posted
I called my dr. and talked to the nurse. I have been dxed by the FFC in Atlanta but I have switched insurance and they are out of network now. needless to say it will be VERY expensive to get treated there.
The nurse told me my dr. has never heard of late lyme. How is this possible? She said do you want to make an appt. to see her and talk about it?
I said yes and have an appt. on Friday. What should I do? I feel like I'm going to try to sell something to my dr. It's so strange. What should i take for her to see?
Thanks, Cutie
-------------------- Cutie Posts: 125 | From Atlanta | Registered: Dec 2005
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AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
Is there any way that you could see another dr?
This dr. can't be the only one that is in network.
Maybe you will be able to get through to this dr. though.... if she didnt know chronic lyme exists....
Now if she says chronic lyme doesn't exist - just run.
If you have a positive lyme and/or coinfection test I would take that (even if it isn't real new) Or if you had a rash when infected and took pictures of it .. I would take those pics.
hopefully others will come along to tell you treatment and diagnosing materials to take with you. I am not really sure and I dont want to tell you the wrong thing.
timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
I would read for yourself and take in the article on the ILADS website (www.ilads.org).
It's on the right hand side as you scroll down. Treatment Guidelines.
Good luck. My PCP is willing to learn and is hanging in there with me.
Timaca
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
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bettyg
Unregistered
posted
cutie,
When I read the part it is VERY EXPENSIVE out of pocket, that said to me ... RUN AWAY.
Get a good LLMD; don't settle for less.
I had a beginner LLMD for 18 months, and we were learning together. He was 30 miles roundtrip from me so I settled for LESS.
That was 2 yrs. of wasted time and not attacking these "sketes" more aggressively. Everyone else including support group leaders were telling him what to do.
He was an OUTSTANDING LISTENER and didn't head for the door; he spent considerable time with me listening, but I was in charge of our appt. each time. I made sure all my answers were answered.
Feb. 9, I had a terrible herx which happened online; whole another story. I called my LLMD Feb. 10, requesting he call me back that day. NO CALL so I emailed all the symptoms of what happened.
TO DATE, NO RETURN PHONE CALL OR EMAIL! So I dropped him, and with this board's help, found someone out of state since Iowa does NOT have ONE FULL-TME CHRONIC LYME LITERATE MD in entire state.
I went to this LLMD of 2 yrs. who was treating fibro/CFS patients & discovered majority had LYME instead. She's holistic MD as well. So she went looking for a needle in the haystack with me. June 6th I learn the results in English of ALL 12-16 lab tests done.
So I'd cancel w/this person and have someone guide you to a GOOD LLMD! Don't settle for less; you can't afford to. I'm not a MD; just a lymie of 36 yrs. 34 yrs. misdx!
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