posted
I have chronic headaches and migranes from NeuroLyme. I am on Topomax for prevention an have used Imitrex, Maxalt and most of the other triptans available with little success.
I was hospitalized for four days last week for a month long migraine that eventually went away after DHE tx every eight hours in the hospital only to return the next day. My neurologist has referred me to a pain clinic and I cannot get in for 3-1/2 weeks.I can't survive that long with these constant headaches and migraines!
My LLMD lives across the country (there are none in my state) and is only managing my abx.
Part of the problem is that I am on a Duragesic patch and OxyIR for chronic/fybromyalgia like pain so narcotic meds are not a good choice and I am slowly trying to get off of the ones that I am on.
To further complicate things, my local internist who was prescribing meds for symptoms passed away recently. I do have an appointment with another internest next week but I have not met her yet.
The only thing that gives me any temporary relief is ice and popperment oil. I have tried accupuncture, kinesiology and chiropractic with little sucess.
Any sugesstions would be greatly appreciated!
Posts: 80 | From Salt Lake City, Utah USA | Registered: Apr 2004
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lla2
Frequent Contributor (1K+ posts)
Member # 2364
posted
the only thing that helped my horrible migraines was treating the source...adn that for me was the coinfection babesia...have you been tested or treated for it?
after I had both, my two years of horrible, head splitting migraines just went away...
good luck
Lisa
Posts: 4713 | From saunderstown, ri Usa | Registered: Apr 2002
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Kara Tyson
Frequent Contributor (5K+ posts)
Member # 939
posted
Hi Amanda,
I take Imetrex and Maxalt for cluster headaches. Usually they are about 3/4 weeks apart. However, sometime back I started to have them every day.
I started going off of certain drugs for a couple of days and bingo...one of the drugs was causing the headaches. A drug that I was taking every day.
Consider that it might be something you are consuming. An herb, medicine, or food.
It could be this patch you are on. Just because it didnt give you a headache in the beginning doesnt mean it might not be the source now. Also, stay away from all B vitamins.
I am so sorry you are having such a terrible time with migraines. I have also been plagued by them over the years.
However I am lucky in that a good acupuncturist can always help me but I have weekly treatments for 4 weeks to help my body.
One very important thing I have found in my case is to never go longer than 2 hours before eating because my blood sugar tends to be very unstable and this is very common with borrelia infection because it blocks the enzymes.
It is also important to eat a low carb diet with no sugar because of course that can mess it up even more. Therefore good protein and good fats are essential.
Have you tried eating lower carb and never to go longer than 2 hours without eating? Before I go to bed at night I always eat some wholemilk yoghurt with flaxseeds and oatbran and this gets me through the night ok.
I truly hope you soon find something to help you. I would also be very careful about any drugs you take because I have had problems from them in the past if I take them too often or too many.
posted
Thank you all for the information and support.
I'm not sure if I have been tested for coinfections. My LLMD ran so many test and my Lyme WB was the only positive.
It doesn't seem like any medication my migraines is helping so I will hold out for the IV abx and take some of the good suggestions about diet and suppliments.
I also have never had an MRI but just had my third CAT scan...maybe I will look into having an MRI.
Thanks and be well
Posts: 80 | From Salt Lake City, Utah USA | Registered: Apr 2004
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