Now that I'm 6 months into treatment, I notice that my symptoms change throughout the day. Almost in a pattern. But I don't have good or bad DAYS, I have good or bad HOURS... sometimes even minutes.
-------------------- 26 months of treatment. And counting....... Posts: 298 | From Northeast Kansas | Registered: Oct 2006
| IP: Logged |
LisaS
Frequent Contributor (1K+ posts)
Member # 10581
posted
Yes, I used to call it good days and bad days. Now when people ask how I am, I just say at the moment I am....
I went from working three jobs to telling all of them I can only come in "on Call'. Ive tried to explain that one minute I feel fine and want to do everything I used to, then the next Im shaking and have tremors and feel like Im going to faint!
Sorry you have this too. Hope you are better soon!
posted
You bet! Although most of my most bothersome symptoms have abated, I am plagued within the day by all sorts of aches and pains...this morning I thought i really had to cancel tonights workout at the gym....about an hour ago i decided not to cancel because i was feeling better, but now as i write this, i am not so sure i can do it...
Posts: 277 | From NY | Registered: Jun 2005
| IP: Logged |
5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Absolutely,
I can wake up in the morning & feel not so bad but in a space of a few hours its back to bed & feeling like cr@p.
Also other way around. But the thing I can count on is for sure is after dinner my day is threw. I am pretty useless in the evenings. Just crash.
No 2 days seem the same... I can have a fab day one day & the next be feeling sick. Crazy disease! I do wish as that I could count on my body to behave on a regulat basis.
It's so hard to plan anything. Frustates my hubby also to no end.
take care Dana
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
| IP: Logged |
Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
I have this also.
For example, woke up feeling pretty good this am.
Did some running around.
Now I am dizzy, tired, getting a headache, etc.
It usually happens that when I have a bad morning, somewhere at the end
of my day I will have one or two hours where I feel better.
If I wake up feeling good, then good bye afternoon and evening....
However, this is better than before antibx where all I had was bad days, over and over.
Hope you get more "good" time into your days.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
| IP: Logged |
posted
Thankfully, my symptoms do vary. I don't think I could take it if they all happened at once!
I actually have good days and bad days. Usually, if the days starts out good, I get tired by the the early evening, but sometimes the whole day is good.
Up till a couple weeks ago, there was no such thing as feeling good.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
| IP: Logged |
posted
Now that I'm on Omnicef... Most of the time is very difficult. The doxy didn't hit me this hard. But when I feel good... I feel REAL good. The doxy didn't do that either.
I'm just hoping for a day where the Herx let's up. This is hard.
-------------------- 26 months of treatment. And counting....... Posts: 298 | From Northeast Kansas | Registered: Oct 2006
| IP: Logged |
posted
My LLMD is still waiting for the IgenX results so I haven't even started abx yet. But I can tell you constant change is the only constant in my life.
-------------------- When you reach your "wits-end" remember this: "Peace I leave with you, my peace I give you. I do not give as the world gives. Do not let your hearts be troubled and do not be afraid." John 14:27 Posts: 397 | From Loudoun County Virginia | Registered: Mar 2007
| IP: Logged |
randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
I describe it as being sort of like being a circus one minute and a walking volcano the next.
I mean I can go from feeling semi-normal to one foot in the grave...
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
| IP: Logged |
map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
I remember being so ill and then having a good hour(s) and doubt myself whether I was really sick. I couldn't image how someone can feel like death and then feel completely normal for a little while.
When I first starting having these breakthoughs on feeling good, I would get so excited with the wonder if the end of this hell was almost over.
Then all the sx would hit me again. It was so disappointing. Finally I learned to accept it for what it was. No, I'm not crazy. I'm going to take this good hour/day and do something I used to do. Enjoy it now. Fight it later.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
| IP: Logged |
posted
It began with having good months and bad months. Then it went to having good weeks and bad weeks, then to good days and bad days.
Now, it's hour by hour.
It's frustrating and many people doubt my illness because of it. How could someone look and feel normal in the morning, but by the early afternoon all they can do is lay on the couch in misery?
It's always been two steps forward, one step back. I don't get excited anymore when I feel good because I know it's probably only a matter of time before I feel awful again.
I'm tired of people asking me how I'm feeling. Sometimes I don't know how I feel anymore. I just shrug my shoulders and keep silent.
Posts: 81 | From Central PA | Registered: Mar 2007
| IP: Logged |
CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
Time related for me was that the Lyme caused
an early awakening sleep disorder
and Babs would cause me to CRASH suddenly almost narcoleptically in the late afternoon- just BOOM and I could not keep my eyes open for the life of me!!! (okay hyperbole= not for the life of me but it was IMPOSSIBLE! okay VERY VERY VERY hard!)
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
| IP: Logged |
savebabe
Frequent Contributor (1K+ posts)
Member # 9847
posted
Afternoons are always the worst, although the nightime burning sensations are not fun either.
Posts: 1603 | From ny | Registered: Aug 2006
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/