posted
sick since 1990 on and off did iv ok 1.5 years then sick again did iv 2 more times did not work checked co infections recently by igenex all negative my main symptoms are stiff achey neck unrelentless dull sinus headache between eyes , blurry vision right eye,brain fog ,tingling in feet and overall feeling like crap. oh had 3 brain spects one in 97 said moderate perfusion ,one in 00 said moderate to severe and one last week said severe perfusion i am able to work and sometimes have good days but overall neck and sinus headache are main symptoms please advise if you think babs or bart or just lyme. i have tried levaquin got better for a while tried mepron got better for a while , tried alot of things but i have a hard time sticking them out. doctor says wants me to do iv levaquin next but i am lost any help with these symptoms would be appreciated.
Posts: 39 | From white plains, newyork | Registered: May 2006
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posted
Not sure what to say, but wondering if you were also checked for mycoplasma. Maybe someone else will come along with a clearer idea of whether your problems could come from babs or bart. I'm sure you know the tests don't cover all the various types of these two germs. They are still finding new ones.
Posts: 8430 | From Not available | Registered: Oct 2000
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posted
I think since you did respond to the levaquin and mepron, that more of either one would be a good idea.
Here is a list of babesia symptoms: [you don't have to have all of them to have babesia!!]
The following signs/symptoms may be present in those infected with Babesiosis: Fatigue* Arthralgias* Myalgia* Drenching sweats* Headaches* Emotional lability* Depression* Dark urine* Splenomegaly* Dizziness* Nausea and vomiting* Cough* Dyspnea* Fever* Chills* Hepatosplenomegaly* Jaundice* Malaise* Shortness of breath* Bleeding tendencies, bruising* Thrombocytopenia* Hemoglobinuria* Hyperesthesia* Pulmonary edema* Encephalopathy* Low to normal range leukocyte counts* Possible elevated levels of dehydrogenase, bilirubin, transaminase* Anorexia* Approximately 25%- 66% of Babesia patients are known to be co-infected with Lyme disease. These symptoms may continue for long periods of time, decrease, then return. A low Babesiosis titer (IgG) often indicates a chronic infection. An acute or current infection may show a higher reading on the IgM test initially. There are over 100 species of Babesia in the United States but only ONE or TWO species are currently checked by commercial labs.
----Sorry, I don't have a list for bartonella, but I think you'll find info in Treepatrol's links below:
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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TheCrimeOfLyme
Frequent Contributor (1K+ posts)
Member # 4019
posted
It doesn't matter what your coinfection testing says, you can still have babesia and/or bartonella.
Personally, knowing that, have you been treated for them even empirically? If no, Id say leave your doctor and find a new one, because frankly, he should know better.
-------------------- You want your life back? Take it. Posts: 3169 | From Greensburg, Pennsylvania | Registered: Jun 2003
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posted
did you try minocycline?this was a very good antibiotic... there are down sides to levaquin...I dont trust it as it makes a person angry while on it....mino crosses the bbb very well as well as reproductive barriers...you need to get to an llmd very fast...one that knows what he is doing...a llmd neuro...where do you live? eric
Posts: 593 | From long island ny | Registered: Apr 2006
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
louis2~ Sent you a private message....Timaca
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
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bettyg
Unregistered
posted
Welcome Louis. Breaking this up for us neuro lymies so we can read/comprehend it. In future, please hit the enter button often and double space between paragraphs for legibility. THANKS so much Louis!
quote:Originally posted by louis2:
sick since 1990 on and off did iv ok 1.5 years
then sick again did iv 2 more times did not work
checked co infections recently by igenex all negative
my main symptoms are: stiff, achey neck; unrelentness.dull sinus headache between eyes, blurry vision right eye; brain fog, tingling in feet, and overall feeling like crap.
oh had 3 brain spects one in 97 said moderate perfusion,one in 00 said moderate to severe and one last week said severe perfusion
i am able to work and sometimes have good days but overall neck and sinus headache are main symptoms
please advise if you think babs or bart or just lyme.
i have tried levaquin got better for a while
tried mepron got better for a while , tried alot of things but i have a hard time sticking them out.
doctor says wants me to do iv levaquin next but i am lost any help with these symptoms would be appreciated.
I'm not able to help you, but here are some more newbie sites.
Welcome to this 24/7 LYME support group board!
Here's TREEPATROL's and Tincup's combination newbie links.
Print off the links then check them off as you read as you could spend several months reading all of this.
print & read Dr. Burrascono's 2005 info first; you will come back to this often.
Extensive info in Treepatrol''s newbie links about the meaning of WESTERN BLOT IGM/IGG test results from Igenex! Be sure to read or print this info IF Igenex tested you ok!
Also, see Cheryl''s extensive web sites on: LD DIAGNOSIS, SYMPTOMS, & TREATMENT ... wonderful! Read the area on CO-INFECTIONS! You could have from 1-12 other illnesses that tick is carrying...lyme, malaria, etc.
If you are showing symptoms of co-infections, I would like to suggest being tested for co-infections when you have LYME western blots done. It isn''t cheap!! But if you are positive, you can treat the co-infections first, and then work on LYME symptoms.
EYE SENSITIVIES & NOIR, no infrared sunglasses info., 2-28-06 updated YES, I have what you have! Are you on doxy too? That made my extreme eyes
200% MORE sensitive than they we were earlier. I learned a lot about eye sensitivity/lighting on www.marshallprotocol.com board.
Look for AUSSIE BARB'S EAST FINDER and then eyes/sunglasses, etc. Wealth of info there.
I ordered the NOIR sunglasses. 2-26-06 corrected wrong email to:
mention you have lyme and marshall protocol, they will give you 20% off! I'm NOT on MProtocol, but mention it anyway. I was on their new board almost 12 months!
Also they have been kind enough to replace the SCRATCHED LENSES & BROKEN BOWS! How's that for service?
I don't drive often at night, but I can wear NOIR's 901 lenses at night while driving; it creates soft candle lights coming at me...tolerable. NOT to wear in town with all the action of people crossing where they shouldn't be, etc.
from LOU to Betty on LONG web links and Thank You Lou!: "If you hit the return key in the middle of a link, I don't think it will be clickable anymore. An alternative that maybe Betty should be telling people about is the tiny url website. I have it on my tool bar at the top of the page and use it for those incredablylongwebsiteaddresses.
All you have to do is ask tiny url to produce a short version, which it will do with a unique address, which you then use instead in your post. Works just the same when clicked! Here is the website, spread the word!
3-1-06, fyi, I tried dragging tinyurl to my toolbar without success, so that''s why I currently have LONG addresses vs. short tiny ones! I''ll keep trying.
Tincup posted March 8, 2005, 2218 Lyme Disease Survey Responses February 27, 2005 - March 9, 2005 1. How many doctors did you have to see before being properly diagnosed? 112 responses Average number of doctors consulted before being diagnosed- 14 Answers ranged from 1- 120 different doctors 2. Have you had problems getting insurance to pay for doctors or treatment? 87 responses Yes- 63 No- 24
3. Have you lost income because of Lyme disease? 106 responses Yes- 99 No- 7 4. How much does it cost you (average) per month for Lyme related expenses? 61 responded Average cost per month per patient- $4,472.49 Low- $500.00 High- $21,492.00
5. How many different medications do you take per day? 77 responded Average - 14 different medications per day Low- 3 High- 25
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