Thanks for your replies everyone...and let me clarify...I'm not happy that we are in this club...I am happy that all of my suspicions were proven true by the IGeneX result. Since receiving them, I have been replaying in my head, the standard lines that I've heard from my local doctors: ``Doctor's comment'' (my symptom)
``It's Stress'' (Headaches)...''It's probably your workplace environment'' (Spinal pain/Carpel Tunnel/vision)...''Possible Ulcer'' ``Acid Re-Flux'' (Digestive issues)...''Pinched Nerve'' (Spinal Pain/Sciatica)...''Epididymitis'' (Testicular Ache)...''Possible Auto-Immune'' (occasional face reddening). ``It's just a headache'' (Encephalitis/migraine) Etc. etc.
Half of me wants to send a SCATHING email to them...or something along the lines of advice NEVER to rule out a Lyme type of bacteria, as a couple did.
The one that REALLY burns me is: ``It's not endemic to Georgia!''
My response (to myself of course): ``I got your endemic...RIGHT HERE you $#&*%@& !!!''
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Linda LD...I am actually driving to Dr. J in NC, but am under the care of C.R. Whom I like VERY much and would recommend to anyone.
Ila2......Thx for the clarification on the IGeneX +++'s
Janet......I think I'm on a combo pulse regimen:
Mino/Zithro for 3 weeks, then off 1 week
Mino/Zithro for 3 weeks and add Flagyl for that 3rd week, then off 1 week
Septra/Zithro for 3 weeks and add Flagyl again in the 3rd week, then off.
That's all that's laid out for me currently...will do follow-up appt. that last off week.
Cbb....I am not sure if we'll ever be able to tell if it's STARI/Master's vs Lyme. If we were to base it on region/location and severity of symptoms, then I would agree that it is, or could be STARI. I would like to know though. I'm not happy to hear that STARI takes longer to get rid of! But I'd rather have that, with the mild symptoms than the opposite, like a lot of our northern friends seem to have.
I had titers that showed slight positive for Babs IgG (1:40), and the Ehrlichiosis IgG was right on the borderline of (1:40).
I think the 5 weeks of Doxy I was able to scrounge from my local Drs in Dec/Jan may have helped knock those down a bit.
Thanks again everyone I appreciate your advice and support. I sleep easier at night knowing you all are out there!
[This message has been edited by Bill ATL (edited 02 May 2005).]