I am trying to figure out if it's just me as I have high 1,25 D levels and get weaker and have spells of dizziness/heart arrythmmias/chest pain spasms after being in the sun for any length of time. Also sweating and nausea at times.

I am trying to figure out if this is a herx or Candida die-off or Sarcoid sx.

Always begins for me in the Spring and Summer.

Anyone?

Thanks!

Lyme can apparently trigger autoimmunity, so many would not say that this autoimmune activity is anything but Lyme w/this manifestation.

I have to wear sunblock (Neutrogena wtitanium dioxide) and long sleeves. Driving can be a real problem, and I also cover my hands.

Good luck!

I was in LA at the time and seeing a very good Lupus Dr. He gave me a med pac trial which I felt better on, but later said the problem was either infectious or endocrine.

Then the infectious disease Dr. did every test in the book and thought I was crazy (with the panic attacks and all!). He finally did a Stonybrook test which was indeterminate and I came home to my parents in Upstate NY where I am now.

Finally seeing an LLMD who thinks it's chronic Lyme, and I am weighing my options regarding abx.

Thanks!

The past 2 summers have been brutal. If I'm in the sun too long ( longer than 15 minutes ) I get heat stoke. Dizzy, Brite red face, vomit.

Also I wear really dark glasses all year.

So far this year no symptoms. Even on vacation in Calif, Nevada and Arizona.

can't tell though if it's the sun- as I've also switched ABX-

It did occur to me however that the sun could have played a role-

thanks for asking this question-

Sarah

So does my wife's lymie aunt in CT.

This led me to discard the Marshall protocol theory entirely.

If my joints are going to swell they do it in cold weather and that 'nip' in the air that many of you cherish drives me inside and turning the thermostat up to 80.

I couldn't stand it anywhere but the sunbelt.

No you are not alone. I also have a positive ANA and it is speckeled. Went to Rheumi who said it wasn't Lupus, couldn't give it a name, said there were so many autoimmune type things, he may never be able to give it a name. Never went back as he didn't have much to offer me.

He suggested Plaquenil at the time, but i didn't take it. Now since I have been on this board and see it is used for Lyme, I sometimes think maybe it may help with my symptoms.

I have just learned to avoid sun as much as possible. I have to wear long sleeves in summer/spring and wear sun block and sunglasses and try to limit exposure time. Even in the car it bothers me. So........vacations are out for me!!!

This all started about 3 years after being diagnosed with Lyme. have had Lyme for about 13 years. Anitibiotics help,but never take it fully away for me. I am going to try and lessen my vitmain D intake to see if it will help. I do eat a lot of dairy.

For me the sun is my # one enemy, well that and MCS. The sun makes me very ill, i get dizzy, nauseous diahreah, shakey feel like I will faint or die when exposed to sun. Sometimes I break out in rashes when in sunlight just for minutes, othertimes no rashes but feel like death.

My symptoms are definately much worse during these months.

I love rain, gloom and darkness, I feel much better.

It makes my spring and summer a nightmare. Some summers/ springs are worse than others. I have a lot of sensitivity to lights as well.

If you want to talk more, feel free to email me. I know this is a tough symptom as these months are getting into full swing.

The sun causes terrible anxiety/panic issues for me as well.

Good luck, hope this helps. Barb

Heat kills lyme, period. You could actually simply herx from the heat and the sun.

On top of that, with the symptoms you described that you get in the heat, theres a very high chance your blood pressure is

not donig what its suppossed to do ( maintain itself- very common deficit among lymmies) under heat.. Read up on orthostatic hypotension or Neurally mediated hypotension and see if that fits your symptoms in the heat.

If you want to have some fun, look up the search words "sun AND immune AND suppression" on PubMed. Leave the quotation marks out, but AND or any MESH terms need to be capitalized.

You will find 18 pages of references, most of which document the suppressive effects of sun (UB) exposure on the immune system. This means it's probably not a good idea to soak up the sun while one is fighting a chronic infectious disease.