posted
Just read the articles that you posted....very interesting....and infuriating.
I need to figure out if I have high acid or low acid and move forward accordingly.
I drink lemon water most mornings, which I thought is helpful.
Funny thing...I drank lemon water once daily for weeks and weeks. Then stopped. That's when the problem seems to have started.
Posts: 711 | From Bucks County, PA | Registered: Apr 2008
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Phoiph
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posted
Don't be surprised if your doctor isn't aware of the "low" stomach acid issues causing similar symptoms.
You can research this yourself...there are many articles on the subject:
In my case, I was already infected and symptomatic with Lyme (but didn't have a diagnosis yet), and very reluctantly, I took this drug due to severe stomach pain and pressure from my PCP.
The Lyme completely overwhelmed my system almost immediately afterward. It was the beginning of an 8 year long nightmare (which I am happy to say I am now cured of).
I believe the lack of stomach acid allowed the bacteria and other pathogens to gain a stronger foothold...and my body could not defend itself after that.
Posts: 1880 | From Earth | Registered: Jul 2013
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Phoiph
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Also, consider getting checked for h.pylori...
Posts: 1880 | From Earth | Registered: Jul 2013
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Phoiph
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If it really turns out to be too much acid, then try DGL lozenges.
Either way, Slippery Elm powder is anti-inflammatory and also very soothing to the digestive tract...
Posts: 1880 | From Earth | Registered: Jul 2013
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posted
I take Ortho Biotic.....not sure if it's a great one. My LLMD has them.
Posts: 711 | From Bucks County, PA | Registered: Apr 2008
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posted
Not sure what is going on, but I'll be calling the doctor this afternoon.
Every morning, I'm nauseated for a handful of hours.
I have to use the bathroom between 1-3 times during those hours.
Then, once it passes, it's gone for the rest of the day.
I had a teeny bit of nausea each morning before getting out of bed that lasted only a minute or two. That was it.
Now, ever since starting and then stopping the Pantoprazole, I am dealing with this stomach thing every day.
Grrrrr....!!!
Posts: 711 | From Bucks County, PA | Registered: Apr 2008
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
Yrs ago when i was supermom working, raising kids etc with undx lyme a gi doc gave me reflux meds and said i would get cancer if i didnt take them. I did ask him directly what does stomach acid do?will i be ok without it and he assured me i would
Big mistake. I didnt research on my own back then. I trusted docs. I am still hooked on the reflux meds. Have tried to stop many times. I know they are making it harder to get better. And the reflux continued to get worse. Im.moving toward surgery and i have heard even.that doesnt helpmuch
I did find some naturl ways of desling with reflux online.eating hlfan apple.or a teaspoon.of good honey after a meal often comes the burning down for me. It might work better if the reflux isnt s bad as mine. Good luck
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
So sorry that you have to deal with this, lpkayak.
I can only imagine how frustrating that must be!
I am just so angry right now because I had no stomach issue. It was my throat.
And I know that acid rising up can irritate and inflame the throat.
But the point is I had no stomach problems. I can't image that only 5 days of the medication could have done this.....but maybe it did?
I've been off for 2 or 3 days and still dealing with symptoms.
I'm just confused....which I think is something most of us go through. We hear different things from different doctors and don't know who to trust.
I'm scared now that this might have triggered a new - ongoing - problem. The last thing I need!
I thought maybe it was a coincidence that the stomach issues started when they did. But I just can't ignore that when I started the pantoprazole, things fired up. Posts: 711 | From Bucks County, PA | Registered: Apr 2008
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lpkayak
Honored Contributor (10K+ posts)
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posted
I had no stimach problems either. I had burning in bottom of throat and he said if i felt burning it would turn to c a ncer so i had to stop it
More recently i have nausea, little cough and regurgitation
I often have to sleep in chair now
Im afrid of the surgery...maybe since you were on it a short time damage is minimal
I hate drugs. I refused statins for years. Then i took lowest dose for six months and ended up in walker...couldnt walk
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
I've been on a PPI for nearly 14 yrs. I hate it and I think those drugs are very harmful to the body. They eat your bones and make it EASY for candida and c.diff to flourish. Also makes it easier for SIBO to become a problem.
I've tried several times to get off of them. My current drug is Nexium.
I am spilling out about 5-10 beads from the capsule every morning. I know someone who got off of it by using this method. VERY VERY slowly reduce the drug so that you do not get the rebound acid.
Then I will transition to Zantac or Pepcid, if need be.
I may not be successful, but I need to try. My doctor fully supports this.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
Why did you stop the lemon water? It seems that's what lead to your initial symptom that got you put on the PPI, that has now caused problems...
If I were you, I'd restart the lemon water and see if that helps...
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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I told my husband that the timing of stopping the lemon water seemed a little suspect.
I used to drink one mug each morning.
Then, I started to have mild nausea in the morning when dealing with - and treating - candida.
So, instead of lemon water in the morning which is harsher on my stomach......
....I would have a mug of peppermint tea to ease the nausea.
It was weeks of no lemon water.
I definitely need to try that again.
However, before drinking lemon water, I had no acid issues...???
Last night, I was up at 2AM and barely slept since.
I have a message to call the doctor back this morning.
I think I'll also call my LLMD to ask his advice.
Lymtoo & lykayak: I really hope you find some relief. It's amazing how we are just put on these drugs that seem to negatively affect so many people.
Posts: 711 | From Bucks County, PA | Registered: Apr 2008
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Razzle
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posted
Peppermint can cause acid reflux because it can loosen the lower esophageal sphincter. Try DGL to correct this issue, and omit the peppermint.
If you need something for nausea, enteric coated peppermint may be less likely to cause reflux. Or you can try ginger (capsules or tea).
Other options:
Acupuncture or Acupressure wrist bands
Homeopathy:
Bryonia (nausea when first wake up in the morning)
Nux V. (general gut discomfort - nausea, indigestion, heartburn, diarrhea, etc. - the "Pepto-Bismol" of homeopathy)
Pulsatilla (hormonal nausea)
Ipecac (violent/severe nausea)
Lycopodium (indigestion/heartburn, gas)
I hope this helps...take care,
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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posted
I've gotten into the habit of having fresh ginger root in the house. I love adding it to tea, etc.
I wonder how much you would have to use to get the same effects of Zofran? (or come close anyway)
Posts: 711 | From Bucks County, PA | Registered: Apr 2008
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Razzle
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I don't know - my guess is it would be different depending on absorption, how the ginger is prepared (raw vs. tincture vs. tea vs. cooked with food, etc.), metabolism of the compounds in ginger, etc.
Right now, because of how sensitive my stomach is (Gastroparesis flareup), I'm using a ginger candy (Reed's Ginger Chews). I hope to eventually transition to home-made tea and cooking with organic ginger root.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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posted
I'll have to check those out (ginger chews).
It would be nice to have something that I can have on the go.
I hope your flare up calms down for you soon!
I see the GI doc later this week. I actually can't wait to go as I hope to be on my way to getting some answers.
I've noted down a bunch of things to ask the doctor about (h. pylori, low blood sugar, celiac, low acid levels, etc.).
Posts: 711 | From Bucks County, PA | Registered: Apr 2008
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
Not many GI doctors know much about these things. I hope the doctor you are seeing is knowledgeable about these things...
The ginger chews are high in sugar, which we aren't supposed to eat when we have Lyme. If I could swallow pills, I'd take ginger root in capsules - no sugar, and gives a more concentrated dose of ginger than the candy.
Eat a protein containing snack every 2 hours between meals. Make sure to eat plenty of protein in each meal, also.
If you have to have something sweet, try low-sugar fruits (sour apples, blueberries, etc.). The fiber in the fruits helps slow down the absorption of the sugars naturally occurring in the fruits.
Also, it is good to eat a protein and/or fat with the fruit, such as almond butter or a small handful of nuts, to help slow down the absorption of the sugars in the fruit.
Celiac Disease - I'd encourage you to check out http://www.theglutenfile.com for more info about Celiac and non-Celiac forms of gluten intolerance.
Testing for Non-Celiac gluten intolerance/sensitivity can be done through http://www.enterolab.com (I have no financial connection with this website/lab, just am a happy customer).
I hope this info is helpful...take care,
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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The GI doc is great and is testing me for h. pylori and parasites (among other things).
I was so happy because he did not just assume I have acid reflux and put me back on one of those drugs.
He said he wants to test to actually determine the problem, then go from there.
When I told him I had seen and ENT, he said that many (not all, of course) ENTs tend to chalk things up to acid reflux - which is common - but isn't always the problem.
Needless to say, I was SO happy about this.
Bloodwork, stool sample testing and an endoscopy are next. At least I'll know what's going on after all that.
Hope you're all as well as can be! Posts: 711 | From Bucks County, PA | Registered: Apr 2008
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