-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
| IP: Logged |
Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780
posted
Hi
I am on high dose amoxicillin.
It does kill the chetes and there is no sun sensitivity with amoxy.
You would need to take lots of probiotics with amoxy. I am also taking the Buhner protocol, except for cats claw (which for some reason does not agree with me).
Might be good for the summer months when staying out of the sun is not an option.
In my experience, the higher dose works better. I was on 3-4 g/day (weigh 135 lbs) for several months, and that helped, but not with persistent neuro symptoms. Now on about 9g/day (half in AM and half in PM), which is having a more powerful effect in getting rid of lyme symptoms (or I should say had, as I'm not sure this week if I am herxing or relapsing!).
take care!
[ 23. March 2007, 11:20 AM: Message edited by: Vermont_Lymie ]
Posts: 2557 | From home | Registered: Aug 2006
| IP: Logged |
posted
I was wondering this, too, as I feel better when I'm getting some fresh air and sunshine. I'm already taking Biaxin and Omnicef with the Doxy.
Several years ago I was pregnant and took my umbrella to watch my kids play softball because I get heat exhaustion so easily when I'm pregnant. All the other people were out there pulling up their sleeves to get tan.
The following week, there were dozens of umbrellas! I was a trendsetter. I think I'll do the same this summer. I hope pale is in.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
| IP: Logged |
posted
I was just wondering the same Geneal. Doxy ws not an issue for me last summer. But now I am on the Rocephin and Doxy-and about to head out to my daughter's soccer game-it''s overcast though- does that make a difference? Does an umbrella count as shade? I ws also thinking of a long sleeved gauze shirt to wear over whatever else i wear in summer-as it is a season of soccer and softball for us.
Gotta go for now-will touch base later. Carol
IP: Logged |
posted
Tetracycline would be another possible alternative. In fact, a couple of the well known LLMD's have expressed a preference for it.
Posts: 714 | From San Antonio TX | Registered: Oct 2004
| IP: Logged |
quote:Originally posted by Cobweb: it''s overcast though- does that make a difference? Does an umbrella count as shade?
If the umbrella blocks the sunlight from you, it's shade. However, the sun can reflect off things so you should still wear sunscreen. This is especially true in a pool or on a beach.
My family is from Florida, so I've spent a lot of time there. The biggest mistake tourists make is to assume they're not getting sun on an overcast day. The UV rays still come through, but you don't get as hot, so you don't realize you are burning. Wear sunscreen on an overcast day!
This is my first time on doxy. How bad is it in the sun?
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
| IP: Logged |
Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Dear sixgoofykids,
Doxy is murder in the sun!!!!
It's not just that you burn, but it makes your skin tingle and hurt and feel like it is painfully on fire.
I didn't think about being on doxy when I made a trip to Texas last year. Six hours of driving.
My left hand on the steering wheel began to feel strange.
By the time 2 hours rolled by, I realized my hand was burned bad.
What to do? Had kids and Mom in car.
I took my shirt and pulled the sleeves down over my hand.
It hurt for several days.
Then all of the skin peeled off of it.
Lovely.
Last time I was on doxy and drove to LLMD, I did the Michael Jackson thing and wore one glove.
Be very careful of sun exposure on doxy. I wore 70 spf on my hands on last run of doxy and still
got burned.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
| IP: Logged |
posted
I think the "NO AD " tanning lotion from Wal Mart is great ( not the dark though - the medium tone ) because you can look like you are not kin to Morticia Adams and not sit in the tanning bed or spend hours sunbathing .
It is cheap and if you put a little on after bathing , you look like a healthy but not like a fake look.
It is time to buy a new tube and maybe check out the other beauty products that help me look presentable ( even as a member of AARP) .
posted
The reasoning of the LLMD who was a recent ILADS President on using Tetracycline instead of Doxy or Mino in many cases...
1) Tetracycline dies not usually cause the photosensitivity problems like Doxy.
2) Tetracycline is less toxic than its other two cousins.
3) People can usually tolerate it better as far as gastric distress problems are concerned.
4) It is true that Tetracycline does not have as much activity gram for gram than the other two or cross the BBB as readily... But the fact that you can take so much higher of a dose balances out most of that disadvantage.
(From a recent presentation he gave on research into the evidence linking Lyme and MS.)
It is also one of the least expensive antibiotics on the planet.
A disadvantage is that it has to be taken more often, and should be taken separately from food for best absorbtion.
Just a little clarification on my brief comment above.
Posts: 714 | From San Antonio TX | Registered: Oct 2004
| IP: Logged |
posted
Not everyone seems to have the sunburn problems with Doxy. I've taken it in the summer in moderate amounts before without incident.
My understanding is though, that those who do can get REALLY SEVERE burns, not just annoying ones. I don't think lotions or tanning products would protect them. It is something to take seriously and be cautious about.
Posts: 714 | From San Antonio TX | Registered: Oct 2004
| IP: Logged |
Cobweb
Unregistered
posted
My LLMD usually will not prescribe Doxy in summer months and technically it is still Spring. When she did prescribe Doxy in the Fall, she told me that Neutrogena SPF something Dry Touch was a good sunscreen for Doxy.
The last two soccer games I went to weren't a problem -the Chinook Winds were whipping down the pike for the first one. I watched the game wearing a winter coat with an old army blanket over my head.
The second game it was pouring, but they played anyway. I had a lined raincoat and a big umbrella. I still got drenched from the knees down to my feet. But oh it felt so good to get into a dry car and blast the heat.
Should the sun ever come out tomorrow though I will be prepared with a wide brimmed hat, long sleeves, nose kote and parousal.(it's not considered an umbrella if the sun is shining).
Geneal- I saw horrible sun blisters on a friend's hands after they had been on a picnic. She had covered herself completely-except for her hands. Almost looked like acid burns.
I'll try to find out more specifically what the SPF was for that sunscreen.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/