I've been reading this forum for awhile and would like to say how helpful your posts have been.
I'm looking for an LLMD in Maryland/DC or Northern Virginia. Does anyone have any recommendations?
I have a chronic mycoplasma infection. I requested Lyme testing as well but my internal medicine doctor only did the CDC-type test and it was negative. So, I found a doc to do the Igenex for me and I'm waiting for the results of that and a CD57 test.
My list of illnesses is long and the period of time in which I've been unwell is also long. I need someone to find out what the heck is going on. I'm fed up with feeling and being incapacitated.
Thanks in advance for any assistance!
p.s. Is there anyone else out there who has dealt with chronic mycoplasma infections?
FuzzySlippers
Posts: 503 | From Maryland | Registered: Oct 2007
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CaliforniaLyme
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Member # 7136
I had walking pneumonia mycoplasma years back at the same time I had "probable lupus" and the latter went away with abx for the former*)*!)! But I think that is a different kind of mycoplasma than you mean!!! Lou from Maryland would know a good doc I am sure*)!*)!! Lou's around here somewhere*)!! Sincerely, Sarah
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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posted
Sarah, thanks so much for the kind welcome and response. I've been sitting here for 5 minutes looking at your post trying to figure out where the Reply button was so I could reply. Doh! My brain has become such a disappointment lately. lol
After having "Chronic Fatigue Immune Dysfunction" for so long, I got fed up. I never really accepted that diagnosis because in my case, I felt like there must be a cause or source. So, I requested to be tested for Mycoplasmas and Lyme. As I said, my doc didn't do the "good" Lyme test and he only tested me for one Mycoplasma (Pneumonia).
I've been on antibiotics off and on since this past June. Tried Doxy first and it just didn't touch it plus I felt ill on that. I'm wondering if that was a herx. Anyway, I've been given Azithromycin and it does work for me. I'm now about mid-way through a month-long course. I've noticed so many of my weird symptoms are improving while on this.
Problem is, it keeps coming back whenever I'm off the antibiotic for about two weeks.
I haven't been well for years but the worst of it all started in 2005. I was diagnosed with Mono and "possible" pelvic infection, and I really haven't ever sprung back. The Mono went into Chronic Epstein Barr Virus. Thankfully, the Chronic EBV is gone. But there is still much to be addressed.
Diagnoses so far (most of the diagnoses have been made after some sort of testing): CFIDS, Fibromyalgia, Chronic Mycoplasma Pneumonia, Systemic Candidiasis, Irritable Bowel Syndrome/Bacterial Dysbiosis/Leaky Gut, Adrenal Fatigue, Chronic EBV (now gone), hormonal imbalances (high estrogen, low DHEA, low progesterone), Raynaud's Disease . . . I'm sure there is more but it gets to be just too embarrassing to list everything. I feel like a poster girl for that tv show "Mystery Diagnosis" or something.
Anyway, thanks so much for such an enthusiastic welcome!
FuzzySlippers xoxoxox
[ 26. October 2007, 02:49 PM: Message edited by: FuzzySlippers ]
Posts: 503 | From Maryland | Registered: Oct 2007
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CaliforniaLyme
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posted
HEY!*)!*)!
Diagnoses so far (most of the diagnoses have been made after some sort of testing):
CFIDS, ME TOO!*)!*)!
Fibromyalgia, ME TOO!!!!
Chronic Mycoplasma Pneumonia, ME WHEN YOUNGER!!
Systemic Candidiasis, NOPE!!
Irritable Bowel Syndrome, ME TOO!*))!*!
Raynaud's Disease . . . ME TOO!*)!*)!
I'm sure there is more but it gets to be just too embarrassing to list everything. I feel like a poster girl for that tv show "Mystery Diagnosis" or something. UNQUOTE Aw Heck, that girl is on this forum herself- he acct si Wild Condor and she is great*)!*)!
Wirting of acronyms I also had MCS Multiple Chem Sens RLS restless leg syn TMJ- jaw agony owwww!!! and a "multi-system progressive neurolgical disease triggered by PLS" (post Lyme syndrome!) which was progressive weakness, loss of balance, chorea in my left hand...
Sounds like you are in the right place*)!*)!! Very sincerely, Sarah
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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bettyg
Unregistered
posted
welcome fuzzy was he!
i'm sending you my 80 pages of newbie links, advise, symptoms long list, tests, disability, and much more including treepatrol's archive of over 1000 links of good lyme info.
glad you joined us! i'll let the maryland members answer about llmds but....
Go to SUPPORT GROUPS found in left-hand column, by country, then by state! Check 1st page to see where the various groups are located for your state. CLICK on link closest to you.
Read carefully if support group leader wants you to call them or EMAIL! Many are very sick themselves; so be patient in getting a response from them. Thanks!
SUPPORT GROUPS .... LYME FOR ``YOUR'' STATE! See below!! 8-19-07
You might be interested in joining your online state yahoo group. All are set up the same way with the state name and lyme run together as one word, http://health.groups.yahoo.com/group/STATENAMELYME, e.g. newyorklyme,
except for 4 states which have a hyphen between the statename and lyme, e.g. southcarolina-lyme. Those states are SC, WY, ND, SD.
The groups were set up by Phyllis Mervine of CALDA, Calif. LDA, to help create an infrastructure for the Lyme community for patient support, local resources, and political action. thx Phyllis!
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lymednva
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posted
PM sent.
-------------------- Lymednva Posts: 2407 | From over the river and through the woods | Registered: Apr 2006
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heiwalove
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Member # 6467
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