Jordana
Frequent Contributor (1K+ posts)
Member # 45305
posted
Is there anyone who's gone to a Lyme Treatment Center and found it helped?
I've read about some nutcase ones. I don't want to go to a place where I'm supposed to make my own green smoothies and chant in the desert.
I'm talking about a REAL place where I can go to stay at least at first.
I'm thinking about this option because I guess I'm going to have to travel if I want to get seen and worked up correctly. I've thought about going to Mayo or someplace like that but I know if they don't find it in the serology ( which they won't) they're going to send me away in tears with Lyrica or something.
Also if I'm going to travel I'm going to need somewhere to stay.
I can afford to do this barely. I couldn't go to Thailand like Yolanda Foster but I could probably manage somewhere in the states if there is such a place.
Posts: 2057 | From Florida | Registered: Feb 2015
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Jordana
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Member # 45305
posted
Yeah...I've been seeing specialists for nine months. I live in a big city and the hospital system I'm in is really well-respected with tons of "top"doctors.
They found nothing. And the stuff they did find they refused to investigate much less diagnose.
I have no reason at all to think another hospital system is going to be any different.
Posts: 2057 | From Florida | Registered: Feb 2015
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poppy
Frequent Contributor (1K+ posts)
Member # 5355
posted
There is no lyme treatment center for you to go to. Only place I have heard of is a rehab place, which is helpful, but they will not be giving you antibiotics or any other treatment. In short, it would be in addition to whatever treatment you got elsewhere for the lyme.
People have been looking for such a place for years. It does not exist yet.
Posts: 2888 | From USA | Registered: Mar 2004
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Jordana
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posted
Man, there just has to be something. I can see if it were the year 2000 that would be true, but it's 2015 and there are just too many of us.
Posts: 2057 | From Florida | Registered: Feb 2015
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
A Boston TV station did a show on the lyme disease controversy a number of years ago. Here is the Boston Chronicle video on YouTube:
I suggest you watch this video a few times. It explains the lyme disease controversy and the role the IDSA plays in making it difficult for a person to get good lyme treatment.
Nothing has changed in the last 30 years.
Posts: 9931 | From Maryland | Registered: Dec 2007
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Jordana
Frequent Contributor (1K+ posts)
Member # 45305
posted
Thanks TF, I've watched enough Lyme stuff to last me the rest of my life.
I couldn't even get a diagnosis from an ILADS physician.
Posts: 2057 | From Florida | Registered: Feb 2015
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Then accept the reality.
Posts: 9931 | From Maryland | Registered: Dec 2007
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bluelyme
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Member # 47170
poppy
Frequent Contributor (1K+ posts)
Member # 5355
posted
Please follow the lymenet rules. No physician names allowed. Edit these posts please.
Posts: 2888 | From USA | Registered: Mar 2004
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posted
I remember seeing posts by a member of another forum that said they had been put into remission by a clinic called Envita in Scottsdale Arizona.
bluelyme
Frequent Contributor (1K+ posts)
Member # 47170
posted
Looks cool...they address all the facets..on the whole abx a couple of people have said its the long way around...herbals and other modalities are gaining speed ,i have seen spirochette come out of my rbc?! So a year and a half of abx immersion and that may not do it?!sounds rough...makes sapi's study of banderol samento look pretty tasty...how does one get mic levels in brain high enough to kill without toxicity to host.my heart is weary and has electrical block. ...lettuce know.thanks for the edit faithful
-------------------- Blue Posts: 1539 | From southwest | Registered: Dec 2015
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Jordana
Frequent Contributor (1K+ posts)
Member # 45305
posted
It's a gamble at this point. Actual treatment is moving too far away in time for me to NOT get major chemotherapy.
If it had been a year ago and I knew this I might have felt safer with herbals only.
Sapi likes minocycline plus tinadazole too.
Posts: 2057 | From Florida | Registered: Feb 2015
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bluelyme
Frequent Contributor (1K+ posts)
Member # 47170
posted
I understand ..my symptoms are screaming for me to do more...my glands recently got swollen on side of neck! ? I was just saying i wish i had started a year ago maybe so much muscle and nerve damage coulda been avoided...i got doxy-tini combo waiting just in case....does tini cause nerve damage like flagyl? ....i spoke to someone who did a year of iv and she still has issues....she likened it to chemo and did resolve some nuero /heart stuff. ..seeing if i can get a port approved /installed...this all makes me sad..i dont wanna ,then again i dont wanna....arrgh ears ringing....twitch twitch
-------------------- Blue Posts: 1539 | From southwest | Registered: Dec 2015
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Jordana
Frequent Contributor (1K+ posts)
Member # 45305
posted
I've read T is safer but not perfect.
Anyone can have a bad drug reaction. But it seems that if there's going to be one people recover faster and more completely with T.
Posts: 2057 | From Florida | Registered: Feb 2015
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Thanks TF, I've watched enough Lyme stuff to last me the rest of my life.
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