Yet, after just 6 days off after my last rifampin herx, I'm feeling the crawling sensations in my brain again, strong brain fog, pressure in my head & ears, peripheral neuritis, and vibrations in my right eye, spine & diaphrag again. It makes me afraid to stay off.

Bpeck, how did you keep from panicking and going immediately back on abx after finishing a round? Did you not get symptoms back right after you went off of one abx?

Does anyone else have success taking some time off to detox? I've never been able to get past 6 days before my symptoms feel like they're getting the better of me again and I panick and run to the abx bottle.

DaveS

Abx made them worse. Everything, including other symptoms and pain were weighed against my eyes.

I found thru trial and error, that if I started at low dose abx, ramped them up, then ramped them down I could tolerate going off them.

At first, I had the same weird thing happen - that after I went off abx, my other Lyme symptoms seemed to come back in a few days .
So I tried weaning off. And for some reason that worked. So consequently my doses of abx were not at all constant...

Also - I was taking between 1 and 2 grams of ibuprofen a day (that seemed to quiet pain/symptoms to bearable)... and that stayed pretty constant for a long time - on or off abx.

No one's more surprised than I am that I feel good. I'd felt so bad for so long it was a way of life.

Barb

Tempe