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» LymeNet Flash » Questions and Discussion » Medical Questions » hydrocortisone and fludrocortisone

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Author Topic: hydrocortisone and fludrocortisone
bugabooboo
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How many of you are taking the above?

Have you noticed improvements and what are they?

These are part of my LLMD's protocol.

Sometimes I wonder if I need them.


Posts: 343 | From Northcentral Iowa | Registered: May 2005  |  IP: Logged | Report this post to a Moderator
Foggy
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6 Mgs of Cortef daily. No side effects to speak of and I have noticed an increase in energy, temp, and a decrease in dehydration and thirst.
Posts: 2451 | From Lyme Central | Registered: Aug 2001  |  IP: Logged | Report this post to a Moderator
Lymetoo
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I take the hydrocortisone also....10mg per day. That is a very low dose. If your adrenals are not producing enough, you will have more pain, fatigue, nervousness, etc.

It has helped me the most with pain, I would say.

The fludrocortisone I couldn't handle. I got ravenously hungry [mostly for sweets and carbs] and I just couldn't take it. YUCK! I hate being constantly hungry!

The fludro helps raise BP [which I needed]. I can't remember the other things it does.

Your LLMD is ordering these for you based on your test results. So he feels you need them. Still, it's your choice.

------------------
Do not take anything I say as medical advice. I am not a doctor, but I DID stay at a Holiday Inn Express!
oops!
Lymetutu


Posts: 96222 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
mjbucuk
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Both are considered sterioids.
I take fludocortisone (florinef) to help me with my Chronic Fatigue Syndrome. It helps increase blood volume & raise blood pressure. Generally used for orthostatic hypotension. Do you get dizzy when you stand up? Some doctors prefer to use Midodrin (spelling?) instead.

Hydocortisone --- I would specifically ask your doctor why they are giving you this. I thought it was generally contraindicated in Lyme disease. If it is being used to reduce inflammation, perhaps they may consider using something else instead.

DISCLAIMER I am not a doctor, so the above is just my opinion as a "lyme mom".


Posts: 758 | From now TX | Registered: Mar 2001  |  IP: Logged | Report this post to a Moderator
Foggy
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L2, welcome back! How you feeling Ole girl? Glad to see you're out of the duck pond, unscathed.
Posts: 2451 | From Lyme Central | Registered: Aug 2001  |  IP: Logged | Report this post to a Moderator
Foggy
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MJ, ironically I'm taking HC(yes, a steroid) as steroids like Prednis screwed up my adrenals. Get the pix?

LLMD approved the HC.


Posts: 2451 | From Lyme Central | Registered: Aug 2001  |  IP: Logged | Report this post to a Moderator
bugabooboo
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Well I've got some new info on fludrocortisone. Probably won't affect many of you however,

I had a bowel resection and appendectomy last month. In the past few weeks since surgery about every other day my surgical site was swollen and painful and I felt yucky! (I take Fludro 3 x's weekly)

Today I got my drug book out to read on these meds again and guess what? It is to be given "cautiously" in patients among other things "fresh intestinal anastomoses". I have been so very anxious on these days thinking my surgery was not healing correctly.

This was a happy find for me.


Posts: 343 | From Northcentral Iowa | Registered: May 2005  |  IP: Logged | Report this post to a Moderator
   

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