I still have some backsiding with herxing, but there is a signifigantly comfortable change.

I head up a support group and it has been my experience those that are on oral abx for 2-3 years instead of IV do better. IV should only be used for the most severe cases initially and then when symptoms get better they should switch to orals. I know of several cases including my own where this is the case. A few of the Lyme patients are ahead of me in their treatment and they have hit the symptom free level. I must tell you that most do not turn the corner, where they feel well most of the time until the 18 month mark.
All of these patients are taking 100mg of Doxy BID for a month or two, and then they start taking Biaxin 500mg BID (do not take XL, which is time released)along with the Doxy. The Doxy works on the Lyme in the bloodstream and the Biaxin works deeper in tissues and can penetrate the brain barrier.

Hang in ther, Stephanie. When you finally reach the point where the twitches get better or go away completely you won't believe how different you feel. It is very tiring and debilitating to have those. Mine were so bad that weekly the muscles would twitch to the point that I would have a huge lump which was a huge spasm and it would cut my blood vessels so bad that they would burst from the pressure of the spasm. It was very painful and the bruses were huge. Of course Cleveland Clinic was convinced my husband was beating me. WHat a bunch of idiots.

I forgot to tell you, you have to be treated for any coinfections first before you get treatment for Lyme. I hope your doctor checked for these.

Rifampon has been the only antibiotic that I know helped the twitching and burning.

Has your lab work ever turned up babs? I know you took mepron but could this be a lingering babs symptom. I still have it because I am still herxing on artesminin, but something has kicked it I think to some degree.

Let's talk soon. After months of ignoring my holistic doc, I ordered and am reading Lab 271, which I thought would be BS, but it is well researched and fascinating. Amazon for around $5 amd well worth the read.

Regards,
Frances

You need one on board to get rid of m. fermentans.

Clindamycin and Telithromycin are also effective against it.

PCR tests are extremely (virtually 100%) reliable.

I still have symptoms so I'm sure it has not been completely eradicated yet. Mycoplasma is difficult to get rid of. I'm in my 5th month of antibiotics specifically for this strain of mycoplasma and I still have symptoms, including muscle twitches.

Taking Biaxin for mycoplasma fermentans is a waste of time. The MIC is 64 ug/mL. It could even be making it more resistant to other antibiotics. For comparison, Levaquin and Cipro have MIC's of 0.125 ug/mL.