tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
WHAT THE HECK!
So first Strep D and now Strep B found in urine....what am i to do. They did an antibiotic senstivity test Vanco and Amox. I have been on Amox and Augmentin no relief!!
Any input??
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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poppy
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Member # 5355
posted
This is probably different from your situation, but I had strep several months ago. Sore throat that wouldn't go away. They did a strep test quickie and gave me Rx for Penicillin VK for ten days. That did the trick.
Not sure what strep in urine means though.
Posts: 2888 | From USA | Registered: Mar 2004
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map1131
Frequent Contributor (5K+ posts)
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posted
Of course the enteroccorcus(sp) is from that strep family. So you have all their kin and in-laws in your urinary tract.
I hope you find something soon. I'm doing great with that rife frequency.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
Glad its helping you ( I am lost and I am resistant to many ABX per my cultures..feeling defeated and sad dont wantt o live with this anymore its been a year this week.
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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GretaM
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Member # 40917
posted
Yes, I had strep B colonization in my bladder and elsewhere as well.
No wonder you've been having such a hard time with IC lately-it's like a busload of bugs in your bladder! Ouch! I feel so bad for you-IC is the worst.
I think strep B and ent are biofilm bugs...hard to get rid of.
I am sorry to keep harping on it... But d'mannose made all the difference for me.
I think I had IV Vanco as well... Then IV gentamycin I think.
Is the doc able to get you in for IV Vanco? It's got some other serious side effects-has to be done in hopsital.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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tricia386
Frequent Contributor (1K+ posts)
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posted
Is that what finally got rid of your ic?
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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Dogsandcats
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Member # 28544
posted
I have Strep D and still have not been able to get rid of it. I don't know if that is what causes the horrid pain or if it is Chronic Pelvic Pain.
I am sorry - it hurts and it gets old FAST!
-------------------- God will prepare everything for our perfect happiness in heaven, and if it takes my dog being there, I believe he'll be there.
Billy Graham Posts: 1967 | From California | Registered: Oct 2010
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GretaM
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posted
Tricia-yes, that's what got rid of it for me. I can't find my calendar for 2008...I've got everything written down. How many days IV. And I can't remember which came first-the Vanco or the genta... But I know I had 2 different IV abx back to back, then I used the d mannose and uva ursi.
I am saying huge prayers for you...IC is the absolute worst, and I am sorry you've been suffering with it for so long.
What does your doc want to treat it with?
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
Ugh I am getting so frustrated.
MY LLNP says just take one amox and one augmentin a day and it will clear it up! HI! i have been on that for 3 months already and still testing postive! Kind of a problem! I havent heard from LLMD yet....
I am thinking Strep B could have been the problem the whole time! Wouldnt that be amazing!
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
Strep is no joke (like Lyme is, right?)
But what I mean is, your strep is not clearing- you are going to have to get hard core with this Dr. or step over this one to the next
like Greta says, get IV. Start talking rheumatic fever, kidney failures, this is what rouge strep can do.
I'm so sorry. This is crazy how long, how much pain- Demand IV to clear it. My advice.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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tricia386
Frequent Contributor (1K+ posts)
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posted
Well the Strep D showed in a regular urine culture but the STREP B didnt show up until a broth culture.
Now I am so scared.
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
Don't be scared, get mad, and demand. This can be fixed. You tell them it's clear you have resistant, multiple strep strains, how long going on, etc.
Sending good thoughts----
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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tricia386
Frequent Contributor (1K+ posts)
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posted
Can I post test results on here?
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
Okay, why are you combining Amoxicillin with Augmentin?!
Augmentin is amoxicillin, but with a clavunanate with it.
An LLNP is helping you, can you get to an MD? With all your tests, history, pain, life altering experiences because of this?
You need an MD specialist- I'm sorry if you've done this already and struck out-
Assuming you have medical insurance...call your insurance company for recommendation, or go to ER with all your tests?
I don't have any experience with IC, but do have a lot with strep. If you have resistant strains (and Amoxicillin is very weak for strep, unless a child with first time use, and even then, just maybe)
You need a big gun antibiotic. JMO.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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posted
Can a LLND order a broth culture? Does anyone know the mediccal code for such a test? I am thinking my Llnd could direct the mainstream lab to look for bugs, just not sure how its done. Just finished a round of antibiotics for e. coli which they could find by normal culture. When I complained to the urologist's receptionist that they don't test for everything, she said if there was an infection, the usual method would find it.
Posts: 482 | From Oregon | Registered: Feb 2011
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quote:Originally posted by tricia386: Can I post test results on here?
- Sure!
and I second the vote for everyday usage of D-Mannose
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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tricia386
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posted
This is the first time anything is showing up, I had been to two urogyncologist and a urologist. My Lyme Doc sent me there just to rule out anything strange nothing showed up for one year. So then my LLMD suggested maybe I see an LLNP in DC who works with IC. Im not sure if things never showed up bc I was ABX. and this time I had 10 days off. I dont act like the regular IC patient coffe and spices dont bother me.Then MY LLNP in DC has me take a week os abx and a standard lab corp test showed colony forming units see below lab corp:
-Result 1 Enterococcus species
NOTES on 'Result 1': '10,000-25,000 colony forming units per mL 'Note: this isolate is vancomycin-susceptible. 'This information is provided for epidemiologic purposes 'only: vancomycin is not among the antibiotics 'recommended for therapy of urinary tract infections 'caused by Enterococcus.
Antimicrobial Susceptibility NOTES on 'Antimicrobial Susceptibility': ' ***** S = Susceptible; I = Intermediate; R = Resistant *****
Source: UR CD- M626744042 Condition: 08/05/2013 12:55:22 08/05/2013 10:08:00 ' P = Positive; N = Negative ' MICS are expressed in micrograms per mL ' Antibiotic RSLT#1 RSLT#2 RSLT#3 RSLT#4 'Ciprofloxacin I 'Levofloxacin S 'Nitrofurantoin S 'Penicillin S 'Tetracycline R 'Vancomycin S '
So then we decided to do one pill of augmentin and one pill of amox per my LLNP in DC,
I also had the lab sent to United Medical Labs in Virgina. This is what they came back with:
Test Name Result U CULTURE, FUNGUS (YEAST) NEGATIVE
CULTURE, URINE >100,000 CFU/mL GROUP B STREP AMPICILLIN/AMOXICILLIN S CLYNDAMYCIN R CIPROFLOXACIN R CEFTRIAXONE R ERYTHROMYCIN R NITROFURANTOIN S TETRACYCLINE R VANCOMYCIN S
BROTH GROUP B STREP POSTIVE AMPICILLIN/AMOXICILLIN R CLYNDAMYCIN R CIPROFLOXACIN R CEFTRIAXONE R ERYTHROMYCIN R NITROFURANTOIN S TETRACYCLINE R VANCOMYCINs S
So I am so confused!
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
Look, I am not a Dr. I am not an expert, but, bottom line, I'd ask for 3 weeks of Vancomycin and wipe this thing out. Saturate yourself with probiotics away from Vanco.
Test 1 is saying your are positive for a bacteria that is Vancomycin susceptible, although usually they don't require Vanco. for this type of classification.
That tells me (layman) it's a hardy, nasty strain. Vanco is top dog.
2nd type, also says Vanco will wipe it out. The first line (weaker) antibiotics you have been on are not working- so then, you culture to see what will (like you've had done)
and go up the line. My daughter had a wicked bacteria a few years ago- not c. diff., couldn't get that to show up on testing.
A specialized Dr. told me 3 weeks of Vancomycin, because oftentimes with 1 or 2 weeks of it, you may have to come back, try it longer.
Did the oral Vanco for 3 weeks, gone. Just some thoughts- this has been going on and on for you.... I'm sorry.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
Well I sent an email to my LLNP stating my concern. Next I will send one to my LLMD wish me luck!
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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Dogsandcats
Frequent Contributor (1K+ posts)
Member # 28544
posted
Tricia - coffee and spices, etc don't bother me either....the last "specialist" said.."well then you don't have IC"....
So I guess the other 1000 symptoms don't count...
I just gave him a dufus award and left.
-------------------- God will prepare everything for our perfect happiness in heaven, and if it takes my dog being there, I believe he'll be there.
Billy Graham Posts: 1967 | From California | Registered: Oct 2010
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Gang this is one resistant bacteria. Yesterday I had to go without a rife tx. This morning the pressure, stinging and bad guys are having a field day.
Back to knocking 'em today. Die enterococcus die!
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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posted
about the group b strep....this was found in my urine when I was ready to give birth
does this mean that I will always have it? The dr/nurses acted like it was no big deal, that a lot of women have it and just had to have antibiotics at that time.
Posts: 287 | From somewhere | Registered: Oct 2011
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tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
In have a phone consult with my LLNP. Wish me luck keep you all posted. Scared this will never go away
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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tricia386
Frequent Contributor (1K+ posts)
Member # 29623
posted
Maybe I should try garlic?
-------------------- Lyme activated in April 2010 by gardasil vaccine. DX: Lyme,Babs,Myco,Bart 11/10 Treatment Started: 3/28/11 Posts: 1752 | From Albany, NY | Registered: Dec 2010
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( I am lost and I am resistant to many ABX per my cultures..feeling defeated and sad dont wantt o live with this anymore its been a year this week.
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