posted
I'm very concerned that if this cyst is broken up it will do damage in my brain. Can anyone point me to research on this or do you have a personal experience you could share?
-------------------- I'm not there yet but I'm closer than I was yesterday.---- Lyme Band 31,41,58. Being treated for Lyme and Bartonella. Posts: 149 | From Maine | Registered: Oct 2010
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posted
I've got a cyst. Pituitary tumor cyst something called a ratchet cleft. It use to bother me when I first found out about 7 years ago. It's benign told not to worry about it and I don't.
I get MRI's to monitor its growth. It's just there and hasn't gotten any bigger then 8mm where its at now.
Where in the brain is yours located?
-------------------- HERX is a Four Letter Word! Posts: 716 | From If you're going through hell, keep going......Winston Churchill | Registered: Apr 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Of course, it all depends on so much detail that we don't have. And it's surely disconcerting, to say the least. Still, our bodies sometimes just have this little fluid filled sacs and it's just part of being human. Some are benign in the best sense of the word.
I've known 2 people who have had one (each walnut size) for over 10 years and they have no problems at all. They were told it's not all that uncommon, really.
It sounds a though your doctors have not really even talked to you about this so that you have more detail. If you have unanswered questions, go back and talk with the doctor who ordered and reviewed your imaging.
When you get the exact details (what it's called for starters), then you will be able to read a bit about it. Can't reasearch or compare notes if the type is unknown.
Actually, some cysts may reduce with lyme treatments. Lesions certainly can and it could be that terminology is interchanged sometimes.
Just be sure to avoid steroids if they are suggested for any reason.
You ask: "Cyst Meds?" -- be sure your LLMD knows about everything prescribed by other doctors BEFORE you even get the prescription filled.
Your LLMD needs to know all this for many reasons. If a Pituitary cyst, you may need more attention to HPA support (Hypothalamus- Pituitary-Adrenal axis that is very much affected by lyme). =
[ 08-09-2013, 02:14 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- This is not the same kind of cyst at all as the cystic form of borrelia. those are microscopic (you would never see them on any scan) and very differnt in nature.
Common cysts are usually just filled with fluid.
You are concerned that this will be "broken up" -- cysts usually don't do that. The can be reabsorbed by the body and just disappear over time, shrink (or not) but they don't just break up.
Even if one would, it may be just fine as the body would take care of it, gobble up the "debris" sort of action.
When you can have an educational appointment with your doctor about the KIND of cyst this is and its tendencies, you can then figure out how to support your brain around that.
Get a copy of the test results and all other detail for your personal records. Then copy that and give to your LLMD. -
[ 08-09-2013, 05:25 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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quote:Originally posted by Keebler: - This is not the same kind of cyst at all as the cystic form of borrelia. those are microscopic (you would never see them on any scan) and very different in nature. -
- Exactly. Do not worry.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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posted
Thanks Keebler and Lymetoo, and lpkayak for that information about the difference in a borrelia cyst and other type. That really is comforting. I hadn't thought of that.
It's called a 'lesion' in the report and it's in the right front periventricle area--right where an MS lesion would be expected. My neurologist thought it was due to MS, but later said he didn't think I had MS and offered no possible explanation of the lesion after that. He was also the one that suggested that I might have Lyme. I guess that's why I wondered if the lesion might be caused by borrelia. I had a number of MRI's over a period of time and so far it shows no sign of absortion. It could be a scar because doesn't show any signs of hyperintensity with gadolinium. Back to square one with that.
Thanks again for the relief that it's not going to break up and do more damage up there from borrelia.
-------------------- I'm not there yet but I'm closer than I was yesterday.---- Lyme Band 31,41,58. Being treated for Lyme and Bartonella. Posts: 149 | From Maine | Registered: Oct 2010
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- A lesion is not necessarily a cyst. They can be very different.
The neurologist may have suggested lyme in the beginning but he sounds very much uneducated to not tell you lesions can be due to lyme, especially since you specifically asked that and the term "lesion" was used.
Any LL doctor will know this.
Lesions in the brain ARE often seen with neuroborreliosis. And they often clear with adequate lyme treatment. Talk to your LLMD about this and take in your past brain imaging reports to your next visit.
The bottom line is that it appears to pose no immediate danger. And that's a good thing.
Also detail about other tick-borne infections, other stealth infections (such as Cpn) that can cause "MS" as well as environmental causes & complexities. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- [Neuroborreliosis is Borreliosis (lyme) that is in the nervous system(s) / spinal cord / brain. Lyme can invade the nervous system(s) within 12 hours of a bite by an infected tick.]
Below, a woman with lyme, brain lesions, and clearance of the lesions to a major degree with antibiotic IV. Now, for many with brain lesions, oral antibiotics can be of help, too.
This is where the best LLMD you can find is of value. The neurologist does not sound adequately educated at all.
A 64-year-old woman presented with a 2-month history of neck pain, wasting, and fatigue followed by gait disturbance, dysarthria, and dysmetria.
MRI showed profound hyperintensities in [three brain areas]. Lymphoma, vasculitis, multiple sclerosis, and tuberculosis were excluded.
Neuroborreliosis was diagnosed . . .
. . . Intravenous ceftriaxone led to nearly complete resolution of signs, symptoms, and MRI abnormalities (figure 2), demonstrating an exceptional case in contrast to usually unspecific MRI findings in neuroborreliosis
(See) Figure 2 - Brain MRI at 6 months' follow-up: Almost complete resolution of abnormalities after 6 months (A, B), but certain low-density areas are noticeable (A) -
Posts: 48021 | From Tree House | Registered: Jul 2007
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