Topic: For those with success stories, what doc/clinic helped most?
Bugg
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Member # 8095
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I realize you can't give names on this site. So, please either p.m. me or post in an ambigous way. I am looking for lyme patients who had cognitive/neuro-lyme symptoms who were treated mainly with antibiotics. Who would you recommend most? How did that doc/clinic help you? Thank you!!!
Posts: 1155 | From Southeast | Registered: Oct 2005
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I got better on antibiotics, but it has taken a while. You need someone who has the clinical freedom to be able to provide long term antibitoics regardless of whether it be IV or oral.
As far as protocols, my personal belief right now is that its just like pychiatry when one is treating Lyme. Its kinda trial and error.
That's how I found my regamine.
Now, that may not be true for everyone, but it was for me, so finding a physician who is willing to work with you to provide the best care is important. But, a huge variable in this issue is YOU, the patient. For this kinda treatment, you have to be on your toes--- keeping a diary, reading the science behind antimicrobials, eating healthy, getting rest, making sure that you are not under too much stress, taking an active part in the healing process and not dumping this all on the doctor.
We can all get better, or better said, most of us can get better, but it takes the kind of commitment that is alsmost quassi obsessive compulsive with very advanced Lyme if you want to be whole again. It can be done, but you have to work just as hard as the doctor, and be willing to never give up.
If you have the first part of that equation, the kinda person who will run for the fight instead of running away, then all you need is a doctor who is willing to send you into battle with a full set of equiptment.
Posts: 559 | From Cary, NC | Registered: May 2006
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Bugg
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Member # 8095
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Posts: 1155 | From Southeast | Registered: Oct 2005
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I am personally convinced that if you rely predominantly on abx to cure you, or at least get you significantly AND permanently better, you WILL fail!
Curing Lyme is a multi-faceted approach and in the end hardly involves your doctor.
What I ended up realizing after about 6 months with 3 different LLMDs (and mind you I used them with great overlap and they all knew about it and were OK with it) was that the ONLY way they were helping me was to prescribe abx.
After those 6 months they couldn't tell me anything new about Lyme disease that I didn't already know. In fact, I often brought up topics about Lyme and treatments which they expressed no interest in really discussing with me or sometimes flat out said they knew nothing about or that I should see another doctor about this and that.
The point at which I started getting better, and I should say that I've had Lyme disease for 25+ years, was when I started putting all the pieces together MYSELF. None of my LLMDs told me about - the impact of my low body temperature on my bodily functions, incl immune system - the importance of detoxification - the importance of restoring my hormonal balance - the importance of preventing hypercoagulation - the importance of significantly reducing foods with refined sugar in them as well as carb rich foods, - the importance of using generous amounts of herbs in your diet (such as ginger, cayenne, sage, licorice, garlic, onions, salt and gse) - the importance of HOW TO promote good sleep when you have trouble falling asleep.
I mean, it's amazing what my LLMDs didn't tell me. They were all abx, abx, abx and don't forget to take probiotics. That's it!
I believe that many of us get sick from Lyme disease, not just because we get bitten, but because our bodies are happy homes for Bb to begin with.
We eat the wrongs foods, too much of it at the wrong times, don't get enough sleep, don't get enough salt, don't get enough herbs/spices, don't exercise enough, don't attend to our low body temps, are too stressed, are too concerned about what others think about us, are too much giving into "being sick" instead of fighting the infection mentally by, etc.
IMHO, abx is a tiny little piece of the puzzle. And btw, there's so many natural abx easily available for your OTC consumption. There's a pletoria of books available on this topic.
The best and most holistic LLMD I had was Dr H in NY. Write me for full name.
Michael
-------------------- I'm not an MD. The above is IMO and in my experience as well as from health related books.
I've had symptoms consistent with neurological Lyme disease since 1986. Was diagnosed with Lyme in 2004. Am feeling better now than ever before. Posts: 702 | From NY | Registered: Jul 2004
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