Glad you can come here to Rant. We all need that!

I think you need an opinion from a doctor who knows something about Lyme disease. I hope you can find one.
Ann-OH

[quote]
RANT: Just got home form neurologists. I didnt feel well when I arrived and had to wait 1.5 hrs for appt. one doc out ill.

I started to get numbness of arms and face, exhausted to begin with, freezing cold hands, feet but the rest of me felt like I had low grade fever. started crying and they gratiously put me in an exam room until seen by doc.

I ssaid I wasnt going to cry going inot office but I always do. I'm afraidn if they see me crying they will dubb it as middle age hysterics.

So just left docs and feel like he was insuinuating it might be in my head otr at least it was a possbility

...basically said not to get caught up in Lyme stuff, exercise, go for walks and asked if I've ever been hospitalized or treated for depression.....

now I know psychosocail assessment is a must in a visit.

I told hime I wasnt presenting in a neat package...all my tests including WB, MRI negative and I didnt want to have to prove myself.

He said nothing he could do now...said I could dbl up on doxy whcih I did already and try it for 1-2 months and if no imp0rovement start on antidepressaqnts.

I mean who wouldnt be DEpressed feeling so ill? I'm incrediable upset.

Exercise... when I can barely walk to mailbox without heart palpitations....
[end quote]

There, that made me feel better too.I remember my early days,could barely make it to the shower and then,back to bed.How can you exercise when you can hardly blink your eyes?

No, you are not nuts,he is and so is most of the medical community when it comes to Lyme.

Exercise,I wanted to exercise my self expression on my internist years ago,slug him,that is after he told me to quit reading the web.Gee he said,I could convince myself into having a brain tumor,after reading all of the medical journals that were required for med school.

Do you have a way of getting an LLMD?Sounds like that is who you need.

I know,I almost got down on the floor in one office and wanted to cry and flop around but hubby came at the right moment,or I would have been on the Hill(as they call it in my town).

So ,I quess,until you can get medical attention from a LLMD,you may be passed around,going from duck to duck like the rest of us.

Remember,the ride can be rough.I think most of us do experience the bummers,in dealing with that issue????I tried meds but then opt out of them and went herbal and other avenues.

Rant all you want here.My golly,let it out,that is why most us us are here too,dealing with the same sort of senario as you.

Seek family help,friends,tell them how sick you are,get a helping hand now and then one day you can return the favor.

When I continued to try and explain thigs to him, he whipped out a pin and started stabbing me with it in my arms and legs and hands and bottom of feet. He stabbed my so hard I was crying by the end.

I understand that pins are used to diagnose, but he had *already* done the pin thing so there was no point in him doing it again and so hard except to be mean.

You are not crazy. The medical system is crazy. And remember you are not alone.

Not nuts at all.

My first Lyme symptom was foot numbness, and the MRI showed nothing.

9 years and 13 specialists later, I finally got diagnosed and treated for Lyme.

I'm too new to have any success to offer, but just to say, you're not alone in either symptoms or feelings.

Andie

The only thing I can tell you is this...focus...on ALL positive things in your life...AND the most important thing to FOCUS on is ....getting an LLMD...damn the rest to he**.

Sorry...but...you've got to draw a line in the sand and do NOT allow those that stand in your way to change your course of action.

Trout

PS....You deserve to feel depressed and abondoned at this time ...you deserve it. Now....allow yourself to express theese emotions...don't bury them, and then MOVE forard....win....beat this thing. I know YOU can.

You didn't hear this from me, of course, but here's one possibility: with all that acne you probably have, or will have in the near future, you might want to visit a dermatologist. There are two wonderful drugs for acne, doxycycline and minocycline, that are often taken for years at a time with no problem. Minocycline can have side effects, but it's the stronger drug, and it also helps control bartonella. Also, there's two terrific supplements called theanine and bromelain that can help with inflammation, which causes some of the very emotional ups and downs you describe.

when it comes to lyme diseases, and other tick-borne infections,there is NO LIMIT to the mental, and, if they deem necessary, physical sadism, that they will inflict on a person devastated by TBDs. they will brook no dirty trick, no matter how cruel, in the service of what they deem their agenda to be, w/rt diagnosing and treating lyme dis. and other tick-borne diseases.

Of course this statement does not extrapolate to ALL physicians, but does significantly apply in the event that one is seeking a diagnosis and treatment for lyme dis. and other TBDs.

i've worked in the healthcare field in several capacities, a including care-giving capacity, and in my experience i've NEVER seen the kind of treatment people with tick-borne infections get,in other kinds of patients, including very bad,low-life, dirt-bag people, that is deliberately, pre-meditatively inflicted on those with TBDs.

And, too often, this conduct,reprehensible in the exteme, is NOT a mistake, NOT a diagnostic misunderstanding on the part of providers,' et.al.
In my experience, and that of innumerable many, too often, it is a well thought-out, actuarially calculated institutional policy of healthcare. an early death is a cheap death.

i strongly urge you to have someone with you at all times,including the exam room. make detailed notes on your visits.

its just this bad.

[This message has been edited by pq (edited 24 August 2005).]