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» LymeNet Flash » Questions and Discussion » Medical Questions » Question for James H

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Author Topic: Question for James H
IBelieve
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Hi James H
I have the same facial symptoms you and your wife have. Could you tell me what medications you are being treated with?
Thanks for the info

Posts: 48 | From New Hampshrie | Registered: Jan 2005  |  IP: Logged | Report this post to a Moderator
docdave130
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facial symptoms of lyme are from the fifth cranial nerve and bell's palsy, pain and lymph gland and salivary gland swelling, also ear problems.
correct lyme treatment with abx and possible babs tx, should correct these symptoms. they shoul;d not be permanent, if neuralgia persists then neurotin is used by a neurologist to treat pain and bell's

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James H
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We aren't on anything special on account of those symptoms, just oral antibiotics and modest amounts of the usual supportive vitamin, mineral, and herbal supplements. Nothing exotic.

For me at least B vitamins... particularly B12 seem to be very important.

Right now we are just using minocycline, and having very few problems with it. I
m sure our Dr. will be rotating us through various things over time, but the plan is just orals. (She doesn't even offer IV ABX.)

Facial numbness, strange muscle twitches here and there and that sort of thing seems to be fairly common with Lyme, even recently acquired Lyme. I don't think it indicates advanced disease or serious neurological damage.

A couple of weeks ago my wife had one cheeck so numb that she bit the inside of it and made a big blood blister. But now that numbness has completely reversed. Things like that have come and gone, but none of it has seemed to cause permanent harm. The left side of my face has a partially numb feeling sometimes, but no drooping. Just a strange sensation of numbness. (Right now, for instance.)

Understand we aren't THAT sick with this. All of the other symptoms... achy muscles, sore joints, unexplained fevers, headaches, foggy brain, etc could be just explained away as getting older. Or a touch of flu. Never bad enough to send you to a Dr., or bad enough the Dr. would do anything if you did go.

The neuro stuff on the other hand is strange enough to make one suddenly VERY motivated to find out what was wrong... and be persistant enough to pursue it until we did.

It takes ALOT of hard work and persistance to go from a suspicion you MAY have Lyme to the point of finally having a proper diagnosis and getting treatment.

We managed to figure out what was wrong and get help fairly quickly with minimal medical abuse, with many thanks to kind people here who pointed us in the right direction and kept us out of medical black holes.

Thanks everyone... Again!


Posts: 714 | From San Antonio TX | Registered: Oct 2004  |  IP: Logged | Report this post to a Moderator
IBelieve
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Thanks
Those symptoms are exactly what I have had for the past several months. They finally did start to go away after 4 weeks of IV rocephin.

I also make sure to take B12 and a good multi-vitamin with essential minerals and herbs.

I also have TMJ symptoms that have got somewhat better, but do still persist.

Thanks so much for replying so quickly. All of the people on here are super!


Posts: 48 | From New Hampshrie | Registered: Jan 2005  |  IP: Logged | Report this post to a Moderator
James H
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Be sure to stick with some oral followup ABX for some time after the Rocephin, particularly the 'cyst-busters'... but I'm sure you know that and your Dr. has a plan in place.

The other thing the Dr. we are seeing is doing is looking at alot of different aspects of our health, and doing something about ANYTHING ELSE she finds wrong.

In my case a lab test showed a very low testosterone level, probably induced by Lyme messing with my regulatory mechanisms. I would NEVER have even thought to check for stuff like that, but she is very thorough!

Anyway I was perscribed a gel that soaks in through the skin for this. The effect of getting this hormone back to normal is not so much what one would assume. Most noticably I just feel healthier, with more energy, and more NORMAL again. Not so tired.

Fixing whatever is wrong WHILE being treated even if it is JUST a symptom is very helpful in reaching our goal of... (drumroll) Feeling better!


Posts: 714 | From San Antonio TX | Registered: Oct 2004  |  IP: Logged | Report this post to a Moderator
achey
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IBelieve,
If you are interested in physical therapy for facial symptoms, i can give you referrals to a couple of Pt practices in NH that can help.

I had similar stuff early on...abx helped some, but the IMT(Intergrated Manual Therapy) treatment cleared up all the rest.

Send me an email and tell me where you are.


Posts: 663 | From NH USA | Registered: Sep 2004  |  IP: Logged | Report this post to a Moderator
   

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