Jordana
Frequent Contributor (1K+ posts)
Member # 45305
posted
I'm wondering if anyone else wobbles. This mostly happens when I'm sitting up and I move my bottom half; my back will start wobbling as if it can't stabilize the movement. If I let it go it can persist for up to 30 seconds; but I can focus and make it stop.
This also happens in my neck and shoulders. If I move, my head will keep moving, kind of swaying back and forth. I've been trying to figure out what this is for a while -- I get back words like "ataxia -- which isn't quite right because I pass all the cerebellum tests at the neurologist. I also narrowed it down to "hypotonia" -- which also doesn't seem quite right because this seems to only happen to babies.
I'm really worried about it. I tried to show it to my neurologist. What he put on the report was that I did a "strange movement." He had no idea what it meant because I had a normal exam.
While a lot of my symptoms seem to be transient, this has shown up over the past couple months and keeps getting worse. I'm wondering about permanent damage; this feels like there is something wrong with my spine or there's damage there that I won't recover. The only other places I've found with people online describing this kind of thing are some MS boards.
Can anyone relate to this and has it gotten better with Lyme treatment alone? It feels really dangerous.
Posts: 2057 | From Florida | Registered: Feb 2015
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