posted
Hi All, I have an aquintance who's sister is one of the original group of children that acquired Lyme in Lyme, Ct in the 1970's.
She was treated by STEERE and supposadly recovered fully or so we are made to believe..
Well get a load of this...She is sick. She has been sick for years AND she attributes it to the tick bite! She has 3 lesions on her brain and the drs. are pushing for an MS diagnosis.
She is going to go to UConn Health Center...ugghh where they will ultimately miss diagnose her!
Anyone with pertinent info that I could send him to give her to see that she needs an llmd...or about lyme mimicking ms would be great!
Imagine if all of STERRES original patients are still sick...wow...the cure didn't work after all DUH!
daniella
-------------------- ~Things may happen in my life time to change who I am but I refuse to let them reduce me...~ Posts: 968 | From private | Registered: Jan 2005
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Linda LD
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posted
up
Posts: 1171 | From Knoxville, TN US | Registered: Dec 2004
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treepatrol
Honored Contributor (10K+ posts)
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posted
Yep I feel sorry for those people too cured my butt. He should have kept checking in on those people for at least 3 or 4 years before publishing What we now know as crap.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
shazdancer
Frequent Contributor (1K+ posts)
Member # 1436
posted
Reading Polly Murray's book, it is clear that Steere got it wrong right from the beginning, from calling it Lyme arthritis (there were many other symptoms), in children (there were plenty of adults as well), that was adequately treated (many are still sick).
Heck, in the beginning of it all, Steere was giving them aspirin and doing synovectomies. He probably (perhaps inadvertently) helped create a chronic Lyme situation in his patients, by not treating agressively enough right from the start.
And now we are still playing catch up from all the faulty information that was disseminated.
Regards, Shaz
Posts: 1558 | From the Berkshires | Registered: Jul 2001
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just don
Frequent Contributor (1K+ posts)
Member # 1129
posted
I still maintain that he is "steering" the medical community to his conclusions. Therefore collecting a huge check from them for creating the controversy. In other words a paid professional "LIAR".
We are always told to follow the money, how do you prove where his money comes from???
-------------------- just don Posts: 4548 | From Middle of midwest | Registered: May 2001
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Please contact Dr.Pamela Weintraub and see if she would be interested in doing a follow up story including your friends child that was "under treated" by Steeres. Seems to me if that became a public story, he could lose a lot of credibility, especially if she is helped or cured by long term abx.
Dr Weintraub wrote the story on Dr. Jones posted by lymeblue.
Posts: 219 | From Aubur,Al. USA | Registered: Oct 2004
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-------------------- ~Things may happen in my life time to change who I am but I refuse to let them reduce me...~ Posts: 968 | From private | Registered: Jan 2005
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posted
You probably have more info on the UCONN Health Center than I do, but that's the area I grew up, and my parents still live there. My Mom brought an article I'd written for my area paper on my foibles with lyme and lots of info on treatment.
When she later got a bite, her first in her life, she went there, and they immediately began treating her with Doxy, 3wks. I was shocked and impressed...no waiting to see if she got a bulls eye, no testing. It's been 6 mos since this happened, and she's fine.
Hopefully she'll get treated appropriately. But since she's been sick so long.......... it seems terribly difficult if not possible to get well if one isn't treated correctly within an appropriate amount of time.
Posts: 661 | From NY | Registered: May 2003
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