LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Migraines... Please Help!

 - UBBFriend: Email this page to someone!    
Author Topic: Migraines... Please Help!
AmandaPI
Member
Member # 5587

Icon 1 posted      Profile for AmandaPI     Send New Private Message       Edit/Delete Post   Reply With Quote 
I have chronic headaches and migranes from NeuroLyme. I am on Topomax for prevention an have used Imitrex, Maxalt and most of the other triptans available with little success.

I was hospitalized for four days last week for a month long migraine that eventually went away after DHE tx every eight hours in the hospital only to return the next day. My neurologist has referred me to a pain clinic and I cannot get in for 3-1/2 weeks.I can't survive that long with these constant headaches and migraines!

My LLMD lives across the country (there are none in my state) and is only managing my abx.

Part of the problem is that I am on a Duragesic patch and OxyIR for chronic/fybromyalgia like pain so narcotic meds are not a good choice and I am slowly trying to get off of the ones that I am on.

To further complicate things, my local internist who was prescribing meds for symptoms passed away recently. I do have an appointment with another internest next week but I have not met her yet.

The only thing that gives me any temporary relief is ice and popperment oil. I have tried accupuncture, kinesiology and chiropractic with little sucess.

Any sugesstions would be greatly appreciated!


Posts: 80 | From Salt Lake City, Utah USA | Registered: Apr 2004  |  IP: Logged | Report this post to a Moderator
lla2
Frequent Contributor (1K+ posts)
Member # 2364

Icon 1 posted      Profile for lla2     Send New Private Message       Edit/Delete Post   Reply With Quote 
the only thing that helped my horrible migraines was treating the source...adn that for me was the coinfection babesia...have you been tested or treated for it?

after I had both, my two years of horrible, head splitting migraines just went away...

good luck

Lisa


Posts: 4713 | From saunderstown, ri Usa | Registered: Apr 2002  |  IP: Logged | Report this post to a Moderator
Kara Tyson
Frequent Contributor (5K+ posts)
Member # 939

Icon 1 posted      Profile for Kara Tyson         Edit/Delete Post   Reply With Quote 
Hi Amanda,

I take Imetrex and Maxalt for cluster headaches. Usually they are about 3/4 weeks apart. However, sometime back I started to have them every day.

I started going off of certain drugs for a couple of days and bingo...one of the drugs was causing the headaches. A drug that I was taking every day.

Consider that it might be something you are consuming. An herb, medicine, or food.

It could be this patch you are on. Just because it didnt give you a headache in the beginning doesnt mean it might not be the source now. Also, stay away from all B vitamins.


Posts: 6022 | From Mobile, AL | Registered: Apr 2001  |  IP: Logged | Report this post to a Moderator
Lil
LymeNet Contributor
Member # 4853

Icon 1 posted      Profile for Lil     Send New Private Message       Edit/Delete Post   Reply With Quote 
Amanda

I am so sorry you are having such a terrible time with migraines. I have also been plagued by them over the years.

However I am lucky in that a good acupuncturist can always help me but I have weekly treatments for 4 weeks to help my body.

One very important thing I have found in my case is to never go longer than 2 hours before eating because my blood sugar tends to be very unstable and this is very common with borrelia infection because it blocks the enzymes.

It is also important to eat a low carb diet with no sugar because of course that can mess it up even more. Therefore good protein and good fats are essential.

Have you tried eating lower carb and never to go longer than 2 hours without eating? Before I go to bed at night I always eat some wholemilk yoghurt with flaxseeds and oatbran and this gets me through the night ok.

I truly hope you soon find something to help you. I would also be very careful about any drugs you take because I have had problems from them in the past if I take them too often or too many.

Lil


Posts: 146 | From UK | Registered: Nov 2003  |  IP: Logged | Report this post to a Moderator
Kara Tyson
Frequent Contributor (5K+ posts)
Member # 939

Icon 1 posted      Profile for Kara Tyson         Edit/Delete Post   Reply With Quote 
Also, it might be a good idea to have an MRI brain scan. Just in case.
Posts: 6022 | From Mobile, AL | Registered: Apr 2001  |  IP: Logged | Report this post to a Moderator
AmandaPI
Member
Member # 5587

Icon 1 posted      Profile for AmandaPI     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thank you all for the information and support.

I'm not sure if I have been tested for coinfections. My LLMD ran so many test and my Lyme WB was the only positive.

It doesn't seem like any medication my migraines is helping so I will hold out for the IV abx and take some of the good suggestions about diet and suppliments.

I also have never had an MRI but just had my third CAT scan...maybe I will look into having an MRI.

Thanks and be well


Posts: 80 | From Salt Lake City, Utah USA | Registered: Apr 2004  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code� is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.