trails
Frequent Contributor (1K+ posts)
Member # 1620
posted
I know, I have asked about this type of pain before--but i am really experiencing it very badly for the past week.
The best way I can sum it up is to say that there are these points or spots along my legs, arms or face that get INCREDIBLE pain. Just in one spot. The pain is like a cramp, but it isnt the entire muscle....just one small spot. it is like INTENSE arthitis pain but in one place in a muscle. On my face it is like intense sinus pain sudden and getting worse and then it goes away and maybe it is a bit numb there??
It lasts only about a minute and then subsides and moves to another place. At any given time I have 3-10 of these places on my body hurting at once. They are almost always in the same location.
Does anyone else have this?
Does this point to a specific coinfection? like bart?
I am not on any ABX right now.
I wanted to wait to treat bart until after a long road trip, but I might not make it---this combined with the dizziness, trouble swallowing and scalp tingling I am getting are making me feel like I am going DOWN fast. Posts: 1950 | From New Mexico | Registered: Sep 2001
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
I don't know if those symptoms are overlapping with other infections, but my daughter ONLY has bartonella and she has that issue you speak of.
Today she had pain in her sinus area. Then tooth pain, then neck pain. Sometimes it's just her hands, then an our later it's her shins.
Does that sound familiar?
Posts: 2903 | From AZ | Registered: Feb 2006
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posted
I've got Lyme and Bart, so I don't know which one it is, but I get that too. With me it is more of a sudden stabbing pain, very localized in one spot, usually on my legs or arms. It stays for a minute or two and then goes away.
Alison
--------------------
The obscure we see eventually. The completely obvious, it seems, takes longer. --- Edward R. Murrow Posts: 923 | From California | Registered: Aug 2005
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Hope your taking complex B vitamin and cq10,Mg,multi vitamin, and the rest of your probiotics.
I use to get severe cramps in different places. Just dont tret lyme tret for coinfection too.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
I am not suggesting you have Fibro ..... because I believe Fibro is probably lyme. Just might give you some way to talk to doc about this.
robi
-------------------- Now, since I put reality on the back burner, my days are jam-packed and fun-filled. ..........lily tomlin as 'trudy' Posts: 2503 | From here | Registered: Apr 2004
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trails
Frequent Contributor (1K+ posts)
Member # 1620
posted
again...thank you all. I feel less alone and freaked out-- and that is worth a lot in the face of this illness.
Kelmo---yes sounds very familiar except for the tooth area. I do sometimes get these pains in my hands and it builds and builds over a period of 30 seconds and I think if it gets much worse my hands are gonna BLOW UP and then it goes away. Nothing ever LOOKS any different on the outside.
Also--kelmo----I was reading some recent posts about bart and you had said your daughter is on zith and rifampin. My LLMD said that those drugs shouldnt be given together as they cross react and I forget which one causes the other to be decreased in effectiveness, but one causes the other to not work as well. Maybe something to ask you LLMD?
Alison---I get the stabbing pains too. Just not as much lately. go figure.
treepatrol--- I am taking probiotics but not other suppliments as I never have noticed they did diddly squat but leave me with less money. I had these pains and problems while taking very expensive and good quality supps. It isnt a cramp---just that the cramp like pain is very similar to the pain I feel....but it isnt a cramp---too small of an area, and maybe too close to the skin to really be a cramp. I am considering starting some liver support in order to get ready for Rifampin though. Coq10, ALA and maybe milkthistle. Might as well take those while not on ABX. I always take probiotics, whether or not on ABX---they are always good to me.
Robi--thanks, but NOPE. Not at all actually. I mean I think they correspond to only one of the points. Most are on the front of my thighs, my shins, my biceps, my face, the backs of my hands, and the bottoms of my feet. Thanks for checkin into it for me though!
anyone else have these types of pains?
thanks again, t
Posts: 1950 | From New Mexico | Registered: Sep 2001
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
Thanks for the heads up on the zith/rifampin. If there is a problem with effectiveness, she is making progress with this combo, so we'll stay the course until she levels out. She also has mycoplasma pneumonia, so the zith hits that.
I'll tuck your info in the back of my mind, though.
Someone mentioned fibromyalgia..my daughter was first diagnosed with fibro. But, I knew it was hooooey because I remember a distinct illness genesis and had spent the prior year being bounced from one doc to the next before they threw up their hands and declared fibromyalgia.
I, too, am under the belief that many "fibro" patients really have a bacterial infection.
So...you aren't alone in your pain, it's all part of the nasty.
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