Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
Still suffering from bladder pain.
Still go for weekly catheder treatments.
Still doesn't relieve pain for longer than 3 hours tops.
Urologist sending me for cat-scan. I have to drink a liquid prior to test, which I believe is some sort of contrast dye.
Is this bad to take for lymmies ? Is it iodine ? If it's iodine, it might help with Lyme according to a previous thread about iodine. Wouldn't that be nice to kill 2 birds with 1 stone ?
Posts: 2977 | From Florida | Registered: Nov 2016
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
I've had the contrast dye lots of times. never a problem.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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posted
I'm allergic to it. So I always advise testing a very small amount of anything new to make sure we tolerate it.
Posts: 13116 | From San Francisco | Registered: May 2006
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kgg
Frequent Contributor (1K+ posts)
Member # 5867
posted
Just had it to check my appendix. I was fine with it.
At this point, get the CT scan done and find out what is going on.
Posts: 1686 | From Maine | Registered: Jun 2004
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Don't guess as to what it is. Speculation can steel your time and lead to assumptions.
If you have the liquid yourself to drink at home, you've got the details to then search and learn about.
If not, and if you are to drink something when you arrive at the medical facility:
Ask specifically. Call the imaging dept. where you will be going and ask them specific names of whatever you will get.
Have the name of the test procedure and the details there for your phone call so they can be sure.
You don't need a full list of ingredients from them but you need the EXACT NAME OF THE PRODUCT(s). Be sure of the spelling and the manufacturer's name so you can be exact as you do your homework.
and then YOU Look it up to see what the ingredients are. Then do a search on each one. This should take you a couple hours, most likely as you check on multiple sites / multiple authors.
Robin's suggestion is good, ask that imaging dept. if you might someone be able to test for your tolerance level of it prior to the imaging test.
Also, afterward, as soon as you get home- a nice organic carrot / beet juice drink - about 6 oz. - with some chlorella.
Green Tea & some other support methods for liver / kidneys.
If you have a naturopathic doctor, you might call and ask them, too.
If you are being treated by a LL doctor, whether LLMD or LL ND, ALWAYS ask them first such questions. They should always know what you are planning to do as something might interact or be contraindicated with their treatment plan for you -- and, if so, they would know how to alter arrangements. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
I would only do it as a last resort. What will you GAIN from doing the test?
Many of us are allergic to the dyes...or at the very least, we are SENSITIVE to them.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
All you guys are right.
If I do take the contrast, i m definitely taking keebler's organic carrot juice/ beet/ chlorella drink afterwards to flush out.
I picked up the contrast yesterday for my test tomorrow. It is creamy vanilla smoothie barium sulfate. It in not water-solvable. It blocks X-rays from going through your body so docs can get a good look at blood vessels and structures.
I had bladder distention last month under general anesthesia. Doc had camera scope and should have been able to "see" something ?
Anyways, I conveyed to him at my last office appointment that I wanted facts and answers to why and how this is making me suffer so.
Hense, the cat-scan. Also specialized urine cultures and cytology.
I m waiting on LLMD for her guidance.
I post at lymenet for other ' s experiences. I try not to bother LLMD as she is so very busy.
So I bother all of you. Posts: 2977 | From Florida | Registered: Nov 2016
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- "creamy vanilla smoothie barium sulfate"
aspartame may be in this but that is the least of the concern.
This may cause very loose stools soon after your test. Any carrot juice, etc. should wait till you get home.
you should not be driving home or even walking yourself. This is vital. Get someone to drive you or take a taxi. You might need someone to also be there in case your legs go weak.
look up and learn all you can about barium sulfate.
Also a drink, I had neurological reactions to it for a bowel image. Now, it may be that I also had to refrain from food -- and you may not have to do that. Still, learn all about it.
I may also have been given a different form of barium - or too much.
Your LLMD absolutely MUST know about this BEFORE you make the decision to ingest it. This is not negotiable. They must be asked if it's okay for you.
And if the decision is to go ahead, your LLMD should also have some very specific detail for what might take afterward - at what time intervals and locations - so that this can move out of your body. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- as you had general anesthesia last month, your liver is still working on managing that and will be for some time.
remind your LLMD of this when you mention the barium. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- You should also get the name of the exact product to see ALL the ingredients in it.
For the main / active ingredient, though, good place to begin (yet never a place to just end a search), Wiki offers some basics - from the manufacturers' view, of course.
And remember that just because something is SUPPOSED to work that way does mean that it will for every person. Those with lyme can be more sensitive to this kind of thing.
Many with lyme also have some degree or dysfunction with the liver being able to move out heavy metals due to PORPHRYIA.
I do have porphyria and that might be why I had a such a profound neurological assault from the barium test. It was about a year after this that I found out about porphyria. Wish I had known before.
Your LLMD should know more but do bring up the fact that many with lyme often have dysfunction regarding the ability to handle substances that can trigger
. . . Barium sulfate in suspension is frequently used medically as a radiocontrast agent for X-ray imaging and other diagnostic procedures.
It is most often used in imaging of the GI tract during what is colloquially known as a "barium meal".
It is administered orally, or by enema, as a suspension of fine particles in a thick milk like solution (often with sweetening and flavoring agents added).
Although barium is a heavy metal, and its water-soluble compounds are often highly toxic, the low solubility of barium sulfate protects the patient from absorbing harmful amounts of the metal.
Barium sulfate is also readily removed from the body, unlike Thorotrast, which it replaced. Due to the relatively high atomic number (Z = 56) of barium, its compounds absorb X-rays more strongly than compounds derived from lighter nuclei. . . . -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- If you have MCS, you might be more likely to have issues with porphyria / heavy metal tolerance.
what type of M.D. tests for PORPHYRIA? Includes detail about: HPU / KPU . . . . -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
Agh, my poor body.
So my LLMD never got back to me so I had to be a big girl and make a decision.
This morning was my CT scan. I decided I would take barium contrast, but only half dose.
Our little secret.
When I check in at diagnostic center, they inform me I would be getting IV iodine contrast. I said I had been given oral barium for scan. They said I am to get BOTH.
Don't you just love it when doctors don't explain anything to their patients ?
Another decision. . .
After reading "iodine against mold and toxins" posted by WPinVA on 4-02-2017, I decided to go for it.
Lyme ain't for sissies. Keep you posted.
P.S. Have drank can of ginger ale, 3 bottles of H2O, green smoothie with beets, carrots, chlorella, cilantro, garlic, ginger, celery, blueberries, and apple. Now my coffee, yeah.
Posts: 2977 | From Florida | Registered: Nov 2016
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
drink plenty of water too.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Glad it worked out well for you [in my experience, you would have known right away had it been a wrong ingredient for your body - I sure did. I knew well before I even got out the door after the test]. As for the plant based antioxidants, you don't need to bombard yet just keep a nice moderate steady supply going for a while.
Hope your tests results clearly show good news - and that whatever is going on is soon figured out. -
[ 04-08-2017, 02:50 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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