LymeNet Flash: ANA Titer High

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»	LymeNet Flash » Questions and Discussion » Medical Questions » ANA Titer High

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Topic: ANA Titer High

desertwind
Frequent Contributor (1K+ posts)
Member # 25256

posted

So maybe my latest "flare" is not lyme

I got my test results back and my ANA Titers were high - over 1:80 w/ homogenous and speckled pattern.

I don't know what any of this means. Could lyme cause this or is this something completely separate?

I see my llmd in 3 weeks but does anyone know what high ANA Titers mean? Thanks.

Posts: 1671 | From Tick Infested New Jersey | Registered: Apr 2010 | IP: Logged |

jennyfromtheblock
Member
Member # 43805

posted

hi.

My ANA is high too, it is 1280.
Anything 80 + is high, so an 80 is not terribly high.

However, it goes up in doubles. So the next number up is 160, 320 and so on...

It is a sign that something is wrong with the connective tissues. Can be a sign of Lupus, RA, Sjogrens, schleroderma etc.

However, mine is high and I have tested negative on all those other panels are negative

I have heard that some lyme patients can have a high ANA and an autoimmune response.

I have had drs tell me that it is a phenomenon to have a high ANA b/c there is nothing wrong w/ me. though I was very ill at the time.

Do you have a rheumatologist? You should rule the other autoimmunes out.

hope this helps

--------------------
celiac dx 2012
pancreatic neuroendocrine tumor dx 2012
lyme dx 2/14
poss igm wb, neg igg wb - Igenex/CDC

Posts: 85 | From south shore | Registered: May 2014 | IP: Logged |

GretaM
Frequent Contributor (1K+ posts)
Member # 40917

posted

Hi Desertwind,

I have read that a high ANA can be caused by lyme.

At the Complex Chronic Disease Clinic in Vancouver, they use a high ANA to rule OUT lyme.

This doesn't help, haha.

I am as curious as you to find out what it means.
[group hug]

Greta

Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013 | IP: Logged |

jennyfromtheblock
Member
Member # 43805

posted

Greta,

how do they rule it out with ANA? Very curious on their take on it.

J

--------------------
celiac dx 2012
pancreatic neuroendocrine tumor dx 2012
lyme dx 2/14
poss igm wb, neg igg wb - Igenex/CDC

Posts: 85 | From south shore | Registered: May 2014 | IP: Logged |

desertwind
Frequent Contributor (1K+ posts)
Member # 25256

posted

Thanks guys. Just kinda freaked out. You know......been sick for a decade, get to remission, get reinfected and then find out ana titers are high.

Like you said they are not that high but something is going on. Thanks so much for the info and once I see my llmd I will update on his impressions of elevated ana titers and Lyme.

Posts: 1671 | From Tick Infested New Jersey | Registered: Apr 2010 | IP: Logged |

jennyfromtheblock
Member
Member # 43805

posted

Good luck. please let me know what they say. I am in the same boat pretty much.

They have me on ldn (low dose naltrexone) it is suppose to help block the autoimmune response.

I hated when the drs. say that it means nothing. I had one dr who said, it doesn't mean anything to them, in their specialty, but it means something to someone else.

--------------------
celiac dx 2012
pancreatic neuroendocrine tumor dx 2012
lyme dx 2/14
poss igm wb, neg igg wb - Igenex/CDC

Posts: 85 | From south shore | Registered: May 2014 | IP: Logged |

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