quote:

---

Originally posted by ponytail:
1. 37
2. female
3. Texas
4. unknown - is late stage - chronic
(possibly infected as child)
5. 1st abx 11-99 x12 weeks (Zith + Flagyl)
Currently on Doxy x6 weeks
6. Since 1985 thought to have CFIDS

---

1)28
2)male
3)New York (long island)
4)Hospitalized with 'mono' in 1996 (although tests were negative) downhill from there. Contracted this from me.
5)No treatment yet, seeing LLMD on friday
6)Chronic EBV then CFIDS. Also disabled.

quote:

---

Originally posted by heckyeah:
1) 27
2) Female
3) New York (long island)
4) "spider bite" in '93... 7 1/2 years.
5) Low dose treatment of doxy showed improvement but no Lyme treatment yet, seeing LLMD this friday.
6) Diagnosed with sinus infection, depression, anxiety, periosteitis, stomach ulcer, stress.. finally Fibromyalgia and CFIDS in '96 when totally disabled.

---

1) 41
2) Female
3) Michigan
4) Unknown - Positive for Babesia; most probably also Late Stage LD
5) Begin next Monday as Pharmacy didn't have Mepron or enough Zithro.
6) RA, OA, FMS, IBS, Early Pre-Meno (without hormone changes), Vertigo, Ulnar Neuropathy, Possible MS

1. 11
2. Female
3. Live in Pennsylvania
4. Had lyme since Oct 1999
5. Originally treated for 3 weeks with duricef for "tonsillitis". After I remembered the "black itchy scab" and "ringworm rash" from October 1999, doctors said "how fortunate that she was treated with 3 weeeks of duricef, it cured her because her tests are negative" (yeah right). Has been taking ceftin and biaxin since Dec 19, 2000.
6. Diagnosis (in order) - Viral meningitis, Tonsillitis (had a tonsillectomy), Irritable bowel syndrome, conversion disorder, neuromuscular pain caused by psychological stress, Tachycardia, Chronic fatigue syndrome, osgood-slaughter syndrome, sinusitis, impetigo, occipital headache and finally Lyme.

son:
1) 8
2) male
3) PA
4) ?
5) 6 months
6) allergies

wife and daughter to be tested

Cheryl - Daughter
1. 26
2. Female
3. New Jersey
4. 11 yrs.
5. 5 yrs. IV Rocephin & Orals - No Ins. now
6. Yes - Ringworm

quote:

---

Originally posted by c-rob:
I would like to conduct a quick/informal poll of other Lymies. Here are the questions.

1) Age
2) Sex
3) What state do you live in?
4) How long have you had Lyme?
5) How long have been recieving treatment?
6) Where you mis-diag'ed w/ something else before Lyme? What was the diag?

For me:
1) 35
2) Male
3) New York
4) June 2000
5) October 2000 (Doxy)
6) Yes -- Possible ALS

---

2.female

3.Minnesota

4.16 yrs.

5. no treatment yet (soon)

6. yes ring worm (test neg.)

1. 44
2. Female
3. California
4. 4 years 3 months
5. 9 months
6. meninigitis, migraines, migraine related seizures, pseudoseizures, don't know what it is, need psychiatric help, stress, lupus, getting older, too busy, not busy enough.

Me-1.47 2.Female 3.Kansas 4.probably well over 10 years. Last June got yet another tick bite with bullseye. 5.Since last Oct.
6.My family doc told me I needed to stay off of the internet, and there was no Lyme in KS.

Husband-1.45 2.male 3.KS 4.probably over 10 years. He's suspecting early childhood 5.hasn't got a DX. but on ABX since FEB.2002

son-1.9 2.male 3. KS. 4.probably since 2 yr old 5.Since Jan. 6.ADHD,CAPD,Autism,OCD,Tourettes,Fibromyalgia, Cerebral Palsy

daughter-1.16 2.female 3.KS 4.since last June 5.Since Jan. 6.spider bite

YOU MADE ME 2 YEARS YOUNGER!!

1) 15
2) Female
3) OREGON
4) Possibly born with it, at least 10 yrs though.
5) 8 1/2 months, lot of different drug combos, currently on only zithromax 250 2x a day
6) YES ----> fever of unknown origin, viral syndrome, flu syndrome (good one huh?), depression, juvenile rheumatoid arthritis (no factor), chronic fatigue syndrome, fibromyalgia, hypochondria......some others but I can't remember right of the top of my head.
Also have suffered from migraines, mitral and aortic valve defects, (born with those however, may not be lyme) heart failure (which the cardiologist whose worked with me from birth said was NOT caused by the defects), brain tumors, learning disabilities, swollen heart and lungs, seizures, hypoglycemia...

Anyway..there ya go..see ya all later and take care

------------------
Lishka

[This message has been edited by Amareo (edited 18 March 2002).]

Thanks,
Greenman

quote:

---

Originally posted by getwired:
1) Age = 28
2) Sex = Male
3) State = NC
4) Had Lyme for = 10 Years
5) Treatment = 1 1/2 Years (Doxy, Zithromax, Flagyl, Biaxin/Plaquenil)
6) Mis-diags = Rare form of Leukopenia, Spinal Meningitis, RMSF, etc...

Other info:

7) Travel out of state for treatment = YES
8) Co-infections = Ehrlichia

Nelson

---

[This message has been edited by smileypl (edited 18 March 2002).]

2. NJ (south)

3. 15.5 years (since i was 10)

4. treated by morons july2000-mar2001

great llmd march2001-present

5. age 10-12 diagnosed as stress, faking, drinking to much ice tea blah blah

[This message has been edited by Marnie (edited 21 March 2002).]

Husband:
41
Male
Western, NY
Bitten by tick in VA in 1987
Started treatment jan. 2002
Told to have Chrones, Irr.Bowel Syndrome,Back Disease,(stenosis)MS, Lupas etc.

Daughter:
age 6
female
Western NY
from birth ?
Started treatment jan. 2002
Dx with having UTI's, Scarlet fever, Ecoli bacteria, Sugar, Faking for attention

quote:

---

Originally posted by c-rob:
I would like to conduct a quick/informal poll of other Lymies. Here are the questions.

1) Age 37
2) Sex female
3) What state do you live in? Kentucky
4) How long have you had Lyme? 18 months
5) How long have been recieving treatment? 18 months
6) Where you mis-diag'ed w/ something else before Lyme? What was the diag? No, but I had to beg the doctor to test me. I also had to change doctors when he refused to treat me for symptoms after I received my antibiotics.

For me:
1) 35
2) Male
3) New York
4) June 2000
5) October 2000 (Doxy)
6) Yes -- Possible ALS

---

My Dogs:
1. 1 year and 4 1/2yrs
2. F.
3. NH
4. ?
5. One month
6. No, My Vet is Wonderful.
I believe my last 3 dogs may have died of lyme disease.

My Mom:
1. Age
2. Female
3. NH
4. We believe over 10 years.
5. Less than one month. Doxy.
6. Dx with FMS, Lupus, Osteoarthritis, Sjogrens Syndrome, Macular Degeneration not age related but caused by lyme (dr. did 3 lazer surgeries and should not have and now has permantely damaged her eye, she is now blind in that eye)hope this helps someone else that may be having the same problem with their eye, and the list goes on.

quote:

---

Originally posted by c-rob:

1) Age
2) Sex
3) What state do you live in?
4) How long have you had Lyme?
5) How long have been recieving treatment?
6) Where you mis-diag'ed w/ something else before Lyme? What was the diag?

---