Posts: 343 | From Northcentral Iowa | Registered: May 2005
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Foggy
Frequent Contributor (1K+ posts)
Member # 1584
posted
6 Mgs of Cortef daily. No side effects to speak of and I have noticed an increase in energy, temp, and a decrease in dehydration and thirst.
Posts: 2451 | From Lyme Central | Registered: Aug 2001
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posted
I take the hydrocortisone also....10mg per day. That is a very low dose. If your adrenals are not producing enough, you will have more pain, fatigue, nervousness, etc.
It has helped me the most with pain, I would say.
The fludrocortisone I couldn't handle. I got ravenously hungry [mostly for sweets and carbs] and I just couldn't take it. YUCK! I hate being constantly hungry!
The fludro helps raise BP [which I needed]. I can't remember the other things it does.
Your LLMD is ordering these for you based on your test results. So he feels you need them. Still, it's your choice.
------------------ Do not take anything I say as medical advice. I am not a doctor, but I DID stay at a Holiday Inn Express! oops! Lymetutu
posted
Both are considered sterioids. I take fludocortisone (florinef) to help me with my Chronic Fatigue Syndrome. It helps increase blood volume & raise blood pressure. Generally used for orthostatic hypotension. Do you get dizzy when you stand up? Some doctors prefer to use Midodrin (spelling?) instead.
Hydocortisone --- I would specifically ask your doctor why they are giving you this. I thought it was generally contraindicated in Lyme disease. If it is being used to reduce inflammation, perhaps they may consider using something else instead.
DISCLAIMER I am not a doctor, so the above is just my opinion as a "lyme mom".
Foggy
Frequent Contributor (1K+ posts)
Member # 1584
posted
L2, welcome back! How you feeling Ole girl? Glad to see you're out of the duck pond, unscathed.
Posts: 2451 | From Lyme Central | Registered: Aug 2001
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Foggy
Frequent Contributor (1K+ posts)
Member # 1584
posted
MJ, ironically I'm taking HC(yes, a steroid) as steroids like Prednis screwed up my adrenals. Get the pix?
LLMD approved the HC.
Posts: 2451 | From Lyme Central | Registered: Aug 2001
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posted
Well I've got some new info on fludrocortisone. Probably won't affect many of you however,
I had a bowel resection and appendectomy last month. In the past few weeks since surgery about every other day my surgical site was swollen and painful and I felt yucky! (I take Fludro 3 x's weekly)
Today I got my drug book out to read on these meds again and guess what? It is to be given "cautiously" in patients among other things "fresh intestinal anastomoses". I have been so very anxious on these days thinking my surgery was not healing correctly.
This was a happy find for me.
Posts: 343 | From Northcentral Iowa | Registered: May 2005
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