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» LymeNet Flash » Questions and Discussion » Medical Questions » tini users

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Author Topic: tini users
johnlyme1
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Member # 7343

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How many of you have used this med? Wish for your experiences - What kind of dose you took. side effects
thanks

Posts: 582 | From milwaukee wi | Registered: May 2005  |  IP: Logged | Report this post to a Moderator
Virginia of Yore
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I've been on tinidazole for years (along with combo of other abx), to help fight the cyst forms of Bb. I think it's safer longterm than flagyl (which I had used previously for 7 mo., and got some periph. neuropathy toe numbness as side effect which has improved but never gone completely.) No problems with it, 1500mg daily total, three pills. I take two in the AM, one in PM, and do my vitamins/supplements at lunch and some extra calcium and magnesium before bed, two hrs. after meds. You can get it hand-compounded or as Tindimax brand, now out on the market.
Posts: 193 | From Virginia | Registered: Oct 2002  |  IP: Logged | Report this post to a Moderator
islandgirl
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I have been on ketek/flagyl for several courses now, and it has made a tremendous difference to my health. Still have lyme, but am much improved.

I recently ran out of flagyl and had some tini left, so I substituted it. Oh my, my stomach cramped so badly, and very, very much nausea-feeling. I got a major dizziness in my head, plus a huge flush, started crying because I got dis-orientated....all within 3 minutes of taking it. Tried it twice more, with the same problem.

So I went back to the flagyl and all this stopped. So, even thou most people do not tolerate flagyl, I find it to be a great drug. Its expensive replacement, tini, did nothing for me except grief.

Just shows to go, how different we all are. And I absolutely hate the position we are all in, trying to decide which drugs, on or off drugs, supplements, etc. (This will have to be another post!)

Good luck to you

Posts: 190 | From BC Canada | Registered: Jul 2004  |  IP: Logged | Report this post to a Moderator
johnlyme1
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Thanks for the Info - I have been on this 3 days now - yes there is dizzyness for me and a pretty stong headack
Posts: 582 | From milwaukee wi | Registered: May 2005  |  IP: Logged | Report this post to a Moderator
StuckonLyme
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My main problem i had from it was deppresion and numbness but i think the deppression was from die off of those little critters. Was on it for a moth and probably will end up on it again sometime.
Posts: 82 | From Northeast WI | Registered: Oct 2005  |  IP: Logged | Report this post to a Moderator
   

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