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» LymeNet Flash » Questions and Discussion » Medical Questions » What to do with Lyme symptoms when your stomach goes out?

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Author Topic: What to do with Lyme symptoms when your stomach goes out?
Talktel
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Has anyone had their stomach go bad - pain but without the runs - because of the abx, but then the stomach doesn't seem to heal after the abx are stopped?
It's already two weeks that I stopped my oral abx for Bart, because of my stomach problems, and I am still having this pain, and I'm not eating a regular diet. I am losing weight because of that, which in my case is not great.
I am also on IM bicillin injections for Lyme, but now my Lyme symptoms seem to be getting worse. I am very run down too.
How does one treat Lyme until the gut heals? And how long can it take? I will be tested for C. Deficile, but the doc doesn't really think I have it. What else can it be that takes so long to heal?
Do all Lyme patients have great stomachs? What happens to the ones, like myself, who don't?
I hear intravenous abx goes through the stomach too.
Has anyone else been in this pretty scary situation?

Lymehead

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RI

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Lisianthus
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Have you been taking care of your good bacteria..... replacing it? Acidophilus usually helps with alot of stomach and GI problems. Abx can tear up your stomach if your not taking probotics.

Lisi

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yahoo 360 http://360.yahoo.com/my_profile-UqSNGiA9crUMRW.lFNGN5Jk-?cq=1

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Talktel
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Hi,

Yes, I'm taking loads of probiotics.

Does anyone have any suggestions for any real good ones?

And the question remains; Why is my gut still not healing?

Lymehead

--------------------
RI

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northstar
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Hi,
I found some sites with general info:

http://www.townsendletter.com/topic_gastrointestinal.htm

http://www.townsendletter.com/July2004/phytotherapy0704.htm

http://www.townsendletter.com/June2004/phytotherapy0604.htm


My llmd says bart affects mucosa. Lyme also disturbs digestive system. Then you add abx, and that is a triple whammy. My llmd estimates that about 1/3 of his patients develop a type of gluten sensitivity, (wheat, oats, barley, corn, rye, and even spelt for more sensitive individuals). This causes generalized inflammation.
The gluten-free diet elminates these things.

Someone earlier posted about aloe juice helping their gastritis. So, now I am on my second bottle @1/4 c. per day. I ran out for a day, and noticed the change. I think it is helping me.

Also, homemade chicken soup with lots of veggies and some rice, or sometimes just egg drop style with spinach, were a big help to me.

N.

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JimBoB
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Are you taking lots of vitamin C like you are supposed to with Lyme and its coinfections?

IF so, what kind?

I had terrible stomach pains even before I started any treatment last fall. It did not get better when I started herbs in november. It got much worse when I went on abx in December. I had to get off of them and take herbs only.

But it still did not get good. So I discovered C-Salts from Nutri.com. THESE have CURED my stomach pain. I have not had stomach pain for months now. NOTHING else would work at getting rid of the stomach pain and nausea.

NOTHING!

Google them. They are nice people to deal with. But do not order online. Call them from their toll free number, and they will send it to you.

IT WORKS!

TRY IT. You have nothing to lose and everything to gain.

Jim [Cool]

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Talktel
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I was on Leviquin for Bartonella for about six weeks when this happened. My stomach was better beforehand. (but still with difficulty) I don't know that the Lyme or co-infections (I have four of them) did this because I didn't have this problem beforehand.

I've been on antibiotics for years, but I did always have a weak digestive system. Now it's really gone.

Is it possible that the Bicillin prevents the gut from healing?
Lymehead

--------------------
RI

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bettyg
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Welcome talktel.
Breaking this up so we neuro lymies can read/comprehend by hitting enter more often and double-spacing between EACH paragraph. Thanks for doing this in the future ok. [Big Grin]

quote:
Originally posted by Talktel:

Has anyone had their stomach go bad - pain but without the runs - because of the abx, but then the stomach doesn't seem to heal after the abx are stopped?

It's already two weeks that I stopped my oral abx for Bart, because of my stomach problems, and I am still having this pain, and I'm not eating a regular diet. I am losing weight because of that, which in my case is not great.

I am also on IM bicillin injections for Lyme, but now my Lyme symptoms seem to be getting worse. I am very run down too.

How does one treat Lyme until the gut heals? And how long can it take?

I will be tested for C. Deficile, but the doc doesn't really think I have it. What else can it be that takes so long to heal?

Do all Lyme patients have great stomachs? What happens to the ones, like myself, who don't?

I hear intravenous abx goes through the stomach too.

Has anyone else been in this pretty scary situation? Lymehead

Lymehead,
Someone mentioned the GLUTEN sensitivity. I'd heard of this before, but now diagnosed with this as of 1 month ago.

You can have testing done for FOOD sensitivities. If you look at my LENGTHY post on my 4-20-06 new LLMD summary & lab results, it tells in there EACH lab something was sent to and the new diagnosis.

I am highly allergic to: COW'S MILK, wheat, glutin, Case-in....milk products, garlic, etc.

So now, I have to begin a NEW DIET OF GLUTIN-FREE & CASE-IN FREE foods to HEAL my gut. I have lots of intestinal problems discovered by the extensive testing I did.

June 6, I hear all the results in USER-friendly language to comprehend.

Good luck! For over 30 years, my gut has always felt sick; NOW I know why. Thank God ... now to try to heal this.

Bettyg

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AZURE WISH
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Just adding in the cause of my stomach problems -

I had stomach pain ... after I ate it got worse and stayed worse till I had not eaten for about 16 hrs.

Before they figured out what was wrong with me I was living on ensure. I lost alot of weight too. I became real thin. My size 1 jeans were baggy on me.

Then they found out I had gastroparesis which means my stomach digests slow. Stuff sits in my stomach alot longer than a normal persons.

I take medicine for it... when it was really bad I also had to follow a diet.

They diagnosised it through endoscopy (they take a tube and put it down your throat to look in your stomach.

I have heard of others with lyme having motiltiy issue with there digestion.

Gastroparesis can also cause nausea and vomitting but the most prevelant symptom for me has been pain.

Best wishes

--------------------
multiple chemical sensitvity group:
http://www.lymefriends.com/group/multiplechemicalsensitivities

Group for artists. All media welcome:
http://www.lymefriends.com/group/creativecorner


http://groups.yahoo.com/group/Lyme_Artist

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surg
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I don't have a great stomach. Lots of GI problems.

The things that worked the best for me are: A

gluten-free diet made a huge difference. Then taking

lots of probiotics, L-Glutamine, Licorice, and

Throat Coat Tea by Traditional Medicinals.

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diana
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I just wanted to add that I too was on levaquin and tinidizole for about 10 weeks when my stomach went into violent spasms. Very scary.

I am trying more gentle methods and am done with abx (at least for now)!

Diana

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WildCondor
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When my stomach went bad I stopped all orals and went on IM Bicillin shots.
Glutamine is a good idea. Carafate Rx can help!
 -

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luvs2ride
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A change of diet stopped my stomach burn instantly. I switched to a vegan diet which is very alkaline. I have since found I can have lean chicken. Beef still seems to give me an upset stomach. I'm scared of seafood which I used to LOVE. I have high levels of mercury and lead so no seafood for me.

You mention diarhea. Someone else mentioned gluten intolerance. That is very real. Called Celiac disease and once you have it, you have it for life. Good news is you can completely control it by avoiding gluten.

--------------------
When the Power of Love overcomes the Love of Power, there will be Peace.

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Talktel
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I am on bicillin shots -3x a week.

Is that enough to help me improve even though I have co-infections?

My concern is that the co-infections will impede any chance of improvement in the Lyme. And if I can't be treated because of stomach issues-than what happens?

Lymehead

--------------------
RI

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dguy
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quote:
Originally posted by Talktel:

Yes, I'm taking loads of probiotics.

Does anyone have any suggestions for any real good ones?

Unless the probiotics come in enteric coated capsules they do absolutely nothing for me. If you haven't been using the enteric coated type, it may be worth switching to see if you experience a difference. I've tried many kinds, and Solaray Multidophilus 12 works best for me.
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Marnie
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Have you considered digestive enzymes with meals? Are you taking lots of good probiotics one hour before meals with a full glass of water?
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5dana8
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hey talktel

I am in the same boat.

2 &1/2 years on orals and 3 months off trying to get my stomach back on line. In retrospect I don't think it was my gallbladder but a combination of gastritis and upper GI yeast.

these things have helped me the most:
2 prilosec in am (only did for 1 week-afraid of c-diff)
anit-yeast meds
digestive enzymes
carafate
promethizine

I weeded out many supps and for now am just on the basics. That I know don't upset my tummie.
I also think lyme and the co-s have something to do with it but not sure how much.

PM me any time
Hope you feel better soon [group hug]

--------------------
5dana8

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JimBoB
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Have you TRIED the C-Salts?

Jim [Cool]

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Marnie
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Clostridium difficile-associated diarrhea: resurgence with a vengeance.

Oldfield EC 3rd.

Division of Infectious Disease, Department of Medicine, Eastern Virginia Medical School, Norfolk, Virginia, USA.

There has been a significant increase in the incidence and severity of Clostridium difficile-associated diarrhea (CDAD) in the past several years, including outbreaks in multiple states and provinces in the United States and Canada, as well as in the United Kingdom.

A new, highly virulent strain of C. difficile has appeared that is less responsive to standard therapy and associated with a high rate of recurrence. Along with nosocomially acquired infections there has been a rise in the number of community-acquired cases of CDAD, even among those without prior antibiotic exposure.

Many factors have contributed to this epidemic, including the development of resistance to the widely used fluoroquinolones class of antibiotics. Because this new strain is less responsive to standard therapy, particularly metronidazole, a number of new antibiotics and other therapies are actively being investigated for use in both primary and recurrent CDAD.

A multifaceted approach to managing CDAD is called for, including active surveillance, antibiotic stewardship, and meticulous attention to contact precautions, including gloves, gowns, and hand washing.

PMID: 16699477

I have a hunch the above applies to the current outbreak of ``flu'' with nausea and extreme diarrhea right now seen...at least in Sarasota.

We have to be careful. The use of antibiotics can cause them to mutate into more virulent forms.

P.S.

J Food Prot. 2006 Apr;69(4):932-4.

Metronidazole resistance in Campylobacter jejuni from poultry meat.

Andersen SR, Shukri NM, Boel J, Saadbye P.

Danish Institute for Food and Veterinary Research, Department of Microbiological Food Safety, Soborg, Denmark. [email protected]

The occurrence of metronidazole resistance was investigated among Campylobacter jejuni in raw poultry meat collected from supermarkets. MICs were determined by the agar dilution procedure in the testing range of 3 to 60 microg/ml metronidazole.

The MICs showed a bimodal distribution with a significant proportion of metronidazole-resistant isolates among C. jejuni from raw broiler and turkey meat. Metronidazole resistance occurred most frequently among turkey meat isolates (P < 0.005).

This is the first report of foodborne bacteria carrying metronidazole resistance.

PMID: 16629042

The more I read the more worried I become. The bacteria are becoming too resistant to our antibiotics. We MUST find another way.

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