phyl6648
Frequent Contributor (1K+ posts)
Member # 28522
posted
After seeing a LLMD and have 32 test, most through Igenex I only had two positives test. One was ANA and the other IgG positive bands 30+,34+ and 41++/ babs, bart, PCR etc.. all negative IgM negative.
So the LLMD says looks like you have had lyme but could have been when you were a child.
My question I forgot to ask is why symptoms now if I have had this since childhood? I was 61 when my symptoms began, that was over 12 yrs ago..
My main symptoms are sinus like infections, ringing in ears,off balance, vertigo, crying, legs aching after any activity and sure there are more.
I have got to find out if all this is lyme related or something else but not sure where to turn. The only one that believes me is my PA but she hasn't a clue what to do. My MD says No LYME now. The ENT says its chronic sinusitis and truly when treated I do feel better but it doesn't last.
Posts: 1058 | From VA | Registered: Oct 2010
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Lymedin2010
Frequent Contributor (1K+ posts)
Member # 34322
posted
I have so many people who got bit in my neighborhood & that physically bump into from CT, NY, & NJ. Most of them do not worry about Lyme as much, but many of them have all sorts of symptoms.
I have observed 5 other family members with Lyme & symptoms and I am amazed at how well the body is able to contain and deal with the ongoing infection. From my observations the infection is typically so subtle that the person afflicted cannot tell & can easily dismiss them as daily life or growing pains.
It appears that the MAJORITY of people fall in this category. If they reach a point where other factors contribute & can bring down the immune system (empowering and propagating the infection), then reports will follow of more Lyme like symptoms.
Sometimes all it takes is something like a sinus infection to act as a continuing pumping source for the bacteria. Where the rest of your body was able to handle the infection before, now becomes overwhelmed because the rate of production has tipped over in favor of the invaders.
The longer this goes on the more opportunities for increased infected areas go on.
I have seen others (unrelated to Lyme) experience this tissue infection of various other organisms. They did not get better until the tissue was removed or treated. The infected area, as was said, became a pumping house for continued infection.
Posts: 2087 | From NY | Registered: Oct 2011
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GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
I was like the majority of those people for 12 years.
Trucking along, immune system doing OK at holding things in check.
Then the ball dropped. In 2012. Bit by a gazillion sand fleas.
Perhaps one nasty strain of bartonella too many and zzziiippp....
Straight into neuro lyme he11.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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posted
My repeated sinus surgeries at Stanford were chalked up to "autoimmune disease". I now need another one.
My husband calls it "collateral damage" caused by bacterial infection that is able to cross the blood brain barrier, ie tick borne diseases. He says the immune system is doing what it's supposed to do...rev up to attack bacteria. But rather than getting those nasty spirochetes that hide in the brain, it gets the sinuses, the thyroid, and it's special favorite: the joints, esp the knees.
Our LLMD says that my only hope is to stick to the antibiotics. We may switch back to Bicillin shots for awhile, though.
He is one of the most well known and respected LLMDs. He says he does not think alternative therapies are necessary. I certainly disagree regarding acupuncture for pain. It's not a cure, true, but it does help with symptoms and side effects.
-------------------- DOCTOR: "I don't think you are sick." PATIENT: "We are all entitled to our opinions. I don't think you are a doctor." Posts: 697 | From Northern California | Registered: Jul 2009
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phyl6648
Frequent Contributor (1K+ posts)
Member # 28522
posted
Tks for the replies. Gee, this disease is so confusing, especially when you are in a fog.
We are all so different.
Posts: 1058 | From VA | Registered: Oct 2010
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posted
Before diagnosis, my mom complained about a bad sinus for years. She kept telling the ENT that there was "something" in there.
She is now being treated for biofilms and the sinus has started aching again and dripping.
Posts: 832 | From Somewhere | Registered: Nov 2010
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posted
CK Thyroid
Posts: 355 | From NY | Registered: Jan 2006
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phyl6648
Frequent Contributor (1K+ posts)
Member # 28522
posted
I have had my thyroid checked many times.. I have so many symptoms of thyroid issues but the doctors say its fine.
Had it checked a few months ago but if your TSH is normal seems that is as far as they go.
Will be seeing my doc on Mon. any other thyroid test I could ask for? Have had the TSH, T3,T4 something about an uptake
Posts: 1058 | From VA | Registered: Oct 2010
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