posted
I would like to conduct a quick/informal poll of other Lymies. Here are the questions.
1) Age 2) Sex 3) What state do you live in? 4) How long have you had Lyme? 5) How long have been recieving treatment? 6) Where you mis-diag'ed w/ something else before Lyme? What was the diag?
For me: 1) 35 2) Male 3) New York 4) June 2000 5) October 2000 (Doxy) 6) Yes -- Possible ALS
posted
1. 37 2. female 3. Texas 4. unknown - is late stage - chronic (possibly infected as child) 5. 1st abx 11-99 x12 weeks (Zith + Flagyl) Currently on Doxy x6 weeks 6. Since 1985 thought to have CFIDS
*** UPDATE *** 03-18-2002
since this post I have had 8+ months of IV Claforen, oral Zith again, Amoxy, Ceftin, more Flagyl and most recently IV Rocephin for 6 weeks until the PICC broke. Now waiting on a referral for a Central Line.
Am better than I was when I posted during 11/2000 but, still feeling pretty sick and now 2 years older!
Sherry R
[This message has been edited by ponytail (edited 18 March 2002).]
Posts: 704 | From Huntsville, Texas | Registered: Oct 2000
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arg82
Frequent Contributor (1K+ posts)
Member # 161
posted
1. 18 2. female 3. Massachusetts 4. Since July 1997 (although could have been longer) 5. Not currently being treated, waiting for dr. appointment. Treated for nine months before. 6. Migraines, depression, etc.
------------------ Physicians of the utmost fame Were called at once; but when they came They answered, as they took their fees, 'There is no Cure for this Disease.' -Hilaire Belloc
Posts: 2184 | From Rochester, MA | Registered: Oct 2000
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Posts: 1757 | From Somerset County, NJ | Registered: Oct 2000
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once bitten
Unregistered
posted
1. 48 2. Female 3. MA (Cape Cod) 4. at least 10 years, poss 14 5. 4 years, not consistant, 6. sinus, panic/depression, CFIDS at onset of worst symptoms
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[This message has been edited by pb (edited 13 December 2000).]
Posts: 557 | From IN - USA | Registered: Oct 2000
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WildCondor
Unregistered
posted
27 Female New York Had Lyme 12 years Treatment for 1 year Mis diagnosed with Chronic Fatigue Syndrome for 12 years. MUCh better with 8 months IV Zithromax, Flagyl, Bicillin and Hyperbaric Oxygen. Dr. B saved my life!
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posted
My daughter's info 1. 16yrs. 2. female 3. PA. 4. At least 4 yrs. 5. 5 months 6. Yes! Had bilateral knee surgery then told had fibromyalgia.
Posts: 72 | From Greensburg,PA. USA | Registered: Oct 2000
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Chippie
Unregistered
posted
49 female Mass 1 year - possibly more started yesterday yes, after brain tumor was ruled out) menopause, anxiety, stress (rule out br
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posted
My wife: 1) mid-30's (29!) 2) Female 3) NY 4) Since 1995 5) Since 1996 6) No doc wanted to commit to a diagnosis, they just kept handing her over to the next specialist, who also did nothing. The rheumatologist diagnosed "Fibromyalgia" as ALL rheumatologists do; but I define "Fibromyalgia" as Sero-negative Lyme.
Posts: 159 | From Northeast Lyme Limbo | Registered: Oct 2000
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1) 30 2) Female 3) New Jersey 4) Early teen years. Chronic now 5) 5 yrs. Began with IV Rocephin 6) Yes all through life. The main misdiagnosis was "faking" and "stress".
Posts: 572 | From New Jersey | Registered: Oct 2000
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cookie
Unregistered
posted
Hi
1. 55 2. Female 3. NJ 4. Unknown (no sign of bite) 5. 6 months 6. Suprax, Biaxin, Doxycycline previously now on Zithromax 250mg 2x per day 7. Never diagnosed......possible memopause.
posted
Hi c-rob, You should know better than to ever ask a woman her age... Oh' Well, Here it goes! 1.)30, I'm glad I'm sitting down! 2.)Female 3.)Pennsylvania 4.)15 yrs. 5.)Received treatment from May 1999 until April 2000, then I went to Mexico...off of everything since...God Bless American dr.s! 6.)"ms"--when they have no clue WHAT it is--generic, catch-all term.
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MADDOG
Frequent Contributor (1K+ posts)
Member # 18
posted
Hi, Age-45,Sex-Male,State-Ohio got Lyme in Kentucky,how long 16 years,been treated for 10 years,was diag.as riters syndrome,impact arthritus. MADDOG
Posts: 3996 | From Ohio | Registered: Oct 2000
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posted
1. 44 2. female 3. Ontario Canada 4. July 31, 2000 5. August 21st to september 21st, searched frantically for another dr. took a month, back on doxy for 2 weeks when I had a caustic reaction to the med. off meds now for a month 6. Original dr said it had to be something else Whatever.
Posts: 471 | From Lanark, ON Canada | Registered: Oct 2000
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kyra
Unregistered
posted
1) 31 2)Female 3)Contracted lyme in Pawling NY, and again in Virginia along w/ babesia 4)10years - worst last two 5)zith/plaquenil now 6)PVC's, Tachycardia, Anxiety disorder, no explanation for pressure in head, possible ganglion stroke one er visit, Mono, ANYTHING but lyme
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gone2000
Unregistered
posted
hey, female 44 almost 45 in the gray state of maryland found out i have lymes 3 weeks ago on doxy for 3 weeks now been treated for everything in the past 5 years. i just insisted that they test for ld and guess what!!!! probably infected in virginia, ticks were an everyday accurance there as well as snakes. moved to maryland. biten here also, 3 or 4 times this spring and summer. just never thought a tick could due some much damage. probably a co-infection. hope i remembered all your questions.
posted
1) 46 2) Female 3) Ohio 4) 18 years 5) 1 year 6) mitral valve prolapse, manic-depressive, colitis, thyroid disease, artheritis, fibromyalgia, LYME
Posts: 16 | From ohio | Registered: Nov 2000
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lymemom
Unregistered
posted
For daughter:
1)14 2)F 3)Illinois 4)bit approx 8/7/2000 bulls eye approx 8/28 5)Dr diagnos lyme 8/29 - start amoxil 850- 2/day for 2 weeks then immediately started Doxy 100mg/ 2/day for 6 weeks then off everything (she also quit sports and late nights and got lots of sleep) 6)Nope diagnosed based on bulls eye
So far, she is happy, healthy and having a blast as freshman in high school. Really think the extra rest and reduced physical activity was also a large part of her improvement,
posted
1) 51 2) Female 3) PA. Was bitten in Camden County, NJ 4) Since end of May, 1997 5) One year IV; 6 months oral meds, then 8 months no meds, then 90 days orals and 4 weeks IV and no meds for four months. 6) "Too much stress," then fibromyalgia and and then "immune system dysfunction, unknown etiology."
posted
1)37 2) Female 3) IL but bit in British Columbia, Canada 4) July, 2000 5) Mid-August, 2000 (minocin/tini/zith orally and now iv zith and mepron) 6) Flu, don't know, acne on face (even though I didn't have any at the time) causing continued swollen lymphnodes on neck, Mono, stress, depression (even though I wasn't), unknown virus, Encephalitis. Referred to a neurologist and rheumitologist by my infectious disease specialist, but didn't go. I went to a Lyme doctor on my own and was diagnosed with Lyme. Posts: 624 | From Darien, IL USA | Registered: Oct 2000
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posted
could you tell me what is the rationale for the poll? i will give you the information you request before you answer my question:
age----43 sex----Male State----Minnesota howlong had lyme-----1992 treatment-----on and off for first 3 years-i have been on antibotics continously since 1995. with drug holidays during this period, hoping i could be without them!!!! mis dx......they treated for lyme, but when i did not respond to treatment or it came back after a period of good health, then , i got different dx, fibmorlygia(sp), psych dx depression etc....
quote:Originally posted by c-rob: I would like to conduct a quick/informal poll of other Lymies. Here are the questions.
1) Age 2) Sex 3) What state do you live in? 4) How long have you had Lyme? 5) How long have been recieving treatment? 6) Where you mis-diag'ed w/ something else before Lyme? What was the diag?
For me: 1) 35 2) Male 3) New York 4) June 2000 5) October 2000 (Doxy) 6) Yes -- Possible ALS
Posts: 51 | From Minneapolis Minnesota US | Registered: Oct 2000
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posted
1 40 2 F 3 PA 4 10+ yrs 5 3 months 6 Stroke, Thyroid disease,Heart attack, R Arthritis,Lupus,Fibromyalgia, and finally Lyme.
Posts: 30 | From PA | Registered: Oct 2000
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Lynn
Unregistered
posted
1) 39 2) F 3) IL 4) 9/2000 (saw tick bite on 8/31/00, bullseye rash started 9/9/00) 5) 9/2000 (originally given 875 mg Augmentin before diagnosis, went to LLMD who prescribed 100 mg minocycline, 500 mg Ceftin and mepron) Also have babeosis (sp?) 6) No, but had to ask dr. to do lyme test.
[This message has been edited by Lynn (edited 05 December 2000).]
posted
Whole family. Myself 46, wife 31, twin sons 5. From Ohio. Infected more than once. 1 yr. plus treatment for parents, 8 months for children. I was told cfs, mono or something other than lyme by insidious disease people. One brother and his children also have it. 3 other brothers and many friends have symptoms but not tested yet. Ohio is not very kind to it's residents with lyme disease
Posts: 17 | From middletown,ohio, | Registered: Nov 2000
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1. 44 2. F 3. Michigan 4. 7yrs 5. 6yrs. 6. Hospitzlized w/heart probs. many neuro tests also..no diagnosis...never fit any one(that they knew) Son age: 14, 4 yrs. had a rash two weeks after hunting( no tick ever attached and NO tick)( I checked after hunting) Daughter 10 years, diagnosed 2 yrs..believe passed it to her breastfeeding....my symptoms stared within 2 months after I stopped breastfeeding her. She was diagnosed with Pemphigus, which is very rare..It takes a nasty trigger to start this immune system response and how she responded was genetic. My LLMD thought it was time to have her tested too...my worst nightmare came true..two children with Lyme. Since then, my mom has been diagnosed with Lyme too.
posted
Good idea, c-rob! Hope the information will be helpful to many. 1)51 years 2)Female 3)Pennsylvania 4)Have had Lyme for probably 10 years or more -Many physical problems since 1997.5) Was diagnosed in Oct. 1998 and have been on antibiotics since, with a few breaks.Have taken amoxicillin, zithromax, flagyl, biaxin, ceftin, augmentin, cefax, mepron... 6) I saw at least eight drs. before I was diagnosed. Misdiagnosed with thyroid problems and fibromyalgia. I am doing better but my tests this month were still positive for Babesiosis and erhliciosis.
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posted
I am a 44 yr old female living in minnesota. I have had no possitive diagnosis yet. Tests are neg. had only 1 poss. band on 41 western-blot test titer neg. Had a em rash summer 91. was quite ill had total body rash also. dr said was a virus back then my bite was behind knee so dr didn't see it and I didn't know it was anything other than a bug bite at that time. I have developed unexplainable neuro problems in the last almost 4 yrs. Had 1 possible ms diagnosis, 1 not typical looking of ms, vestibular disorder possible by symptoms but does not explain the neuro probs. have received no treatment yet as they say I need a poss test result. trish
Posts: 187 | Registered: Oct 2000
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3) What state do you live in? State of exhaustion and pain... (MA)
4) How long have you had Lyme? Eternity... (12 years)
5) How long have been recieving treatment? BAD TREATMENT?: 11 YEARS of 12 REAL treatment for Lyme?:...1 year FINALLY
6) Where you mis-diag'ed w/ something else before Lyme? What was the diag? YES! Depression (not until going to many drs was I actually depressed but that was my FIRST dx!); possible MS; MS; Chronic Fatigue Syndrome; Fibromyalgia; Mitral Valve Prolapse; Raynauds Syndrome; Thrombosis; Neurological Disorder of Unknown Significance; Sojourns Syndrome; severe sleep apnea; migraine; carpal tunnel; myoclonus seizures. (Please note, some of these could actually be symptoms of Lyme or in addition to Lyme and not actual misdiagnoses). I won't even go into the meds I've been treated w/over the years. The list is as long as your arm ~ and to think, I was into holistic health when this all began, ha! Antibiotics seem to be helping (between herxes and w/help of pain, etc. meds).
[This message has been edited by dawnsrose (edited 19 December 2000).]
posted
Age: 36 Sex: Female State: TN (1st dr said Lyme wasn't in TN) How Long: Found Bullseye Rash on 8/26/00 went staight to dr. Treatment: 3 days doxy 200 mg per day, 4 days doxy 300 mg per day (I insisted dr increase med), stopped doxy (stomach couldn't handle it), 7 weeks 3000mg amox diagnosed: First doctor said it was a spider bite but gave me meds anyway. Got tested after 3 weeks of med and got a Pos ELISA and an indeterminate WB. Even after these test, plus lots of other symptoms including the bullseye rash, and a terrible case of the herx, the TN health dept will still not list me as a positive case of Lyme. NO WONDER SOME DOCTORS THINK THERE ISN'T LYME IN TN
so far no returning symtoms but i am still watching and praying. I can't tell you all how much info I got from you all while I was going through this. You made me aware of how serious this can be and to INSIST that the doctors listen. I hope you all feel better soon! You are in my prayers.
Posts: 4 | From Cleveland, tn | Registered: Nov 2000
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posted
1) Age: 40 2) Sex: F 3) What state do you live in? GA - but contracted Lyme in Easthampton, LI. NY 4) How long have you had Lyme? 14 yrs (13 yrs misdiagnosed) 5) How long have been recieving treatment? 6 wks of IV Rocephin - no help at all 6) Where you mis-diag'ed w/ something else before Lyme? What was the diag? Diagnosed as "Fever of Unknown Origin" and then CFIDS
[This message has been edited by ShafromGA (edited 12 December 2000).]
Posts: 1 | From Marietta, GA, US | Registered: Dec 2000
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quote:Originally posted by meg: 1)49 2)Female 3)Oregon-where I was bit by a tick in my backyard 4) 3 1/2 yrs. 5) 2 1/2 yrs. 6)no commitments-all tests are negative- then finally a LLMD (ha) Luat done incorrectly- hair loss possibly a hormone problem (a woman needing more testosterone?? what's up with that??-told him forget it!) possible nutcase!! 6 "doctors" seen- aren't they wonderful???
Meg, HA HA TELL ME ABOUT IT!
cattycass
Posts: 39 | From Flushing New York USA | Registered: Nov 2000
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Kyriaka
Unregistered
posted
33 Years Old Female State Of Alabama 20 Months Infected Treatment for 14 Months Misdiagnosed As Allergic Reaction To Wolf Spider Bite. Later Misdiagnosed as Depression.
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rhonna_lyme
Unregistered
posted
1.)44 2.)female 3.)Ohio 4.)not quite sure--we think 14 years 5.)3 1/2 years 6.)The list is endless---migraines, allergies, ms, cfids, carpel tennel, tmj, arthritis, depression, anxiety disorder, "all in your head", "you just need more sex"(that was from a male dr, of course!), "some sort of infection", we just don't know what...I thought I was heading for the nursing home...could not function any more...my llmd saved my life!!! 7.)currently on IV zithromax, doxy, and amoxil
------------------
[This message has been edited by rhonna_lyme (edited 21 December 2000).]
posted
Bucko--- You are so right about Ohio not being kind to those with ld!!!!(it doesn't exist here!!--yeah the deer know where the ohio pa border is and don't cross it!)I have to go to PA to be treated. IT has been an up hill battle. Hope all is well with your family. My husband, my son, my sister-in-law, and my in-laws all have lyme. ALL INFECTED IN OHIO!! They have the wool over their eyes here and won't admit the problem. Our support group (greater cleveland area lyme support group) has over 300 members!! [email protected]
posted
1) 40 yr old 2) male 3) NJ 4) 6 yrs 5) just started agian 1 week ago 6) not 6 years ago, but in the last year cluster headaches, migran, sinus, sleep disorder, stress, depression, mantal problems, ect., ect,.ect.....the hole time I've said it was LYME.It was and has come back in full strength.
Posts: 8 | From NJ | Registered: Oct 2000
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kathie santomero
Unregistered
posted
) Age - 50 2) Sex - female 3) What state do you live in? new jersey 4) How long have you had Lyme? 4 & 1/2 years 5) How long have been recieving treatment? 4 years 6) Where you mis-diag'ed w/ something else before Lyme? What was the diag? no but also have babesiosis which was diagnosed 1 & 1/2 years ago after changing dr's. 7. currently on flagyl and zithromax
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kathie santomero
Unregistered
posted
) Age - 50 2) Sex - female 3) What state do you live in? new jersey 4) How long have you had Lyme? 4 & 1/2 years 5) How long have been recieving treatment? 4 years 6) Where you mis-diag'ed w/ something else before Lyme? What was the diag? no but also have babesiosis which was diagnosed 1 & 1/2 years ago after changing dr's. 7. currently on flagyl and zithromax
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posted
1) 19 2) Male 3) Michigan 4) 7 years 5) 6 years 6) gastroenteritis, and a lot of "i don't know's". saw psychologists, they said nothing was wrong with me after other doctors recommended psychologists.
Posts: 9 | From Berkley, MI, USA | Registered: Oct 2000
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posted
age 61,sex female,state la.,dr. states have had lyme over 50yrs misdiagnosis, over many years of just thinking this is how everyone is and the symptoms getting worse and going to the dr. I was diagnosed with restless leg syndrom and later fibro (after asking the dr. if that could be what i had)
Posts: 30 | From sulphur,la. usa | Registered: Dec 2000
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posted
1) Age: 44 2) Sex: Male 3) What state do you live in? Ny, bit in Virginia (also in california, and PA). 4) How long have you had Lyme? 23 years based on rash, or more. First tick when I was 6 followed by hospitalization for "gastro????? of an unknown origin". 5) How long have been recieving treatment? NOT, all tests negative, treated for h-pylori with flagyl, it helped, doxy 60 days, quickly relapsed. 6) Where you mis-diag'ed w/ something else before Lyme? You name it. Ringworm, tennis elbow, polyalthralgia, bladder infection, acid reflux, Irratable Bowel, severe allergies, see a shrink (did once), Mitral Valve Prolapse, H-pylori based on biopsy, Rheumatoid arthritis, possible fibermialgia (because of all symptoms of lyme but negative tests) Posts: 499 | From Western NY | Registered: Dec 2000
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posted
1. 45 2. Female 3. NY or RI, maybe gardening 4. 11+ years 5. depression 6. panic disorder 7. MS 8. Zithromax and Mepron, then doxy 9. Lucky me, I have all three 10. Hyprochriac 11. Stress 12. Pelvic pain 13. Mono 14. At first put on amoxicilin and probenic then IV Rocephin then a cocktail of anti antibiotics. 15. Arthritis 16. A support group recommeded an LLMD who did nothing but put me on Biaxin. 17. I saw a psychiatrist after being by anothener who saved my life, but only diagnosist me with Lyme at the time, they didn't know about the coinfections then. 18. How many doctors? To many so I can't count them. 19. I was comitted to two psychiatric wards before I was diagnosed. 20. The first psychiast told my PCP to test me...positive. 21. Nothing else at the moment that I can think of.
Posts: 1 | From DAWSON SPRINGS, KY | Registered: Aug 2013
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posted
Age 46 Male had lyme for 12 years I think First Doxy,then Flagyl and zithromax Quinine and clindamycin For Babs, amoxicillin Treated since april, Real treatment since Sept Possiable MS,Lupus,and Cancer
[This message has been edited by Appleseed (edited 26 December 2000).]
posted
1) 36 2) Female 3) CO now, contracted Lyme in NJ 4) 11 years - asymptomatic for 10 year after brief abx 5) 1 year 6) Doctor couldn't figure it out - so I was crazy! LD dx Jan 2000.
Posts: 188 | From Highlands Ranch, CO | Registered: Oct 2000
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posted
40 Female Maryland, Eastern Shore treatment completed, gone for good I hope almost two years, primary refuses to admit says depression, fibromyalgia, now added arthritis. but treated By Dr. S he says LD Posts: 158 | From Salisbury, Maryland | Registered: Oct 2000
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posted
1) 41 2) Female 3) MI 4) Totally unknown - Received positive result for Babesiosis today. 5) None yet 6) FMS, Possible MS Posts: 323 | From Michigan, USA | Registered: Oct 2000
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breathwork
Frequent Contributor (1K+ posts)
Member # 567
posted
1) 42 2) F 3) CA 4) 5 5) TX with doxy for 5 weeks in Virginia, then moved to CA. Took a year to find Lyme doc. Then treated with zith, minocycline, flagyl. Starting IV ceftriaxone this month. 6) "Housewife's disease" Posts: 1062 | From CA USA | Registered: Jan 2001
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lymie31
Unregistered
posted
[QUOTE]Originally posted by sas: [B]1) 31 2) Female 3) Northern Virginia 4) bit oct 99 5) on abx 8 months now 6) vestibular disorder, possible meniere's
5) Length of treatment a long story. Was on tetracycline at time of bite and for 2.5 years aferwards, for acne. I didn't know I had Lyme. Lived a normal life. Went off tetracyline, within 6 months was unable to work or drive. That was in June of 1999. Debember 1999, figured out this was Lyme, back on tetracyline.Did nothing for me, except give me an initial herx. Switched to high-dose serious abx in February 2000, still on them nearly one year later.
6) Originally investigated for MS. Sent to neurologist. Neurologist found brain lesions on MRI, but normal spinal tap and evoked potentials. Diagnosis: NUT (probably making up all these symptoms).
posted
1) Age = 28 2) Sex = Male 3) State = NC 4) Had Lyme for = 10 Years 5) Treatment = 1 1/2 Years (Doxy, Zithromax, Flagyl, Biaxin/Plaquenil) 6) Mis-diags = Rare form of Leukopenia, Spinal Meningitis, RMSF, etc...
Other info:
7) Travel out of state for treatment = YES 8) Co-infections = Ehrlichia
Nelson
Posts: 58 | From Morrisville, NC | Registered: Nov 2000
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posted
1. 48 2. Female 3. Virginia 4. 20 mo. 5. 20 mo. 6. No misdiagnosis, thanks to the info I found on this board! I found the tick on me, sent it to Igenex Lab (tested positive for lyme DNA), and took the test results and detailed log of all symptoms to my Infectious disease doc along with a pile of research gleaned off this board and sci.med.diseases.lyme. After continuing to worsen over a couple of months on the usual doxy then amoxicillin, the research & my continuing symptoms persuaded my doc that lyme may persist and that we needed to treat the various Bb forms simultaneously (on tinidazole, zithro, suprax, & plaquenil). I began gradually improving once we did so, and have only a few symptoms left, none serious or very troublesome.
Posts: | From East Bay | Registered: Jul 2013
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posted
1. Age 55 2. Sex Male 3.California 4. 11 years 5. 2 weeks of doxcycline 6. I made the worst call my self back in 1989 2 big red circle rashes on the right thigh that I called ringworm... time goes by and people get older many different health events nobody got it till now. I went to the doctor and said "something is eating on mt" he said "you should consider lyme" thus the doxycycline...
Posts: 8 | From California | Registered: Dec 2000
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6) Where you mis-diag'ed w/ something else before Lyme?
Yup!*)!!
What was the diag?
Irritable Bowel Syndrome, PMS, Fibromyalgia, possible lupus, possible MS
Posts: 2641 | From Aptos, California | Registered: Oct 2000
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Betty
Unregistered
posted
Betty: 1. 58 2. Female 3. MA 4. 29 years or more 5. April 1997, Last 6 months on IV 6. Stress, AIYH--All in Your Head, Arthritis, Bursitis, AIYH, Depression, etc.
Daug. Lisa: 1. 33 2. Female 3. MA 4. At least 2 years, most definitely longer 5. 4 days 6. You don't have lyme!!!!!!!
Daug. Amy 1. 20 2. Female 3. MA 4. 6 years, most definitely longer 5. 30 days in 1995, abx since June 2000 6. You don't have lyme!!!!!!!
posted
Whoops!*! -------------------------------------------------------------------------------- My Daughter Evan!*)! 1) Age 3 2) Sex Female 3) What state do you live in? California!!! 4) How long have you had Lyme? Soon 3 years. 5) How long have been recieving treatment? 2 years. 6) Where you mis-diag'ed w/ something else before Lyme? Nope!
My Husband Aram -------------------------------------------------------------------------------- 1) Age 35 2) Sex Male 3) What state do you live in? California!!!
4) How long have you had Lyme? Unknown.
5) How long have been recieving treatment? Only a few months. A while ago.
6) Where you mis-diag'ed w/ something else before Lyme? Nope!*)!
Posts: 2641 | From Aptos, California | Registered: Oct 2000
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3. Live in Minnesota/ bit with bulleye rash in Jackson Hole, Wyoming
4. July 1989
5. No treatment, I slip through the cracks.
6. Yes--MS/ Panic Disorder/ Lupus/ Migranes/ Stress, stress, and STRESS/ PostPardum Depression & Hormones/ and most recently, hyperflexibility of joints & being over weight. (5'6" 180 pounds) Still no DX, even though I am quite symptomatic & had the bullseye rash..not enough bands on WB...and so the story continues...
Posts: 15 | From Virginia, MN 55792 | Registered: Dec 2000
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rosespetal
Frequent Contributor (1K+ posts)
Member # 571
posted
1)27 2)f 3)NJ 4)2-5 years 5)1 yr of treatment until allergies 6)yes, manic depressive,drug addict(begged for something to calm nerves before I commited suicide), hypochondriact. NOW after testing, no lyme from 3 weeks of treatment, fibro now.
Chazmyn
Frequent Contributor (1K+ posts)
Member # 204
posted
1)38 2)F 3)AL 4)20 months 5)17 months 6)Although known tick bite and bullseye rash was told "no lyme here" and would have to be treated for "something else".
CNS symptoms, pain & inflammation in majority of joints, heart problems, Bell's Palsy, plus many others.
[This message has been edited by Chazmyn (edited 08 January 2001).]
posted
1. 41 2. female 3. ct 4. bitten may of 1996 5. treated for 3 years, recovered for 1 Posts: 1 | From wilton, ct, usa | Registered: Jan 2001
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posted
My son's information 1) 14 2) male 3) Staten Island, NY 4) Almost 5 years and counting 5) Almost 4 years 6) Mis-diagnosed w/ EBV and Toxoplasmosis
My husbands information 1) 50 something 2) male 3) Staten Island, NY 4) Don't know 5) 1 year 6) no- he would not go for the lyme testing said he did not have Lyme disease. Now he knows better.
[This message has been edited by RosanneG (edited 13 January 2001).]
Posts: 26 | From Staten Island, NY, USA | Registered: Oct 2000
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posted
1) Age-43 2) Sex-F 3) What state do you live in?-Illinois 4) How long have you had Lyme?-12yrs.?? 5) How long have been recieving treatment?-Since 1998. 6) Where you mis-diag'ed w/ something else before Lyme? What was the diag? Fibromyalgia, depression, Chronic fatigue
Boyfriend 1) Age-51 2) Sex-M 3) What state do you live in?-Illinois 4) How long have you had Lyme?-???? 5) How long have been recieving treatment? Since 2000 6) Where you mis-diag'ed w/ something else before Lyme? What was the diag? Arthritis, tendonitis
Posts: 7 | From NE USA | Registered: Jan 2008
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