posted
OK I sent my blood out. Not sure if it went out on a Tuesday or Wed morning from NY. So It may have sat over the weekend not sure but wanted to mention it Anyway...
IGG Igenex - Positive CDC Neg
Band 31 ++ Band 41 + Band 39 IND
IGM NEG ( lab and cdc)
23-25 IND 31 IND
This is my 3rd Western Blot since 2006 ( spring ) The First was CDC and Igenex Post. The second was Igenex Pos but CDC neg. Above is the 3rd. I was treated for 6 weeks Doxy. Also in the spring of 06 I had a Positive Quest Elisa...
WEll folks what do you think? Lots of Muscle Twitching, tingling , Fatique etc ( now )
Posts: 355 | From NY | Registered: Jan 2006
| IP: Logged |
posted
With symptoms and those results, I'd say you need to see an LLMD.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
| IP: Logged |
feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Band 31 is Bb specific and if I am correct, it is what the lyme vaccine was made out of.
Many people never show + on band 31. I think that I have also read somewhere, can't remember exactly WHERE, that band 31 shows up mostly in late stage disease.
Your ++ 0n 31 and symptoms would have me high tailing it to see a LLMD. Just my opinion.
Posts: 3975 | From usa | Registered: Aug 2007
| IP: Logged |
posted
My last WB had 31 +++. I will find the pastb tests and post
Posts: 355 | From NY | Registered: Jan 2006
| IP: Logged |
CherylSue
Frequent Contributor (1K+ posts)
Member # 13077
posted
According to my LLMD Dr. C, you are positive and need to be treated further.
Good luck.
CherylSue
Posts: 1954 | From Illinois | Registered: Aug 2007
| IP: Logged |
adamm
Unregistered
posted
No question about it. You've got Lyme.
IP: Logged |
map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Six weeks of doxy didn't wipe out your lyme antibodies. You still show positive with borrellia antibodies.
I've heard and seen it said that once positive for lyme antibodies always lyme positive for antibodies? But I don't know that as fact, because I don't believe I ever heard or seen it in print from someone that knows the real story like the great Dr C in Missouri?
I'll be watching for posts from some lyme patients of LLMD's that should know.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
| IP: Logged |
posted
There was some question because I have a positive Rheumatoid factor. ( Cross reaction ?? ) but Igenex said probably not. Esp since I have had 3 Igenex Positives. Will post past tests later
Posts: 355 | From NY | Registered: Jan 2006
| IP: Logged |
posted
If it's any consolation, I am double ++ on band 31 and believe I have late stage (at least 20 years symptoms)
Take care,
-------------------- Bart Henslea 1976 Fibro/CFS/arthritis 2004 Lyme diagnosed 2007 3 1/2 years treatment with oral combos, Cowden, IV roc. BW herbs. Off all abx in 12/10. Feeling good. Posts: 647 | From NY | Registered: Dec 2007
| IP: Logged |
posted
TS 96 and all.....I was treated for Lyme back in 1990. 2 weeks cenftriione ?? ( sp ). Gonna look into band 31,since it keeps popping up. So I may also have had Lyme a long time
Posts: 355 | From NY | Registered: Jan 2006
| IP: Logged |
posted
Well the DR ( not llmd Neuro Dr ) just E mailed me back after looking at Igenex tests and said " All is Fine " .....?????
Posts: 355 | From NY | Registered: Jan 2006
| IP: Logged |
Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
That is because the non-Lyme Literate Doctor doesn't know how to read a Western Blot!
Sheesh!
All is not fine. If you have symptoms and that Western Blot, please get to
A LLMD asap and get started on real treatment.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
| IP: Logged |
posted
All is fine, is he crazy? Band 30 and 31+ and 39 ind. that is lyme period.
Posts: 649 | From United States | Registered: Dec 2003
| IP: Logged |
posted
Well as I said he is a Neuro DR. He is in NYC. I asked him about Columbia Lyme center. Hopefully he will respond back
Posts: 355 | From NY | Registered: Jan 2006
| IP: Logged |
quote:Originally posted by duke77: All is fine, is he crazy? Band 30 and 31+ and 39 ind. that is lyme period.
gads!!!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
| IP: Logged |
feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
You still have Lyme fella. Sorry, there ain't any other way about it.
You are still symptomatic, you have Bb specific antibodies. Pretty straightforward. find a doctor (LLMD)please.
Posts: 3975 | From usa | Registered: Aug 2007
| IP: Logged |
disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
You have Lyme. That's an awful lot of positives (plus all the positive lyme specific bands)!!!!!
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
| IP: Logged |
quote:Originally posted by 6t5frlane: Why the changing on the IGG and IGM. I've probably had this a long time
from Dr C's explanation of the WB:
"With most infections, your immune system first forms IgM antibodies, then in about 2 to 4 weeks, you see IgG antibodies. In some infections, IgG antibodies may be detectable for years.
Because Borrelia burgdorferi is a chronic persistent infection that may last for decades, you would think patients with chronic symptoms would have positive IgG Western blots.
But actually, more IgM blots are positive in chronic borreliosis than IgG. Every time Borrelia burgdorferi reproduces itself, it may stimulate the immune system to form new IgM antibodies.
Some patients have both IgG and IgM blots positive. But if either the IgG or IgM blot is positive, overall it is a positive result.
Response to antibiotics is the same if either is positive, or both. Some antibodies against the borrelia are given more significance if they are IgG versus IgM, or vice versa.
Since this is a chronic persistent infection, this does not make a lot of sense to me. A newly formed Borrelia burgdorferi should have the same antigen parts as the previous bacteria that produced it.
But anyway, from my clinical experience, these borrelia associated bands usually predict a clinical change in symptoms with antibiotics, regardless of whether they are IgG or IgM."
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
| IP: Logged |
posted
Thanks for the explanation on theIGM and IGG. I guess I'm gonna look fort another Dr. I had seen Dr C in Mt Kisco NY but would prefer another
Posts: 355 | From NY | Registered: Jan 2006
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic