Topic: website on the dangers of Fluoroquinolones (Cipro, Levaquin)
henson2
Frequent Contributor (1K+ posts)
Member # 463
posted
Hi,
OK, I really don't mean to scare people, but this site scared me. www.fqresearch.org.
There are folks having strong adverse reactions to the quinolones, some very, very serious.
Now, how does one know if what one is experiencing is a drug reaction to these drugs, or a Lyme (or co-infection) Herx?
That is the million dollar question we each have to ask ourselves and our LLMDs.
There are other patients out there who want FDA warnings or Congress to note what this particular class of drugs can do.
I just want everyone to be careful, and to be well. Talk to your Dr. if you get adverse effects and you don't know if it is a Herx or not. Please use your own instincts about what your body is going through.
Anyone else know about or have experience with fluoroquinolone reactions?
Just a note that maybe we should not always assume it's a Herx, and listen to our bodies.
Warmest wishes to everyone to be well.
Posts: 1066 | From East Coast | Registered: Dec 2000
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Foggy
Frequent Contributor (1K+ posts)
Member # 1584
posted
Henson, which Quinolone are you taking, if any, and for what? Helpful?
I had to stop Cipro and Leva. Legs got too sore and it became too precarious.
Posts: 2451 | From Lyme Central | Registered: Aug 2001
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I would not allow my teenager to go on Levaquin et al because of joint issues i had researched, including people blowing out their achilles tendons! I had heard of terrible side effects in elderly in hospital too. Lev is a "hot drug" that surgeons love to prescribe before surgery as a prophylactic. A friend MD who works for a prominent med center on a transplant team said she will Never prescribe the drug because it does terrible things to joints, permanent damage. She has seen it in her young patients when a surgeon prescribed it without her knowledge.
the increased joint/tendon pain IS NOT A HERX!!!!
-------------------- mom & co. Posts: 31 | From ny | Registered: Feb 2006
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henson2
Frequent Contributor (1K+ posts)
Member # 463
posted
Hi,
Foggy, I am not on any of the quinolones. I just found that site that discussed the many people who have experienced bad things on them.
I know a lot of folks here are on them, particularly Levaquin for Bart, so just wanted to send my concern to distinguish the adverse effects from Herx.
It seems that the reactions can mimick the Lyme symptoms we already have (including nervous system disorders, buzzing, dizziness, etc).
I believe this class includes Tequin, Avelox, Levaquin, Cipro and a few others.
Warmest wishes to everyone to be well!
[ 16. March 2006, 05:19 PM: Message edited by: henson2 ]
Posts: 1066 | From East Coast | Registered: Dec 2000
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I am just popping here to give my personal opinion on levaquin and I don't intent, under any circunstance to offend anyone or to start a "cyber riot".
I took levaquin for 4 months along with mepron, zithro and bicillin and I got great results without any side effects.
During this combo I RE-GAINED back about 80% of my brain. After this combo I was able to read and actually understand what I was reading.
I still have problems with spelling, remebering things and some other issues but I cann't deny that under the levaquin my brain fog started to disipate for the first time ever since I got Lyme. This didn't happened with any other combos I had taken before and I am talking "heavy duty combos".
However, everyone is diferent and you should always look up after your own precious body.
Best luck to everyone, Lymster in WA
Posts: 303 | From WA | Registered: Jul 2004
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henson2
Frequent Contributor (1K+ posts)
Member # 463
posted
Hi, Lymster,
I'm really glad it worked for you!
No, I did not want to start any sort of contention or riot! Just let people know what I had learned, so that people could be informed and pay attention to their own bodies & responses.
I have learned so much here -- just wanted to put out what info I found.
I'm very glad you improved.
Warmest wishes to everyone to feel better *soon*!
Posts: 1066 | From East Coast | Registered: Dec 2000
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breathwork
Frequent Contributor (1K+ posts)
Member # 567
posted
Some of the worst pain in my lifetime came while on levaquin.
I could hardly walk and the joint and tendon pain was beyond painful.
My tendons all shortened to the point that almost any movement was more than I could handle.
It took months for these symptoms to resolve after stopping the levaquin. And, it made my tolerance to vicodin increase, something I have guarded closely.
I will never take levaquin again for any reason....
Posts: 1062 | From CA USA | Registered: Jan 2001
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I've just come off Levaquin after being on for 6 weeks. I was very nervous about trying it, but decided to. I was diligent with taking Mag Tabs ( about 4 a day) and a joint complex. Also ate lots of gelatin in the hopes that it would increase collagen production and protect tendons etc....
I had the biggest herx on it- but I also noticed some new pains- mostly what felt like inflammation in shoulder blades and at base of skull...
I had a massage and everything was SOOOOooo tender to the touch. I took this as a levaquin side effect and am much less tender after only being off it for a few days-
These decisions are so hard- I hate to think that I may be killing the lyme and yet creating a toxic environment for other nasty diseases!
With hope,
Sarah
Posts: 119 | From new york, NY, USA | Registered: Apr 2005
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I've just come off Levaquin after being on for 6 weeks. I was very nervous about trying it, but decided to. I was diligent with taking Mag Tabs ( about 4 a day) and a joint complex. Also ate lots of gelatin in the hopes that it would increase collagen production and protect tendons etc....
I had the biggest herx on it- but I also noticed some new pains- mostly what felt like inflammation in shoulder blades and at base of skull...
I had a massage and everything was SOOOOooo tender to the touch. I took this as a levaquin side effect and am much less tender after only being off it for a few days-
These decisions are so hard- I hate to think that I may be killing the lyme and yet creating a toxic environment for other nasty diseases!
With hope,
Sarah
Posts: 119 | From new york, NY, USA | Registered: Apr 2005
| IP: Logged |
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