posted
A friend suggested I take a look at the site. I
have been having a pretty rough day. I started
getting sick back in the spring - Iwent through
the everything trying to determine what was going
on - thyroid had gone haywire, adrenals - nothing
too definitive but I was exhausted all the time,
candida - yeah, mercury toxicity - yeah, lyme -
no. Well, my new doctor has been taking good
care of me and my energy has increased and the
tremendous nausea, headaches are gone and the
anxiety that plagued me only comes and goes now.
Yet, lyme-like symptoms keep coming back. My
Igenex test was "indeterminate" and my doctor
wanted me to do something called a voiceprint
which showed lyme all over the place and it
validated my liver testing which showed it was
compromised (that explains all of the allergic
reactions I have had to antibiotics and other
meds). So, back to today. I panicked because the
last few days I have felt like some sense of
normalcy was returning and today the "metal
symptoms" as I call them (I feel like everything
has sharp edges to it - emotions, body sensations,
sound) returned. I want to scream, cry, I get so
afraid at times. The summer was so frightening
for me and I want to believe I am getting better,
that it's not just a fluke. Agggh! I am rambling.
I am glad I have finally checked into the site.
You are all brave and courageous people. I will
keep checking what you have to say about this
journey.
Posts: 104 | From connecticut | Registered: Jan 2007
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clairenotes
Frequent Contributor (1K+ posts)
Member # 10392
posted
It sounds like your doctor has been relatively thorough. Metals and candida, low adrenals and thyroid imbalances can cause similar symptoms as LD and it seemed that you really responded to your doctors treatment. If you do have LD, these are areas that many of us have to work on anyway, so nothing is lost. You have aleady started 'building' your health, in a sense.
Unfortunately testing is not always accurate. Just because the tests come back negative or indeterminate, does not mean that you may not have LD. Not sure what a voiceprint is, but if the results showed LD, did you doctor have some new ideas or a plan for you?
Anyway, I am sorry that have to be here, but know that you are in a good place. Hopefully, others will have some ideas and will post soon (if they haven't already).
Best wishes,
Claire
Posts: 1111 | From Colorado | Registered: Oct 2006
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I hope that you are feeling a little bit better by now. As you have probably seen, the battle is sort of an up and down type thing, and we can have bad times when we least expect them. But the bad times become less intense and less frequent over time. But each time they hit us, even if they are less potent, they seem just as frightening because we so badly do not want to go back to "that" place.
Don't worry, you won't. It sounds like you are under good care now and it will hopefully continue to get better, with some bad days like today. I like how you refer to them as "metallic" times - the hyperacuity of everything is so sharp and overwhelming, it feels like a knife. And that is what you are feeling right now.
But, we all go through this - or most of us - esp. the ones who have been struck with neuro-lyme, or multiple chemical sensitivities. Even when the neuro seems like it is under control, you can be exposed to an environmental toxin, or an allergen, or something that just triggers inflammation, and instantaneously we can have a setback. But they are not usually long-lived. As your liver and the lyme get better, hopefully this will get better and better for you.
I am sorry that you are going through this, but know that you are not alone and maybe something can bring a smile to your face. Sometimes, if you can get some good weapons under your belt for things that make you feel better at times like this, you can almost defer them from taking over and get into a space where you are not so aware of them. Whether it is talking and laughing with somebody who knows you well and understands, or different meds that can take the edge off... sometimes the endorphins of something that makes you happy can make you almost forget that you are going through it..
Anyway, enough rambling for me, but I so felt where you were at when you wrote the email, I just wanted you to know that you could get through it
Take care, and hang in there,
Sara
Posts: 588 | From Rhode Island | Registered: Jun 2006
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posted
up
Posts: 588 | From Rhode Island | Registered: Jun 2006
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
W E L C O M E ! ! ! !*)*)!!!!!!!!
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
Treatment is two steps forward and one step back. Don't be discouraged.
11 yrs ago when I was first symptomatic, I was one of the lucky ones who responded to 6 mths abx. At least that is what I thought. The next 10 yrs brought many ailments to me that no one ever connected with lyme such as stiff neck, migraines, shortterm memory loss, hearing loss, 5 root canals.
When I finally relapsed in 2005, my LLMDs kept saying abx are not the answer. I didn't have a hard time believing them based upon my history.
Today, I am doing very well mostly on alternative. I am doing a very low dose minocycline treatment for RA (received that diagnosis in Jan 06 and it is well known this could be lyme driven).
I was in total remission for several months this summer, but lately have some very minor symptoms returning. This could be due to some more aggressive therapy recently added such as Olive Leaf extract. I don't know yet.
My immune system is very strong now and if I do decide to tackle this with abx, I am confident my body will handle the side effects well. I will help it along with all the dietary aids I have learned through the course of this disease.
I no longer suffer any symptoms other than joint pain. I don't like the joint pain, but it is so minor I seldom ever take Advil and so far, no joint damage.
Don't be discouraged. I agree totally with clairenotes that what you have accomplished to date will serve you very well in your battle to get well.
Luvs
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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posted
If you have an "IND" western blot ..... you have been exposed to Bb. So basically you have lyme.
Another way to put it...
Can you be a little bit pregnant? Anwser... NO!
Your doctor needs to treat the lyme, the metal testing and thyroid are important and need to be treated also. But you won't feel better until you get the lyme treated.
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