posted
First time I had Lyme I got Hashimoto's Thyroiditis (11 years ago.) That was fun; I swear I gained 15 lbs overnight.
Now Lupus?
I don't understand, and I am kind of freaked out on the Lupus thing, the more I read.
Posts: 351 | From La Crosse, WI | Registered: Sep 2005
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me
Frequent Contributor (1K+ posts)
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Autoimmune diseases run in packs. When someone gets one autoimmune disease, the likelihood of getting another one increases.
If I remember correctly, you have not seen a LLMD yet? Is this correct?
I ask this bc I was misdiagnosed with all sorts of things, including RA, prior to seeing my LLMD. My RA factors were very high on lab tests. I totally freaked out for nothing regarding the RA. I don't have it. It is the inflammation caused by Lyme that made those factors go up.
For some reason I'm thinking you are going to see Dr. J in Maryland? Is this correct? If so, you are in good hands.
-------------------- Just sharing my experiences, opinions, and what I've read and learned. Not medical advice. Posts: 1431 | From USA | Registered: Mar 2015
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Me: thanks so much for your very encouraging words. LLMD appt is November 1 with Dr. V in MN, which is who treated me last time.
I just feel like they'll aspirated knee, small risk involved, & find nothing.
[ 10-25-2016, 11:05 AM: Message edited by: faithful777 ]
Posts: 351 | From La Crosse, WI | Registered: Sep 2005
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me
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Member # 45475
posted
What is the purpose of the knee aspiration? To drain fluid? Is there risk involved if you don't?
I'm knowledgeable on some things, but not knee aspirations.
You've found a good place for support. There are many kind people on here.
I'm not the best at taking my own advice, but I can tell you I've totally freaked out over many misdiagnoses over the years. Like I said, both test for "RA" came back highly positive.
My LLMD said it's Lyme arthritis. Plus, the pain was in by big joints, not my small joints. RA is usually found first in small joints. One of the physicians who diagnosed me with RA said he was sure I didn't have Lyme.
After further questioning when I said I have two out of 3 IGM positives, so how can you rule out Lyme, he said, well I dunno much about Lyme. See an ID doctor.
Doctors diagnose what hey know. So rheumatologist will almost always diagnose autoimmune diseases. Gastroenterologists will diagnose tummy, bowel probs etc with a gastro diagnoses. Your LLMD will help look at the bigger picture.
I've found when I look on the internet I have symptoms of tons of diagnoses. Do I have those diseases? Nope, just Lyme and cos and some other stuff
Hang in there.
-------------------- Just sharing my experiences, opinions, and what I've read and learned. Not medical advice. Posts: 1431 | From USA | Registered: Mar 2015
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posted
Hmm, interesting. I have heard of Bee venom therapy, on Public Radio it was, I think.
Have never heard of Naltrexone. The first thing that comes up is it is a drug that reverses the effects of opioids and is used primarily in the management of alcohol dependence and opioid dependence.
But low dose is different Hmmmm. interesting. I'll ask my LLMD when I FINALLY get in November 1.
I did know about no steroids.
Posts: 351 | From La Crosse, WI | Registered: Sep 2005
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Brussels
Frequent Contributor (5K+ posts)
Member # 13480
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Don't worry much. Just keep treating.
during lyme, almost everyone complains of rise of allergies.
Mine skyrocketed during active lyme.
I think toxins play a role: body gets toxic, and reacts to anything as 'enemy'.
In the end, you don't know if your body is fighting pathogens, or food, or its own cells, or good foods...
I would go gluten free, casein free, just in case. And make energetic tests with all main foods you take (if foods test bad, avoid them).
We lose energy eating foods we react with allergy, then the body gets even more bananas with so much inflammation, and then things skyrocket.
I don't know if any of us have the answers about autoimmunity and lyme. I guess there must be a connection, as the problem is extremely common (more than common, I guess everyone gets labelled 'autoimmune' after years of chronic lyme).
I can just tell you that when my lyme got dormant, the situation got quieter. I still have allergies, but not like when lyme was fully active. That was horrible.
Just keep treating, eating healthy, taking your supplements, avoiding too many toxins.
Posts: 6199 | From Brussels | Registered: Oct 2007
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