posted
So through a mutual friend I started talking to this girl who is my age (22) who also had lyme
really bad and was treated for 6 years before she got rid of it. She said something that really
made me think. When I told her I was taking magnesium, curcumin, vitamin D and B she said
that she didn't take any supplements because they interact with medication and make them basically
useless. I was pretty distraught because I personally love vitamin B the most it makes me
feel great. She produces articles about the supplements interacting with the antibiotics and
said basically just fight through the treatment. She is completely cured for years now and did the
whole take abx for 3 months even after symptom free to make sure. I do not know whether to
listen to her or not but I also have only been sick since july and it is estimated that I have
only been infected 1-2 years ago. What do you guys think? (Be nice)
-------------------- T. Brown
CDC Lyme Positive Co infections? Who knows... Bands 18+ 30+39+41+45+58+66+ IGG 23+39+41+IGM Posts: 351 | From Boston MA | Registered: Oct 2013
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hiker53
Frequent Contributor (5K+ posts)
Member # 6046
posted
I think it depends on the person, the symptoms, and the co-infections.
Personally I knew that Lyme liked magnesium, but if I did not take magnesium I had horrible cramps in my feet and muscle spasms all the time.
How long did this girl have Lyme before starting treatment?
How does she know if she would not have gotten better faster if she took supplements?
I think people and LLMD's disagree about supplementation.
Personally, I would pray about it, but that seems like a cliché type answer.
Hiker53
-------------------- Hiker53
"God is light. In Him there is no darkness." 1John 1:5 Posts: 8846 | From Illinois | Registered: Aug 2004
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poppy
Frequent Contributor (1K+ posts)
Member # 5355
posted
Do a search of the archives and you will see a lot of previous discussion on this.
Basically, these critters do not have the systems to produce everything they need. This is part of living a parasitic life. They cannot live free of their hosts. So they get what they need from us, and generally gum up the works so our own systems are deprived and cannot function to give us what we need too.
So, if you starve the critters, you starve yourself of these things to and that has consequences.
It is never a good idea to accept the story of one person as representative of all of us. Sometimes people go overboard in trying to project their case on others, when it may not apply.
Read the sheet that comes with the antibiotics to see what it says about this. Sometimes it will say not to take magnesium, calcium, whatever, at the same time. Then you separate them.
Posts: 2888 | From USA | Registered: Mar 2004
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
I no longer have lyme and I took a ton of supplements during my years of treatment. It sounds to me that if she got well in six months that more than likely she did not have a very advanced and complex case of it.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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posted
She got well in six years not six months. She got it as a toddler. And she defiantly wasnt going over
board projecting her case. I asked questions she gave answers thats all.
-------------------- T. Brown
CDC Lyme Positive Co infections? Who knows... Bands 18+ 30+39+41+45+58+66+ IGG 23+39+41+IGM Posts: 351 | From Boston MA | Registered: Oct 2013
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MichaelTampa
Frequent Contributor (1K+ posts)
Member # 24868
posted
Absolutely there is something to this. Yet so much depends on the multitude of specifics of the situation. It is one good reason to use energetic testing to determine if it is appropriate to take something. I often saw the antioxidants I tested to take would change when my abx regimen changed.
If I remember correctly, abx's work by oxidation, whereas many of these supplements are antioxidants. Regardless of whether this is the precise reason or not, the reality is that SOMETIMES these things that bring health do work against the abx (and some other killer like MMS).
By the way, same is also true for chemotherapy. There are many things one can take to support the body, and they can also work against the chemo. It is why you will often find the docs recommending to avoid these things during chemo.
Posts: 1927 | From se usa | Registered: Mar 2010
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posted
Really makes me wonder what I should be doing. I take Curcumin which is an antioxidant and anti inflammatory. I also
take Byron whites NT detox. I take vitamin d, vitamin b, and magnesium. I take doxy rifampin and flaygl for meds so I'm
wondering if I'm doing more harm than good mixing all of these.
-------------------- T. Brown
CDC Lyme Positive Co infections? Who knows... Bands 18+ 30+39+41+45+58+66+ IGG 23+39+41+IGM Posts: 351 | From Boston MA | Registered: Oct 2013
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
Read dr s book lyme solution. Hes got a good listing of what we should take but everybody is different.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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Ellen101
Frequent Contributor (1K+ posts)
Member # 35432
posted
I personally believe too many supps are not a good idea and feel much better off them. Some of the ingredients in them that you may not even realize can be causing issues as well as the possibility of them interacting with each other.
I saw the amount of supps Dr H was recommending and thought that was just crazy!
Posts: 1748 | From United States | Registered: Dec 2011
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BoxerMom
Frequent Contributor (1K+ posts)
Member # 25251
posted
Yes, some minerals bind to abx, so we take up less. This is true for the tetracyclines.
Some abx work through oxidative damage (not all - abx have many mechanisms of action), so, theoretically, you could experience less die-off by taking antioxidants.
To say that supps make abx "useless" is an incorrect assessment of the research. These are minor effects. It also comes across as biased against natural medicine. Any strong bias one way or the other sends up red flags for me.
Supps are trial and error. I ate gobs of yogurt every time I took Doxy or Mino, as it calmed my stomach. The meds worked fine. Herxed my face off, in fact.
I've taken antioxidants all through treatment, though I avoid the fat-solubles when on Mepron/Malarone. Again, the meds always worked.
I think it's irresponsible to tell someone their treatment won't work because of such-and-such. Why scare the cr@p out of a Lyme patient?! We're scared and confused already.
I would rather hear, "My doc recommended no supps and here's why." Then I can do some reading and make my own decision rather than having a total freak out.
Many people take supps and get well on abx. That alone is proof that supps don't render the meds ineffective.
posted
Boxer mom I wasn't saying that I people shouldn't take supplements I was just stating that she didn't take
supplements told me her reasoning why and then relayed the message here simply to open up a topic of discussion to base
my decision off. I currently take supplements. Do I need them? I'm asking you guys. Are they bad when taking my specific
antibiotics? I'm asking you guys haha nothing was intended to be bias I honestly just wanted to see strong arguments made
by both sides so I could make me decision.
-------------------- T. Brown
CDC Lyme Positive Co infections? Who knows... Bands 18+ 30+39+41+45+58+66+ IGG 23+39+41+IGM Posts: 351 | From Boston MA | Registered: Oct 2013
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BoxerMom
Frequent Contributor (1K+ posts)
Member # 25251
posted
I understood your post. I meant the person who told you that supps made abx "useless" sounded biased and misinformed.
You get to make informed decisions, not decisions based on fear. Personally, I find it difficult to listen to people who tell me there's one right way to do something. With Lyme, that is never the case.
posted
Ya probably should have worded it better but she made it seem that way
-------------------- T. Brown
CDC Lyme Positive Co infections? Who knows... Bands 18+ 30+39+41+45+58+66+ IGG 23+39+41+IGM Posts: 351 | From Boston MA | Registered: Oct 2013
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GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
Personally, I think there is one group of supplements that are absolutely essential and non-negotiable...
Probiotics.
Whether using traditional antibiotics, antimalarials or herbal antibiotics, one should take probiotics.
(away from the abx and herbs of course)
Then I ask myself, which supplements act like medicine for me?
Magnesium Boron Iodoral
Which don't provide a noticeable difference immediately, but have studies backing their efficacy?
Vitamin C Methylated B's Milk Thistle
This is just me.
When I look at the recommendations from experienced LL's I get balled up.
Too many for me.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
I would trust Dr. Burrascano, who had lyme and treated many thousands of lyme patients, before I trusted this girl.
Burrascano cured many, many people in all of his years as a lyme doctor. I got well by going to a doctor who followed the Burrascano LYme Treatment Guidelines. My treatment included some supplements and artimesinin (an herb) for babesiosis.
If this girl were right, then why did I get cured? My supplements should have made my antibiotics useless!!!
Also, I have been in touch with many lyme patients over the years. Their doctors gave them supplements and they got well. So, experience is against what this girl is saying.
Why don't you do some research on supplements and see if ANYBODY is saying that supplements make antibiotics useless. I think you will see that it is the other way around--antibiotics kill supplements (if you take them together) and make supplements useless.
The doctor will tell you to take your supplements at least 2 hours away from the antibiotics because the antibiotics kill many supplements, just like they kill the probiotics in yogurt and all other probiotics.
Could you have gotten mixed up on what the girl told you?
Anyway, Burrascano treated lyme for about 25 years, so I will trust his opinion over this girl's. And, his opinion worked for me and for about 5 friends of mine who are all rid of lyme now thanks to the Burrascano protocol.
These 5 friends all took supplements and antibiotics too. But, they took their supplements away from antibiotics like you are supposed to.
His recommendations for supplements start on page 27 and goes to page 31. There are mandatory and optional supplements. He explains why supplements are needed on page 27.
If you have never STUDIED this document, I suggest you do. And, if you can ever attend a lyme conference or meeting where Burrascano speaks, that would be of great benefit to you. It really helps you see the expertise of the man and makes you understand the important principles of lyme treatment.
I heard him speak twice while I was sick with lyme. It was the very best thing I ever did.
Posts: 9931 | From Maryland | Registered: Dec 2007
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posted
Yes Tf I agree I enjoy taking supplements they make me feel better but I was just scared by what she said maybe because
of the envy to feel like she does now. The last thing I wanted to do was sacrifice long term improvement by negatively effecting
the antibiotics with short term improvement by supplements. I am well aware of the supplement suggestion/mandate from
Dr.B as well as Dr. H. Maybe she just got lucky or didn't need to have any supplements to get well. I don't know if I need
them but I do know I feel better with them. This girl meant no harm she simply relayed what her doctor told her to me. She
put up with all the same stuff we do and was very sick from middle school all through high school had to be home
schooled. She was treated IV and orals for 6 years and has been symptom and blood test free for 4 years now. Her dad
has had it for 25 years but he unfortunately still suffers to this day.
-------------------- T. Brown
CDC Lyme Positive Co infections? Who knows... Bands 18+ 30+39+41+45+58+66+ IGG 23+39+41+IGM Posts: 351 | From Boston MA | Registered: Oct 2013
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Tbrown, also compare your age to her age when she started fighting lyme & co. Younger, children and teens seem to recover faster than lets say the older folks.
Their immune system is certainly stronger than ours. They don't have years and years of toxic matter that's built up in their bodies....
usually from no fault of our own. Our environment, our dentists that put mercury in our mouths, our diets and now more and more get it that most of American diet is toxic.
Don't give up hope. I was told in '99 by so many people in Louisville KY, oh I knew someone that had Lyme, they took some medicine and they are fine. Healthy people.
I heard this so often that I doubted myself. How could I be so ill and yes, I've been taking abx for months and months.
Everybody was healed from Lyme but me??? Now that just didn't make any sense to me.
I felt like I was the lone ranger forever in this city. Now I know personally, by phone, by email, from my Lyme support group I help start, there are hundreds and just maybe that number is a thousand+++ people.
All right here or within a 75 mile radius of where I lived and got this nasty thing. I would wager that some of those folks that supposedly got meds and are cured.....
are ill with some other mislabeled dx. I'd bet the house on that one.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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