posted
i have not been here in a while as i was over lyme .
i went back to my llmd and was put on tettracycline for lyme.. told to keep taking two weeks on two weeks off...
i could only get to ten days and had to stop taking it and then restart in two weeks...for 6 months..
now i got to the point were i felt fullness in my head and unsteady gate..i waited untill the last min where i was at a show with my wife and i could not understand the show..
that night i tried to sleep and had brain problems trying to sleep...went to the er and they would not do anything! they knew my lyme history..
went home and called my doctor local and he made sure i would not get it..i kept telling him about tettracycline...went to llmd and checked my eyes and said no psuedo tumor cerebri that all herx...
went home and thought it must be either alzheimers or radiation from a cell tower..then they told me that if i keep going back and i dont call a pshyciatrist i will end up in the nut house..
so i had head pain and wierd breakdown of my brain...the pain was brain..no one would listen even my llmd..i dealt with it for a month and after the three weeks ended the brain stopped hurting...
now i have so many neuro problems that i am screwed...even now if i go to the hospital they wont do anything..it was psuedo tumor cerebri and my life is over..lyme was nothing! i cant work or think!
my wife did not help at all during this crisis..no relief from the intercranial hypertension the whole time..now what do i do ? the doctor thinks i am nuts..
all because of a run away herx..no papildimia..no heart beat unless laying down..dont know what to do..need a tap to see where is the pressure now...mri was ok..
my old posts are under polar blast..
what to do about the neuro stuff and how to reverse? doctors and llmd dont listen..llmd thinks herx...
my brain hurt so much and have symptoms like alzhiemer..symptom stopped after three weeks..dam doctors! now i have to prove damage..how to reverse? praying to the lord my God to heal...let me know what you guys think
Spend a few days drinking lots of Licorice tea or drops, or sarsaparilla or burbur.-- all available online. These plants bind Lyme endotoxins, which ***might** be part of your problem due to the die off created by the tetracycline..(I am not a doctor, but this is what I would try first)
Also buy some green drink powder and chlorella and try the above for a few days. (Green materials also absorb toxins)
Coffee enema may also help to flush out the Lyme endotoxins-- many here seem to have greatly benefited from it.(See the thread here)
Prozac can have suicide as a side effect.. although it does work for depression-- Im not saying don't try it, but it does need another visit to a doctor for the RX, and it is feeding cash to the big Pharma monster.. and Prozac will not clear out any toxins from the die off.
God bless you OP I am praying to our God for your recovery.
Posts: 696 | From New York | Registered: Aug 2006
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"The first way to eliminate toxins is to bind them up When toxins are in the small intestines, they can easily pass through the intestinal walls back into the blood stream. If the toxins are bound to another substance before they can be re-absorbed, then they will be passed out through the stool. Cholestyramine is a synthetic resin that is prescribed by Lyme literate doctors to bind to toxins. Toxins have a negative charge which binds to the positive charge of Cholestyramine.
Chinese nut galls or Galla Chinensis (Chinese name: wu bei zi) and Terminalia Chebula or Haritaki (Chinese name: he zi) are used in a similar fashion to Cholestyramine in Chinese herbal medicine. These herbs have a strong affinity for binding to substances. So, it is recommended to take Galla Chinensis two hours away from other herbs and medications. Terminalia Chebula can be added to other herbs without the two hour restriction.
2. The second strategy is to eliminate toxins is to neutralize them When Lyme bacteria are killed, they release endotoxins. There are several herbs that have stopped endotoxin shock in animal studies. When given to Lyme disease patients, they reduce herxheimer symptoms. These herbs include: Forsythia Suspensa (Chinese name lian qiao) Scutellaria Baicalensis (Chinese name: huang qin) Taraxacum Officinale / Dandelion (Chinese name: pu gong ying) Viola Yedoensis (Chinese name: zi hua di ding)Posts: 696 | From New York | Registered: Aug 2006
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Marnie
Frequent Contributor (5K+ posts)
Member # 773
posted
Prozac had an opposite effect on my son (more depressed), but he has 20+ symptoms of fragile X.
Prozac did help my sister.
Bb has an absolute need for tryptophan and this disease causes a Kyn/Trp imbalance.
By keeping serotonin levels higher longer, Bb is thus starved of tryptophan - it would appear.
We make the neurotransmitters which help convey a signal, then we break them down...make, break down, make...
Very fast all the time.
Years ago a drug called Tritec was used to destroy all forms of Bb camped out in the GI system only.
It wasn't "called for" much, so it is not available in the U.S. anymore, but could be compounded.
It is rantinidine (Zantac - H2 blocker) bismuth CITRATE (not Pepto Bismol - it won't work).
Seriously consider the L-Theanine I mentioned above.
I am sure you will be pleasantly surprised.
Posts: 9424 | From Sunshine State | Registered: Mar 2001
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Overlyme, I'm sure you know this but you need a new lyme doc. Even if you have to travel, do it. I drove 3 hrs each way to see my doc. Neuro stuff can also be heavy metals. I would also consider an ART practitioner.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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I'm reading a book right now that's quite good. It doesn't address Lyme, but is about the nervous system. It's called "Why Isn't My Brain Working?" If you can read with your neuro symptoms, maybe it would have ideas to help.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
Anti-Malarials and anti parasitics. Artemisinin and rotate with crypto. Rotate juicing, enema, infrared sauna, B-methyl, )atenolol seemed to help with the head pressure and stuff. Get a another doctor.
Posts: 697 | From CA | Registered: Dec 2011
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LisaK
Frequent Contributor (1K+ posts)
Member # 41384
posted
I am sorry to hear you are suffering like this.
I get the intracranial pressure too so I know it is terrible. Mine doesn't last too long- only about a 5-7 days and not so often any more.
I am not sure what I did to make it better than it was, but I do think my initial doxy did help a lot of issues. also I did herbals with a dr from PA if you are interested you can PM me.
good luck. prayers for you
-------------------- Be thankful in all things- even difficult times and sickness and trials - because there is something GOOD to be seen Posts: 3558 | From Eastern USA | Registered: Jul 2013
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
what are you doing for detox?
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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