LymeNet Flash: Weaning off abx per LLMD

LymeNet on Facebook

LymeNet on Twitter

Follow @LymeDiseaseNet

The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive

The Lyme Disease Network is a non-profit organization funded by individual donations.

»	LymeNet Flash » Questions and Discussion » Medical Questions » Weaning off abx per LLMD - anyone successful?

UBBFriend: Email this page to someone!

Author

Topic: Weaning off abx per LLMD - anyone successful?

lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622

posted

Ok, I know many of those that have gotten better are long gone.. but, on the chance somebody's still hanging around - here's my situation:

My LLMD has me on a program to wean me off abx gradually. I am now down to 4 days a week on half dose of Rifampin (300mg) and Flagyl (375mg) Sat-Sun. Every two weeks I cut back one more Rifampin. When I get down to 1 per week, I cut the Flagyl. Seems like a very gradual plan, and it's taken a while to even get this far. I must note that I am taking TOA-Free Cat's Paw and will continue to do so.

Has anyone done this type of wean off and been successful? I still have some issues (tinnitus/dizziness) but it's nowhere as bad as it was - I'd say I'm about 80% better, and am aggressively treating yeast now. Anyone have anything positive for me?(I hope)

------------------
Julie G.
___________
lymeinhell

Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003 | IP: Logged |

mcpucho
Unregistered

posted

from those who i have spoken to who have gotten 100% they said it was imperative to stay on abx for at least 2 months asymptomatic before discontinuing abx treatment as to lower any chance of possible relapse.

but glad to hear you are doing better!

IP: Logged |

chainsaw joe
LymeNet Contributor
Member # 5490

posted

I dont think rifampin is a drug you skip days on.I believe you either take it every day or not at all.My doc stressed you cant start and stop rifampin and Ive seen that here on lymenet.I dont know why but thats what Ive heard,maybe resistance.

Posts: 225 | From mass. | Registered: Mar 2004 | IP: Logged |

TheCrimeOfLyme
Frequent Contributor (1K+ posts)
Member # 4019

posted

As long as you continue to HAVE rifampin in your body, you wont become allergic ( which is the risk of it, its one of the ones you can become allergic to very fast)

Thats what happened to me- I was on a regime of ten days on and ten days off and ended up in the ER.

I wouldnt ween until you are 100 percent. I know thats not good news, but I wouldnt do it. Symptoms=still infected.

If you think you *can* though, then go ahead. Sometimes, its the abx alone that are causing the continued symptoms. ya never know but its a HUGE change to take.

Up to you!

I didnt make it. Five weeks and I got SLAMMED with everything all over.

Posts: 3169 | From Greensburg, Pennsylvania | Registered: Jun 2003 | IP: Logged |

lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622

posted

Just as a side note - I was cut back from Rifampin 300mg twice a day 9 weeks ago (and put on Cats Paw) to 300mg M-F and have been doing great (improving). Been on Rifampin since March.

Was hoping to hear some better news, as these are instructions from my LLMD.

------------------
Julie G.
___________
lymeinhell

Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003 | IP: Logged |

Kara Tyson
Frequent Contributor (5K+ posts)
Member # 939

posted

I think I am a success story. In the end it was Zithromax for me. After I went off the Zithromax I was treated for Babesia. I have been fine every since then.

But I had to be patient. It took 4 1/2 years of meds.

Posts: 6022 | From Mobile, AL | Registered: Apr 2001 | IP: Logged |

Printer-friendly view of this topic

The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA
http://www.lymenet.org/