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» LymeNet Flash » Questions and Discussion » Medical Questions » Reminder: sign PETITION re: IDSA Lyme guidelines & send to your friends!

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Author Topic: Reminder: sign PETITION re: IDSA Lyme guidelines & send to your friends!
Dancer
LymeNet Contributor
Member # 11039

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DIRECT LINK TO PETITION
http://www.lymediseaseassociation.org/referral/Petitions/Petition.php?id=1

ABOUT THE PETITION
(from www.lymediseaseassociation.org home page):

New IDSA Guidelines Effectively Stopping Treatment for Lyme Patients:

The new IDSA guidelines published in October by the Infectious Diseases Society of America (IDSA) are already causing patients to be denied treatment for chronic Lyme disease. The guidelines have recommended against any long term treatments, listing numerous specific antibiotic classes not to be given, listing alternative treatments and even supplements not to be offered to Lyme patients. Clinical discretion has been removed from treating physicians. We ask that you, your families, and friends across the country sign this petition immediately. Lyme treatment is at stake.

Petition Information: The petition on this website is for those 18 years and older to sign. Names and addresses will NOT appear on the internet but will be printed out with the petition when it is ready to be presented to the appropriate entity. LDA never sells names, nor shares them with marketers. The petition will be used in an effort to advance our cause at the appropriate time and will be kept private until that time. Remember, like many of you, LDA is all patients and families of patients ? and all volunteer.

[ 14. October 2007, 10:09 PM: Message edited by: Dancer ]

Posts: 227 | From South of the North Pole | Registered: Jan 2007  |  IP: Logged | Report this post to a Moderator
Dave6002
Frequent Contributor (1K+ posts)
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Petition Count: 28987.

Wow!

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Dancer
LymeNet Contributor
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Just passed 29,000! [woohoo]
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TerryK
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Not sure if I signed this before or if they have a way to tell if one has previously signed but I went ahead and signed it. I'll pass it on to others that I know.

Thanks for posting this,
Terry

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tailz
Unregistered


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What are the new guidelines? I'll bet that's why I got dumped.

This is crazy - people are going to die.

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BorreliaBrain
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Dancer
LymeNet Contributor
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This petition refers to the IDSA (Infectious Diseases Society of America) guidelines that came out in Oct. 2006.

For anybody who's interested --
LDA's press release about them can be read here:

http://www.lymediseaseassociation.org/NewsReleases/20061010.html

And there are summaries and a comparison of the IDSA guidelines (bad) and the ILADS guidelines (good) here:

http://ilads.org/guidelines.html

Yes, the insurance companies now have a convenient excuse to deny coverage for Lyme treatment.

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bettyg
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would you believe LDA started that 1 year ago this nov??

it was their original goal to get 25,000 during month of NOV. ONLY/11 took us a long time, bt we're still going.


i've had LDA/LYNNE'S petition in my newbie package info for 1 year now asking all newbies/families to sign up then!! [Wink]

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bettyg
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forgot to say, this one lets YOU VOTE ONCE ONLY PER EMAIL ADDRESS!!!!
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Dancer
LymeNet Contributor
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Thanks Betty, I didn't know that about the voting once per email, good to know.

I wonder if this post could be added to the top of the page where it stays put? It is so important and a long term project. But I don't know how to contact the moderator.

Can anyone help?
Thanks!

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Dancer
LymeNet Contributor
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bettyg
Unregistered


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dancer, this is activism and belongs there.

when jenifer eventually sees it, i'm sure she will close this one, and move it to activism.

there are many posts there about this.

contact [email protected]

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