posted
I had a lyme blood test fom Stony Brook 3 weeks ago, got an indeterminate result with IgG positive bands:28,41,45, not meeting CDC creteria.
Since my IgM is negative, and CD57(Labcorp)is normal(7.1%,121/uL), my doctor told me I don't have lyme disease now, and I might have infected in the past. Since I never got treated(but I did took Azithromycin for 2-3 courses for sinus and URT infections), my doctor said it might be my immune system took care of it.
I saw the doctor for Morgellons, I thought I might have Babesiosis since I have a lot of red dot on my skin, brain fog, memory loss, headache, ADD, depression, stiff neck,etc and didn't expect to have lyme. I asked the doctor ordered Babesiosis FISH and PCR(duncani and microti) from IgeneX and the result has not come back yet. Now I'm nervous about the lyme test results. Is there such thing as you were infected lyme in the past and self healed? Should I test lyme again with igeneX to confirm?
Another thing, I have an elevated C4a, and a normal MMP-9, my doctor told me I don't have mold problem, but it seems I have some inflammation and something is going on.
The doctor told me to take anti-candida diet since I scored very high on a candida questonaire, but my blood test result for candida(m5)antibody is Absent(negative)??
Can anybody give me any suggestions about what should I do now? Does it worth it to get igeneX lyme and Bartonella test again? Do I have mold problem? MMP-9 or C4a which is a more accurate indicator of mold exposure? what other test should I run? If I'm not getting more tests, should I ask for treatment for lyme, since I have three bands from the Stony Brook test, although not CDC positive?
Thank you very much,
Some other blood test results are:
----LabCorp-------------
MMP-9: 381 ng/mL (normal)
Complement C3a: 94.7 ng/mL (normal)
Complement C4a: 3713.1 ng/mL (high, normal range 0.0-650.0)
Candida(m5): Absent
Posts: 101 | From nowhere | Registered: Aug 2013
| IP: Logged |
Nancy2
Frequent Contributor (1K+ posts)
Member # 95
posted
UP!
Posts: 1487 | From New England | Registered: Oct 2000
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- No, you do not need another lyme test.
Find an ILADS-educated lyme literate doctor (LLMD). They will know about other tick-borne and other chronic "stealth" infections, too. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
WHY you need an ILADS "educated" or "minded" Lyme Literate doctor (whether MD or ND, or both) - starting with assessment / evaluation.
Medical "models" explained here, as to differences in the ISDA & ILADS models of assessment & treatment - and exactly why it is so very important to know the differences.
How just doxycycline (or other antibiotics, alone) can cause chronic lyme:
Topic: replication within cystic forms of lyme =
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- You asked about diet in regards to candida. Always a good idea to avoid all processed foods, additives and refined sugars.
PROBIOTICS are always a good idea, too.
Even though you had a Gliadin test, it's still a good idea to try a gluten-free, dairy-free diet (then also drop soy and corn for a while and see how that goes).
See if you notice any improvements after a month or so. My guess is that you will.
Non-gluten "grains" that are actually more often seeds, legumes or grasses include: WILD rice; Black, Red & Brown Rice; Millet; Buckwheat groats; Amaranth; Regular, Red & Black Quinoa.
Gluten is in: Wheat; Spelt; Kamut; Barley; Rye. It is in many processed foods, often with barley malt added.
Detail here about some food choices that could help you while you sort out a LLMD:
LIVER & KIDNEY SUPPORT & and several HERXHEIMER support links, too. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- The mycoplasma test may not have been adequate. A good LLMD will know more about that. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
kgg
Frequent Contributor (1K+ posts)
Member # 5867
posted
Agree with Keebler. Testing for tick born diseases are so inaccurate that to keep testing is a waste of money. Even the CDC states that Lyme is a clinical diagnosis.
Please find a Lyme Literate health care practitioner that can help you. ILADS (International Lyme and Associated Disease Society) trains health care practitioners how to treat these diseases. http://www.ilads.org/
posted
Thank you so much! Keebler. I'm a newbee here, it's so helpful with the tremendous information you provided. Thanks!
quote:Originally posted by Keebler: - You asked about diet in regards to candida. Always a good idea to avoid all processed foods, additives and refined sugars.
PROBIOTICS are always a good idea, too.
Even though you had a Gliadin test, it's still a good idea to try a gluten-free, dairy-free diet (then also drop soy and corn for a while and see how that goes).
See if you notice any improvements after a month or so. My guess is that you will.
Non-gluten "grains" that are actually more often seeds, legumes or grasses include: WILD rice; Black, Red & Brown Rice; Millet; Buckwheat groats; Amaranth; Regular, Red & Black Quinoa.
Gluten is in: Wheat; Spelt; Kamut; Barley; Rye. It is in many processed foods, often with barley malt added.
Detail here about some food choices that could help you while you sort out a LLMD:
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic