posted
Does anybody here have any experience with this? The neurologist, who I got in to see on my own, without a referral is following up with a 24 hour EEG. Then what? What's it all mean? It means I have neurological LD, right? What treatment is good for this? I'm having lucid dreams/delusional thoughts.
HELP! I don't go back to the neurologist until January 11th, and I have an appt with Dr. J.J. on January 17th.
Posts: 37 | From Jamestown, NY | Registered: Oct 2005
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posted
Yes, me too. Abnormal EEG. I assume it means neuro lyme. Had two petit mal seizures early in treatment. None lately. Had babs and lyme and mycoplasma. Think babs might be gone now.
Posts: 8430 | From Not available | Registered: Oct 2000
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johnnyb
Frequent Contributor (1K+ posts)
Member # 7645
posted
My EEG came back "mildly abnormal," which my neurologist attributed to my migraine headaches. This was before my WB came back pos for lyme. Being tested now for babs. Neuro and cardio symptoms predominantly. Been having vivid dreams / horrible nightmares lately.
I have an appt with my neuro on Monday, which will be the first time I will see him since my Lyme dx.
Curious as to where we will go from here. I will let you know what he says, if you want.
- JB
Posts: 1197 | From New Jersey | Registered: Jul 2005
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posted
have you had your B12 levels checked? low B12 levels are known to cause abnormal EEG readings. In fact, sometimes the EEG readings seen in B12 deficiency will almost exactly mirror what is seen in bilateral temporal lobe epilepsy. This has been written in the medical literature, but most neurologists are unaware. I was mistakenly diagnosed with bilateral TLE based largely on EEGs that were "practically diagnostic" for this disorder, and by leading, highly respected academic neurologists {at one of the most respected neuro dept's in the country}. later it turned out I had neurolyme, and terribly low B12 levels.
neurolyme and its attendent complications can easily cause bizarre EEG readings. in no case should you accept a diagnosis of epileptic fits solely on this basis. and, if the docs are determined to make this diagnosis, kindly remind them that epilepsy is a syndrome, not a disease, and its onset in an adult over 25 years of age especially should bring about an intensive search to discover the cause, be it tumor, scar tissue, infectious disease, whatever.
if a physician wants to throw an epilepsy diagnosis at you without making the effort to determine the cause, they are guilty of terrible quackery and should be immediately discarded.
Posts: 523 | From Stillwater,OK,USA | Registered: Sep 2004
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
Aligondo Bruce, I learn so much from your postings. Thank you so much for taking the time to explain this.
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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