posted
I just wanted to see recnet info. on how people were doing on Tindamax.
After reading people's posts, I started on 250 mg.s twice a day (pulsing 3 days a week)rather than the 500mg.s twice a day my LLMD had prescribed. I was too afraid of the HERX and want to ease into it - if that is possible.
I have been on IV Rocephin for 3.5 months now, diflucan the same amount of time and Ceftin for 6 months previously.
"Illnesses, hover constantly above us, their seed blown by the winds, but they do not set in the terrain unless the terrain is ready to receive them."---Claude Bernard. Posts: 131 | From US | Registered: Dec 2006
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posted
tini has helped me tremendously in terms of clearing up my brain, regaining energy, etc. I was on it last summer along w/bicillin injections, and improved so much, I almost felt normal. Then my LLNP changed my meds completely to Levaquin only, and my condition plummeted like a rock. Now I'm back on it, and getting better again.
HOpefully I won't have any neuro side effects. That's one of the reasons they took me off. I guess there can be permanent neurologic side effects w/prolonged use.
This time, I want to stay on it as long as possible and hopefully blast out all the cysts.
Patti
Posts: 449 | From Pasadena, CA, usa | Registered: Aug 2005
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
I pulsed tini in with my other abx's & feel it did some good. It did make me herx more and made me worse on many levels for a while but it didn't have any long term damage.
It did take a while to clear the herx's so maybe a good idea for you to ramp up with this one as is possible you may have a high cyst count.
good luck & hang in there Blessings, Dana
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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LisaS
Frequent Contributor (1K+ posts)
Member # 10581
posted
Hello, I just wondered how you are doing on Tini? I just took it for the first time today.
I dont think my body can handle it. My legs got so weak I couldnt stand. My head felt funny, I
couldnt see or hear right. Its about 6 hours later and Im still not right.
I wondering if anyone else had such a bad reacition to it?
"Illnesses, hover constantly above us, their seed blown by the winds, but they do not set in the terrain unless the terrain is ready to receive them."---Claude Bernard. Posts: 131 | From US | Registered: Dec 2006
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Andie333
Frequent Contributor (1K+ posts)
Member # 7370
posted
I waited to start tindi until my germ load was somewhat reduced (I'd been on ceftin and rifampin for about a year by then).
I ramped up slowly and now pulse this for a week out of the month. I continue to herx when I initially take it but it does seem to be helping some of my symptoms.
And I can't help but think that, overall, it's been a good thing.
Andie
Posts: 2549 | From never never land | Registered: May 2005
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