posted
Hi- I seem to have these twitches all the time. I twitch in places I didn't even know could "twitch"--feet, hands,ears,elbows,even my butt! Sometimes I get the strong ones going for 1/2 hour or more in arm or shoulder, other times they are like electric shocks..these are always by my back,spine area. And of course while laying down, they are just all over the place.
So I just got to thinking..what exactly is going on? Are we losing some basic neuro function due to lyme? Is it simply harmless and annoying, or something to be concerned about if it continues/worsens?
Or is it ever a good thing? Is it ever a "herx" that the antibiotics are trying to work?
Has anyone ever studied or noticed that if the "twitching finally stops", it coincides with recovery, remission/cure?
Anyone?-facts/opinions/theories/ways to make it stop?
Just got to thinking about it last night while under attack! Thanks Natalie
Posts: 87 | From Clarksburg, NJ, Monmouth | Registered: Aug 2005
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lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
I have had this for years. Even years before I was diagnosed.
Now I notice it more when I herx. Either on cats claw or diflucan, I used to notice it alon on Biaxin too.
I think its just toxins that are irritating the nerves.
Flagyl really caused this alot too, especially on the eye. One time I was twitching so bad and so often that it was most difficult to see.
Posts: 2905 | From New England | Registered: Sep 2004
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posted
Natalie, I dont have an answer but i can tell you when my sx started 18 months ago I presented with muscle twitches, along with lots of other sx. started first on my right eye and lip and then rapidly spread to every other part of my body. I notice it gets worse during my really bad periods but the twitches and fatigue have pretty much remained the constant. I don't know if it is a neuro toxin or the acutal bugger burrowed in the muscle tissue. Creepy thought.
Posts: 145 | From NorthEast US | Registered: Aug 2005
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SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
I don't think it is a good thing generally. I think it represents infection of the CNS. Not sure if it means long-term damage. I had it for 3 years and then it went away for 3 years when I recovered and then returned when I relapsed and has been difficult to get rid of this time around.
It can increases as part of a herx I believe. When I and others I know have done Bicillin injections, it increased 20 times maybe. It was very clear that the injections increased the rate of twitching.
I get it in random places except my right shoulder is the one consistent place anytime I put my arm over my head when I sleep.
Many say magnesium helps, but it never seems to help the twitching for me. So I think it is more likely the infection itself in the tissues or some toxins that are created by the infection.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
I used to twitch like crazy when I slept... cant remember if I did when I was awake...
at that point even when I was awake I was half asleep anyway so I am not sure I would have noticed.
As I started to get better the twitching had stopped but I got sicker again and
Now Just my fingers twitch all the time to varying degrees and my hand are kinda shaky off and on.
The magnesium didnt have an effect on my twitching.
My opinion as a lyme pateint is the same as SForsgren's I think it is because lyme has effected the CNS.
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