So...switching from orals to PICC LIne Claforan on Monday......will do that for 4 to 6 weeks, and then slam into the Marshall Protocol.

I like this!!!

We'll will knock the load down, and then "go for it".

Also will be tested for hormaones...however, I beleive I would hold off on taking any with MP coming up.

Any comments......on PICC Line
CLaforan
Marshall Protocol

Welcome.

Trout

PS...I am SO excited by this news.

My son is starting the MP when his script gets filled. My plan is to get him stablized on the benicar, get my IV Claforan and then start the Marshall Protocol sometime in January.

Good luck!!! i wish you the best!

I have no experience with either so I cant comment but I have lost weight and its tough so congrats on that and the chest x-ray being clear!!!

Sounds like a good plan. Do you have the option of staying on the claforan longer if its doing you some good?

I hope you are going to have some time inbetween that and the MP, just to clear out meds for a while.

As far as hormones, it makes sense to wait till after starting the MP. But if you are very far off on things, I'd check them again 6 weeks or so after starting MP.

It looks to me like some people need hormonal supplementation even while on the protocol. If your numbers are still way off after six weeks of MP, you could consider trying adding the most critical ones in.

Good luck!

Karen...I could not get a PICC line in my left arm. I was told by a nurse who does 6 to 8 PICC lines a day that I most likely had a nerve problem in that arm and she wasn't even going to try.

She put the PICC line back in the other arm but in a different spot than I originally had it.

The arm with the nerve problem is also the arm were I saw the bite with a ring around it??

Ken...glad to hear the good news. Looking forward to following your treatment.

I talk to my LLMD the end of the month. I wonder where he is going to go with me next??

I take tons of differebt pro-biotics everyday.....

Taking care of heavy metals daily.....

Taking anti-fungals.....

Addressing Dental Problems also.

Am having salt and chloride issues addressed also.

Ya'll are great.

For more info and a good summary of the MP see http://www.marshallprotocol.com/forum3/40.html People on that forum describe their experiences with the MP.

Trout, good luck and keep us posted.

Best wishes to your wife & kids too.

Edited: I can't remember names any more & use wrong one on you but it did start with KE...LOL.

I'm very interested as I seemed, before the Bicillin shots, to have hit a wall as far as treatment goes.

I tried the Marshall and IMO, I really needed more time on the Benicar before starting the Mino. My BP got so low it was dangerous, dagenerously low. So, with my wedding coming up, that was in June, I just jumped off of it and was waiting so see what Dr. C thought about it.

So, when we met in August, he really didn't think that I should be on that protocol. So, as you probably already know, I am currently doing the Bicillin Shots and I believe that in the end, I'll have come out of it with a much greater response than anything I've been on in the past.

But, really just very curious as to if Dr. C prescribed this for you or are you just trying it as I did with using my PCP for the scripts.

Is Dr. C. putting you on an oral abx as well as Claforan?

What are you using for chelation and what's your dosing schedule?

My suggestion is just to make sure that you get your liver enzymes checked every single week while you are on the IV claforan. They should be doing a complete CBC panel on you weekly anyhow. The home health nurse can do it for you. Are you going to have a HH nurse??

GOOD LUCK to you. I know how hard you have struggled the past few years, and i sincerely hope this followed by the Marshall protocol are REALLY going to help you!

I am thinking about the MP too, but I haven't decided yet. I might try ketek instead, the problem is I don't know the cost of that drug and I have no prescription coverage.

THINKING THE BEST FOR YOU TROUTY! I will have you in my prayers!

Lisa in Arizona

Thanks Kent

quote:

---

Originally posted by troutscout:
Also will be tested for hormaones...however, I beleive I would hold off on taking any with MP coming up.

---

TroutScout,
You would be very wise to hold off on any kind of HRT while doing the MP. We are seeing a pattern that the folks who have tried to combine any of the so-called "natural" hormone supplements with the MP have been having a lot more trouble adusting to it successfully.

Keep in mind that all of these hormones (with the exception of thyroid or insulin) are steroidal hormones, and so is 1,25-D also. The idea that "vitamin D" is a "vitamin" is a misnomer because it's really a steroidal hormone precursor. That's why these two therapeutic approaches don't work well together.

It's hard as heck to convince the CFIDS docs of this though, or their patients either, because "natural HRT" is such a big fad among most of them right now -- especially followers of Jacob Teitelbaum's "From Fatigued to Fantastic" school of thought.

Choose your choice. One or the other, but not both together please.

Congratulations. You are going to take off like a shooting star soon, my good man.

Here are a few more links about what the MP is all about, for benefit of anyone else who's curious.

http://www.marshallprotocol.com/forum2/

http://www.marshallprotocol.com/forum32/

Rosemary,
I sincerely hope you decide to give the MP another try now, too, especially since your life has settled back down to normalcy again now. We are finding that timing is critical for success.

The first few weeks can be difficult at first, and getting used to strict avoidance of sun and bright lights is one of the keys to success. At first, it seems pretty daunting, but as soon as you start to feel the benefits, then you become an enthusiastic cave dweller.

Our daughter was quite amused while she was out shopping when a young child came up to her and asked her if she were somebody important, like a movie star or something, because she had on her dark sunglasses and sun hat and neck scarf. She had that chicque(sp?) look of celebrity status, seeking privacy behind her dark glasses.

After you get used to the new lifestyle, it becomes something you do because you WANT to do it, and it no longer seems like such a burden or an inconvenience to do it, because it makes such a noticeable difference in how you feel.

The folks who don't catch onto the necessity for strict sun avoidance, though, don't fare as well. So, be sure you are really well prepared mentally and that you understand everything very thoroughly BEFORE you start, so that you know what to expect, in order to insure a successful start right from the get-go.

PS -- Sorry I've been absent from LymeNet for so long. I got a phone call about TS's topic, and that's why I'm here. I'll donate to the annual LymeNet fund drive, too, before I forget about doing that, so it's good I got that phone call to remind me visit you guys and gals again.

The weekly blood tests are ordered......

DMSA.....every other day..then take 2 week break.

No other abx.

The PICC is in and I am taking 2 grams of Claforan 3 times daily at 6am, 2pm, and 10pm...all as an outpatient...what a pain!!!!

I haven't noticed anything yet...however...I did herx on my nightly dosage of artemisinin.

.....I am NOT going to start taking hormones, etc until AFTER I have gone thru the Marshall Protocol....if it is necessary.

Why? Each time I see a failure on the MP...it is someone who either didn't 'restart' or they never made the effort to follow the MP as it is.
(THere are exceptions...such as Rosie)

In otherwords....most of the failures occurred due to non-compliance.

Many CFIDS patients have "hypovolemia" (low blood volume) and this helps to counteract it. No one knew about doing this back when you were the first guinea pig. Now everyone does this and we aren't seeing as many problems of the sort that you had anymore.

Tell the LLMD to throw you a fricken' Bone and have the Infusion co. bring you a pump & supplies. I can't imagine schlepping to the Duckpond 3x a day for this! I was lucky that the nursing agency will also do labs, at my kitchen table.

I am starting to see patterns here.

The salt cure....MP.....parasitic infections...

In fact...I commented to the nurse tonight..."Hey, I actually feel GREAT...you all are pumping me full of Sodium/Chloride!"

In fact, I have gained 5 lbs today....eating everything in sight...and lovin' it!!!

Lyme Lighter.....I enjoy 'getting out and seeing the public".

Shelley.....Gerolsteiner and Apolinaros have always been at my side...been a secret of mine for many years.(Pre-Lyme dx)

TXMom....a true inspiration and icon.

Have a great night.

Ok, I'm curious after reading your last reply...my sodium and chloride are also always low and I've always wondered about why?

Could you tell me...does this indicate babesia? or lyme? I have lyme but think I don't have babesia. Have/had bartonella too.

I havent been following anything about the MP so I'm sorry if I don't know much. What is the connection with low sodium and cl and tick diseases?

It is also a Syndrome called;
Syndrome Of Inappropriate Anti-Diuretic Hormone. (SIADH)

Once again...the hormone thingy!

Now...one thing that allows parasites to live comfortably in beings is a lack of salt (or, so we think).....whether or not this has anything to do with Babs I couldn't tell you.

I just think that the way in which the Marshall Protocol approaches the hormone imbalances, etc is remarkably ingenius...since these have been known as ongoing problems for Lymies.

Hope that helped you...remember I am NOT a DOCTOR. (Although 2 Chiro's and a Local MD call me Doc now.)

Trout

Now, my research juices are really flowin. I'm going to try to understand MP just in case I relapse in the future and get tired of abx. Good luck with your IV too.

Wishing you good luck on your new protocol!!!! You and your family remain in my thoughts and prayers!

I wish you the very best and hope that you will keep posting step by courageous step.

Everyone else...well...I am puting on weight...8 pounds since Monday!!!

I think my gut wasn't absorbing the abx.

So........IV Claforan.

Am looking forward to getting on the Marshall Protocol....Shelley.

Thanks,

To ALL of you....Missy, Tutes...all ya'all are great.