posted
Not moving forward with treatment. I just can't face the heart break and of this not working with this new doctor. It's just too much .. too many opinionated ppl already. I have too much OCD about what others think ppl already questioning my doctor's protocol (this is why I refuse to disclose her treatment plan) . I had hope for a day or two then it got squashed.
Posts: 597 | From Massachusetts | Registered: Mar 2019
| IP: Logged |
posted
I stopped telling all my doctors or anyone who may have an opinion. I dont list any meds related to my lyme treatment on my med list.
This latter is really important to me now because a huge medical group has taken over my county. Everyone has my meds and probably all my health records - although they deny the latter.
Maybe I am misunderstaning your post but if not move forward! They aren't living with this nightmare.
[ 04-12-2022, 07:08 PM: Message edited by: terv ]
Posts: 832 | From Somewhere | Registered: Nov 2010
| IP: Logged |
Also last night someone told me my treatment and new doctor is a money trap and I shouldn't do it. They said it'll prob be another wild goose chase for another 3 years with more questions than answers like with what happened with my now former LLMD. So I guess its just as well.
I'm suffering everyday but just gonna sit on the sidelines watching everyone else have fun
Posts: 597 | From Massachusetts | Registered: Mar 2019
| IP: Logged |
Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
I find it interesting that you didn’t reveal your new protocol with fellow Lyme sufferers (which is totally acceptable) but yet you revealed your protocols with others that have caused you to self-sabotage in the past.
You know you will not get better or have the life you deserve if you don’t treat your infections. This will not go away on its own. The LymeNet community offers compassion to all TBI sufferers but it is YOUR responsibility to TRY to get better.
Anxiety is your biggest hurdle. Your fear of trying and succeeding causes you to self sabotage to eliminate a failing outcome. But. . .
Lyme treatment isn’t a all-or-nothing protocol. It is constantly tweaking, adding or subtracting, based on symptoms and responding clues.
You want full control and you are scared of the outcome once you commit. This will control your failure not your success.
You have an unrealistic fantasy of Lyme disease protocols. No LLMD protocol will heal you alone, that responsibility is yours.
Please re-think your decision. Stay in the battle. Never give up. 💚
Posts: 2977 | From Florida | Registered: Nov 2016
| IP: Logged |
posted
It was on another Lyme site Bonnie. People are jerks and know it alls if it's not the way THEY did things. I see it on this site too. Now I'm questioning everything my doctor tells me. It just takes ONE person to do that to me, yea that does it and stays with me.
I'm starting to think a tick(s) may have started this but humans prolonged the suffering and made things even worse.
Posts: 597 | From Massachusetts | Registered: Mar 2019
| IP: Logged |
Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
So your answer is to just quit? Because of other’s judgmental comments and negative thoughts? Do not give judgmental comments and negative thoughts any power.
Why didnt you get multiple feedback on your protocol, to shape the best possible outcome for your goal’s success? You concentrated on only the negative. But you have to ask yourself why did you do that?
Is it the self sabotage of anxiety?
Here’s the thing. . . You can’t change other people’s actions, only your own. To place blame on others is a reflection on you, not others, it serves no positive effect. I don’t think you even realize you do this.
You have the potential to get well. You are worthy of a happy and healthy life. Why do you think you can’t have this?
Don’t lose sight of who you are and what you are capable of and how far you have already come. You are very strong and very determined although inside, you feel the opposite.
Make a plan/ goal. Be very clear as to what you want. Tell yourself “I’m going to be O.K.” Commit to a better life by moving forward. It’s there for you, within reach. Get HUNGRY power Mountainsky.
We will be here every step of the way to help you.
Posts: 2977 | From Florida | Registered: Nov 2016
| IP: Logged |
posted
I did it for too long, I'm done. It's only gonna bring more disappointment and heart break. It's Easter, I'm in so much pain and bed bound today.
Posts: 597 | From Massachusetts | Registered: Mar 2019
| IP: Logged |
posted
Sorry but I see it with other members too getting "bullied" because certain "know it alls" on this site don't approve of another menbers protocol. Lyme is very complex. It is not one size fits all unfortunately regsrding treatment. I would have loved to share my protocol with you all but I just cannot. Like I said I already had a member on another Lyme board forum question something my LLMD suggested. I never even disclosed my whole protocol, just 1 thing and already this crap started....
Posts: 597 | From Massachusetts | Registered: Mar 2019
| IP: Logged |
hiker53
Frequent Contributor (5K+ posts)
Member # 6046
posted
What would it hurt to try the protocol from your new LLMD? I am not suggesting you share the protocol with us, but to give it a try.
Bartonella does cause anxiety, so perhaps treating it will help.
posted
I've been on way too many drugs for Bartonella with my former LLMD. The anxiety never went away. Ever.
Posts: 597 | From Massachusetts | Registered: Mar 2019
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic