heat can kill lyme. It cannot. It is impossible for the body to get hot enough to kill spirochetes without killing the person.
Heat can cause spirochetes to spew out more toxic gunk as they get really miffed and irritated. Another way heat can cause issues.
And Borella spirochetes HATE heat. They will burrow more deeply (even into bone) to try to find cooler space away from hot skin -- or go into cyst form to try to insulate themselves from the increasing body heat.
[I have no answer for how it is, then, that once in a while, someone with lyme can do that high heat, though, and not get that anger from spirochetes. Not all can be explained about this, though a LL expert may shed some light.]
For the most part, for most who deal with lyme:
Gradual, gentle warmth can help with circulation, getting nutrition to cells and helping the cells "detox" and move on out toxins. Warmth, just nice cozy warmth, can do this just fine.
And, for those who may be very heat intolerant, there are still ways to help support circulation witiout getting into one's danger zone.
For those who are very sensitive to even minor shifts, just stay in your safety zone, no matter what others may tell you. Your LL doctors, treatment, and time can help all this change but it can take time. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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lax mom
Frequent Contributor (1K+ posts)
Member # 38743
posted
I have POTS. I'm always overheated. I've thought about getting a cooling vest.
Right now I look like a mummy: compression stockings, abdominal binder...might as well add a cooling vest to complete the look
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